The International Waldenstrom's Macroglobulinemia Foundation Inc logo

IWMF Travel & Lodging (T&L) Assistance Program

The International Waldenstrom's Macroglobulinemia Foundation Inc

Foundation Annual Hardship Grants

Funding Amount

Varies (up to program's established financial limit)

Deadline

Deadline not published

Grant Type

Foundation

Deadline history & next window

Cycle
Annual
Tracked since
April 2026

Source: the cycle recorded on this listing. Confirm dates with the funder.

Can we apply?

Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.

Eligible organizations

  • Individuals diagnosed with WM
  • Individuals being evaluated for WM

Other requirements

  • Community members inside AND outside of the U.S

Overview

Funder: International Waldenstrom's Macroglobulinemia Foundation (IWMF) in partnership with The National Organization for Rare Disorders (NORD)

Program Type: Financial assistance program (patient support rather than research grant)

Eligibility:

  • Individuals diagnosed with WM
  • Individuals being evaluated for WM
  • Community members inside AND outside of the U.S.

Coverage Areas:

  • Travel and lodging for second opinion or diagnosis confirmation appointments with WM specialists
  • Travel related to clinical trial eligibility screening or first clinical trial visit (when not paid by trial sponsor)
  • Annual grants for travel to regularly scheduled WM-related appointments (expanded in 2024)

Important Notes:

  • Funding is limited
  • Program was expanded at the beginning of 2024 to include annual grants for regularly scheduled WM appointments
  • Particularly valuable for WM patients given the rarity of the disease and importance of specialist consultation

Contact Information:

  • NORD Contact:
    • Phone: 203-308-5902 (Monday-Friday, 8:30 AM - 6:00 PM EDT)
    • Email: IWMFTravel@rarediseases.org
  • IWMF Contact:
    • Phone: 941-927-4963
    • Email: office@iwmf.com
    • Address: 1449 S Michigan Ave STE 13329, Chicago, IL 60605

How to Apply

How to Apply

  1. Contact NORD directly at:
    • Phone: 203-308-5902 (Monday-Friday, 8:30 AM - 6:00 PM EDT)
    • Email: IWMFTravel@rarediseases.org
  2. Additional Resources:
    • Request the NORD flyer for program details
    • NORD manages applications on behalf of IWMF

What The International Waldenstrom's Macroglobulinemia Foundation Inc actually gave

Source: IRS Form 990, 2024

Grants in 2024
6
Total given
$2.14M
Median grant
$200K
Range
$30K–$1.26M
  • By dollars: Massachusetts 74%, Minnesota 20%, Ohio 4%. Top recipient cities: Boston, MA; Mineapolis, MN; Columbus, OH.
  • 0% of grants with a stated purpose were for general or operating support.

Example grants

  • Dana Farber Cancer Institute · Boston, MA

    Research

    $1.26M

  • Mayo Clinic · Mineapolis, MN

    Research

    $421K

  • NYU School of Medicine · Boston, MA

    Research

    $320K

  • The Ohio State University · Columbus, OH

    Research

    $80K

  • University of CA San Diego · La Jolla, CA

    Research

    $30K

IRS Form 990, 2024. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Hardship

Categories

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