The International Waldenstrom's Macroglobulinemia Foundation Inc
Mission objectives: (a) offer support and encouragement to the waldenstrom's macroglobulinemia community and others with an interest in the disease, (b) to provide information and educational programs that address patients and caregivers' concerns and (c) to provide and support research leading to better treatments and ultimately a cure.
Key facts about The International Waldenstrom's Macroglobulinemia Foundation Inc
In short: The International Waldenstrom's Macroglobulinemia Foundation Inc gave $2.1M across 6 grants in 2024 (avg $357K), mostly in Massachusetts. Source: 2024 IRS Form 990.
- EIN
- 54-1784426
- Latest 990 filing
- Form 990, 2024
- Annual giving (2024)
- $2,143,879
- Grants made (2024)
- 6
- Average grant
- $357,313
- Median grant
- $199,975
- Total assets
- $7,467,490
- Primary geography
- Massachusetts (74% of itemized 2024 grant dollars)
Data from IRS Form 990, 2024; updated September 2026.
Financial Overview
From 2024 IRS Form 990 · View filing
Total Assets
$7.5M
-10.3% YoY
Annual Giving
$2.1M
+61.3% YoY
Grant Count
6
+0.0% YoY
Avg Grant Size
$357K
+61.3% YoY
How The International Waldenstrom's Macroglobulinemia Foundation Inc gives
- Giving grew 90% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
About The International Waldenstrom's Macroglobulinemia Foundation Inc
Based on IRS filings
The International Waldenstrom's Macroglobulinemia Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sarasota, FL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.5M in total assets. In 2024, it awarded 6 grants totaling $2.1M. Net investment income was $305K.
Focus Areas
Open Grants
12 open opportunities from The International Waldenstrom's Macroglobulinemia Foundation Inc
2026 Research Request for Proposals (RFP)
The International Waldenstrom's Macroglobulinemia Foundation Inc
Amount
$250,000 - $1,000,000 over 2-4 years
Deadline
Deadline not published
Companion Grant
The International Waldenstrom's Macroglobulinemia Foundation Inc
Amount
$120,000 total
Deadline
Deadline not published
Enhanced Roadmap Grant
The International Waldenstrom's Macroglobulinemia Foundation Inc
Amount
$1,500,000 total
Deadline
Deadline not published
Ready to take the next step with The International Waldenstrom's Macroglobulinemia Foundation Inc?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 6 itemized grants.
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $933K (2022) to $2.1M (2024). In 2024 it made 6 grants totaling $2.1M.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2024
The largest 2024 recipient was Dana Farber Cancer Institute ($1.3M). Together the top 6 received $2.1M.
Grant Size Distribution
29 grants across all recorded years
The most common grant size was under $50K: 10 grants of 29 (34%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Dana Farber Cancer Institute Boston, MA | Research | $1,262,440 |
| Mayo Clinic Mineapolis, MN | Research | $421,489 |
| NYU School of Medicine Boston, MA | Research | $320,000 |
| The Ohio State University Columbus, OH | Research | $79,950 |
| University of CA San Diego La Jolla, CA | Research | $30,000 |
| Memorial Sloan-Kettering Cancer Center New York, NY | Research | $30,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $7,467,490 | $8,329,477 | $9,055,891 |
| Revenue | $4,463,374 | $3,292,131 | $4,169,452 |
| Expenses | $5,497,731 | $4,066,709 | $2,555,918 |
| Net Investment Income | $305,481 | $226,174 | $30,904 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS October 4, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 29, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 31, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 1, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 3, 2025)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
The International Waldenstrom's Macroglobulinemia Foundation Inc is led by Louie Newton Guerin, President & CEO on the 2024 filing; 2 of 19 officers listed in 2024 are compensated.
Officers on the 2024 filing
Louie Newton Guerin
President & CEO
New on the 2024 filing
40 hrs/week
$157K (2024)
Paul Kitchen
Chairman
Trustee → Chairman, 2024
On filings since 2020
30 hrs/week
No compensation reported
Annette Preston
Director of Development
New on the 2024 filing
40 hrs/week
$111K (2024)
Linda Nelson
Trustee
On filings since 2020
15 hrs/week
No compensation reported
Meg Mangin
Trustee
On filings since 2020
15 hrs/week
No compensation reported
Shirley Ganse
Trustee
On filings since 2020
15 hrs/week
No compensation reported
Stephen Ansell MD PhD
Trustee
On filings since 2020
15 hrs/week
No compensation reported
Glenn Cantor Dvm PhD
Trustee
On filings since 2023
15 hrs/week
No compensation reported
Saurabh Seroo
Trustee
On filings since 2023
15 hrs/week
No compensation reported
Carol Welsh Gray
Trustee
New on the 2024 filing
15 hrs/week
No compensation reported
Craig Prizant
Trustee
New on the 2024 filing
15 hrs/week
No compensation reported
David Schnell
Trustee
New on the 2024 filing
15 hrs/week
No compensation reported
Eileen Sullivan
Trustee
New on the 2024 filing
15 hrs/week
No compensation reported
John Zimmerman
Trustee
New on the 2024 filing
15 hrs/week
No compensation reported
Robert Perry
Trustee
New on the 2024 filing
15 hrs/week
No compensation reported
Carl Lisman
Secretary & Treasurer
Trustee → Secretary & Treasurer, 2022
On filings since 2020
15 hrs/week
No compensation reported
Carl Harrington
Vice Chair Fundraising
On filings since 2023
15 hrs/week
No compensation reported
Lisa Wise
Vice Chair Info & Support
Vice Chair Information & Support → Vice Chair Info & Support, 2024
On filings since 2023
15 hrs/week
No compensation reported
Thomas Hoffman MD
Vice Chair Research
On filings since 2023
15 hrs/week
No compensation reported
Former officers (11)
- Former: Newton Guerin (2020–2023) — President & CEO
- Former: Peter Denardis (2020–2023) — Chairman
- Former: Steven Treon MD PhD (2023) — Board Advisor
- Former: Glenn Cantor (2020–2022) — Trustee
- Former: Lisa J. Wise Med (2020–2022) — Vice President for Member
- Former: Ron Branscome (2020–2022) — Vice President for Fundrai
- Former: Thomas H. Hoffmann Md Facsaccp (2020–2022) — Vice President for Researc
- Former: David Kahn (2022) — Trustee
- Former: Julie Richardson (2022) — Trustee
- Former: Beverly Docteur (2020–2021) — Secretary & Treasurer
- Former: Michael Sesnowitz (2020) — Vice President for Fundrai
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $157K, to Louie Newton Guerin (President/CEO). 2 officers or directors reported compensation on that filing.
Frequently asked questions about The International Waldenstrom's Macroglobulinemia Foundation Inc
How much does The International Waldenstrom's Macroglobulinemia Foundation Inc give each year?
The International Waldenstrom's Macroglobulinemia Foundation Inc gave $2.1M across 6 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $1.3M across 6 grants.
What is The International Waldenstrom's Macroglobulinemia Foundation Inc's typical grant size?
The International Waldenstrom's Macroglobulinemia Foundation Inc's median grant in 2024 was $199,975, and its average grant was $357,313, across 6 grants on its 2024 IRS Form 990.
Where does The International Waldenstrom's Macroglobulinemia Foundation Inc give grants?
The International Waldenstrom's Macroglobulinemia Foundation Inc gives mostly in Massachusetts: 74% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest state was Minnesota (20%). The most frequent recipient cities were Boston, MA (2 grants).
Does The International Waldenstrom's Macroglobulinemia Foundation Inc give general operating support?
Not in 2024: none of the 6 grants with a stated purpose on The International Waldenstrom's Macroglobulinemia Foundation Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (6 grants).
Who are The International Waldenstrom's Macroglobulinemia Foundation Inc's largest grantees?
The International Waldenstrom's Macroglobulinemia Foundation Inc's largest 2024 grantees include Dana Farber Cancer Institute ($1,262,440), Mayo Clinic ($421,489) and NYU School of Medicine ($320,000), according to its 2024 IRS Form 990. Together they received 93% of its itemized 2024 grant dollars.
How large is The International Waldenstrom's Macroglobulinemia Foundation Inc?
The International Waldenstrom's Macroglobulinemia Foundation Inc reported $7.5M in total assets on its 2024 IRS Form 990. Its revenue that year was $4.5M.
What is The International Waldenstrom's Macroglobulinemia Foundation Inc?
The International Waldenstrom's Macroglobulinemia Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sarasota, FL. It holds $7.5M in total assets as of 2024.
What is The International Waldenstrom's Macroglobulinemia Foundation Inc's EIN?
The International Waldenstrom's Macroglobulinemia Foundation Inc's EIN (Employer Identification Number) is 54-1784426. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching The International Waldenstrom's Macroglobulinemia Foundation Inc by hand.
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