Tourette Association of America Inc
TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS.
Key facts about Tourette Association of America Inc
- EIN
- 23-7191992
- Latest 990 filing
- Form 990-PF, 2025
- Annual giving (2025)
- $600,000
- Grants made (2025)
- 4
- Average grant
- $150,000
- Median grant
- $150,000
- Total assets
- $9,502,751
- Primary geography
- California (25% of itemized 2025 grant dollars)
Data from IRS Form 990-PF, 2025; updated September 2026.
Who Tourette Association of America Inc funds
By grant dollars, the top recipient states for Tourette Association of America Inc's 4 itemized 2025 grants were California (25%), Connecticut (25%) and Minnesota (25%). None of its 4 grants with a stated purpose were described as general or operating support. Recurring purposes include "Research" (4 grants).
How Tourette Association of America Inc gives
- Giving grew 84% from 2022 to 2025. Method
From the foundation's IRS Form 990-PF filings. Methodology.
Next steps with Tourette Association of America Inc
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Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$9.5M
-8.8% YoY
Annual Giving
$600K
-33.1% YoY
Grant Count
4
-33.3% YoY
Avg Grant Size
$150K
+0.3% YoY
About Tourette Association of America Inc
Based on IRS filings
Tourette Association of America Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Bayside, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $9.5M in total assets. In 2025, it awarded 4 grants totaling $600K. Net investment income was $437K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 4 itemized 2025 grant dollars.
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $9,502,751 | $10,414,671 | $11,157,402 |
| Revenue | $5,236,564 | $5,048,195 | $4,883,886 |
| Expenses | $5,799,579 | $6,604,537 | $5,207,884 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $436,522 | $486,666 | $141,640 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2025
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
Grant Size Distribution
22 grants across all recorded years
Open Grants
2 open opportunities from Tourette Association of America Inc
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest recipients include Regents of the University of CA (Ucsd) ($150,000), Yale University ($150,000), University of Minnesota ($150,000).
| Recipient | Purpose | Amount |
|---|---|---|
| REGENTS OF THE UNIVERSITY OF CA (UCSD) La Jolla, CA | RESEARCH | $150,000 |
| YALE UNIVERSITY New Haven, CT | RESEARCH | $150,000 |
| UNIVERSITY OF MINNESOTA Minneapolis, MN | RESEARCH | $150,000 |
| RUTGERS Piscataway, NJ | RESEARCH | $150,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Stephen Barron | Chairman of the Board | 2 | — |
| David Schoenhaar | First Vice Chair | 2 | — |
| Jasmine Tarkoff | Second Vice Chair | 2 | — |
| Jeffrey Kramer | Third Vice Chair | 2 | — |
| Alice Kane | Fourth Vice Chair | 2 | — |
| Cheri David CPA | Director | 2 | — |
| Monte Redman | Director | 2 | — |
| Paul Devore | Director | 2 | — |
| Marc Benson | Director | 2 | — |
| Bruce Ochsman | Director | 2 | — |
| Daniel McGarvey | Director | 2 | — |
| Cindy Kurtz | Director | 2 | — |
| Rovena Schirling | Director | 2 | — |
| Randi Zemsky | Director | 4 | — |
| Karl Valentini | Director | 2 | — |
| John Walkup MD | Director | 2 | — |
| Susan Courey PHD | Director | 2 | — |
| Anthony Acampora Eff 22425 | Director | 2 | — |
| Dash Mihok Eff 22425 | Director | 2 | — |
| Amanda Talty | President & CEO | 40 | $295,326 |
| Sonja Mason-Vidal | VP of Finance & Adm. | 40 | $157,479 |
| James Nichols | VP of Public Policy | 40 | $92,129 |
| Scott Sterling | VP of Resource Development & Affiliate Services | 40 | $69,689 |
| Diana Felner - Thru 12024 | VP of Public Policy | 40 | $10,943 |
| Karon Harrison - Thru 101624 | VP of Resource Development & Affiliates Services | 40 | $134,312 |
| Katrina Hermetet | VP, Medical & Scientific Affairs | 40 | $104,186 |
| James Saracini | VP, Marketing & Communications | 40 | $145,815 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Tourette Association of America Inc?
Tourette Association of America Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Bayside, NY. It holds $9.5M in total assets as of 2025.
How large is Tourette Association of America Inc?
As of 2025, Tourette Association of America Inc holds $9.5M in total assets with $5.2M in annual revenue. It awarded 4 grants totaling $600K in 2025.
Where does Tourette Association of America Inc operate?
Tourette Association of America Inc has awarded grants in California, Connecticut, Florida, Illinois, Massachusetts, Maryland, Minnesota, North Carolina, New Jersey, New York, Ohio, Tennessee, Texas, Wisconsin, West Virginia.
What size grants does Tourette Association of America Inc award?
In 2025, Tourette Association of America Inc awarded 4 grants totaling $600K — an average of about $150K per grant, based on its IRS Form 990 filings.
What is Tourette Association of America Inc's EIN?
Tourette Association of America Inc's EIN (Employer Identification Number) is 23-7191992. IRS Form 990 filing data is available on this page for 2020–2025.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.