Tourette Association of America Inc
To identify the cause of, find the cure for, and control the effects of tourette syndrome. The tourette association is dedicated to making life better for all people affected by tourette and tic disorders.
Tourette Association of America Inc at a glance
In short: Tourette Association of America Inc gave $600K across 4 grants in 2025 (avg $150K), top state California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $600,000
- -33.1% vs 2024
- Grants made (2025)
- 4
- -33.3% vs 2024
- Average grant
- $150,000
- +0.3% vs 2024
- Median grant
- $150,000
- Total assets
- $9,502,751
- -8.8% vs 2024
- Primary geography
- California (25% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Tourette Association of America Inc
Open Grants
2 open opportunities from Tourette Association of America Inc
Who Tourette Association of America Inc funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
The largest 2025 recipient was Regents of the University of CA (Ucsd) ($150K). Together the top 4 received $600K.
Grant Size Distribution
22 grants across all recorded years
The most common grant size was in the $100–250K range: 19 grants of 22 (86%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 4 itemized grants.
States
Cities
How Tourette Association of America Inc gives
- Giving grew 84% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $325K (2022) to $897K (2024). In 2025 it made 4 grants totaling $600K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Regents of the University of CA (Ucsd) La Jolla, CA | Research | $150,000 |
| Yale University New Haven, CT | Research | $150,000 |
| University of Minnesota Minneapolis, MN | Research | $150,000 |
| Rutgers Piscataway, NJ | Research | $150,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $9,502,751 | $5,236,564 | $5,799,579 | $600,000 | 4 | $436,522 |
| 2024 | $10,414,671 | $5,048,195 | $6,604,537 | $897,197 | 6 | $486,666 |
| 2023 | $11,157,402 | $4,883,886 | $5,207,884 | $399,600 | 3 | $141,640 |
| 2022 | $11,736,131 | $4,454,020 | $4,111,893 | $325,389 | 5 | $397,601 |
| 2021 | $11,623,666 | $3,703,685 | $4,333,003 | $578,881 | 4 | $128,371 |
| 2020 | $11,065,052 | $3,903,148 | $5,254,738 | $702,404 | 5 | $220,772 |
About Tourette Association of America Inc
Based on IRS filings
Tourette Association of America Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Bayside, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $9.5M in total assets. In 2025, it awarded 4 grants totaling $600K. Net investment income was $437K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Tourette Association of America Inc is led by Amanda Talty, President & CEO on every filing since 2020; 6 of 25 officers listed in 2025 are compensated.
Officers on the 2025 filing
Amanda Talty
President & CEO
On filings since 2020
40 hrs/week
$233K (2020) → $295K (2025)
Stephen Barron
Chairman of the Board
First Vice Chair → Chair, 2022
Chair → Chairman of the Board, 2025
On filings since 2020
2 hrs/week
No compensation reported
Bruce D. Ochsman
Director
On filings since 2020
2 hrs/week
No compensation reported
Cindy Kurtz
Director
Second Vice Chair → Director, 2022
On filings since 2020
2 hrs/week
No compensation reported
John Walkup MD
Director
On filings since 2020
2 hrs/week
No compensation reported
Monte Redman
Director
On filings since 2020
2 hrs/week
No compensation reported
Paul S. Devore
Director
Director → Finance Chair, 2023
Finance Chair → Director, 2024
On filings since 2020
2 hrs/week
No compensation reported
Randi Zemsky
Director
Chair → Director, 2022
On filings since 2020
4 hrs/week
No compensation reported
Rovena Schirling
Director
On filings since 2020
2 hrs/week
No compensation reported
Susan Courey PhD
Director
On filings since 2020
2 hrs/week
No compensation reported
Daniel McGarvey
Director
On filings since 2021
2 hrs/week
No compensation reported
Cheri G. David CPA
Director
On filings since 2024
2 hrs/week
No compensation reported
Karl Valentini
Director
On filings since 2024
2 hrs/week
No compensation reported
Anthony Acampora Eff
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Dash Mihok Eff
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Marc Benson
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Sonja Mason-Vidal
Vice President of Finance & Administrator
Vice President of Finance & Administration → Vice President of Finance & Administrator, 2022
On filings since 2020
40 hrs/week
$115K (2020) → $157K (2025)
James Nichols
Vice President of Public Policy
New on the 2025 filing
40 hrs/week
$92K (2025)
James Saracini
Vice President, Marketing & Communications
New on the 2025 filing
40 hrs/week
$146K (2025)
Katrina Hermetet
Vice President, Medical & Scientific Affairs
New on the 2025 filing
40 hrs/week
$104K (2025)
Scott Sterling
Vice President of Resource Development & Affiliate Services
New on the 2025 filing
40 hrs/week
$70K (2025)
Alice Kane
Fourth Vice Chair
Director → Fourth Vice Chair, 2022
On filings since 2020
2 hrs/week
No compensation reported
David Schoenhaar
First Vice Chair
Director → First Vice Chair, 2022
On filings since 2020
2 hrs/week
No compensation reported
Jasmine Tarkoff
Second Vice Chair
Director → Second Vice Chair, 2022
On filings since 2020
2 hrs/week
No compensation reported
Jeffrey Kramer
Third Vice Chair
Director → Third Vice Chair, 2022
On filings since 2020
2 hrs/week
No compensation reported
Former officers (17)
- Former: Diana Felner (2020–2025) — Vice President of Public Policy · Filing note: Thru 12024
- Former: Karon Harrison (2024–2025) — Vice President of Resource Development & Affiliates Services · Filing note: Thru 101624
- Former: Julie Moelis (2020–2024) — Director
- Former: Joshua Nadeau (2024) — Vice President of Med. & Sci. Research
- Former: Azad Anand MD (2020–2023) — Director
- Former: Cheri G. David Cpa Cva (2020–2023) — Director
- Former: Fred Cook (2020–2023) — Director
- Former: Jerry Gidner (2021–2023) — Director
- Former: Sidney Koch (2021–2023) — Director
- Former: Karon Williams (2022–2023) — Vice President Resource Development & Marketi
- Former: Peter Hollenbeck PhD (2020–2022) — Director
- Former: Reid Ashinoff (2020–2022) — Director
- Former: Tracey Alexander (2020–2022) — Vice President Resource Development
- Former: Claude Schofield (2021–2022) — Vice President Research & Med
- Former: Diana Shineman (2020–2021) — V.p., Research & Med
- Former: David Koch (2020) — Director
- Former: Stephen McCall M. Ed (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $295K, to Amanda Talty (President & CEO). 8 officers or directors reported compensation on that filing.
Frequently asked questions about Tourette Association of America Inc
How much does Tourette Association of America Inc give each year?
Tourette Association of America Inc gave $600K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $897K across 6 grants.
What is Tourette Association of America Inc's typical grant size?
Tourette Association of America Inc's median grant in 2025 was $150,000, and its average grant was $150,000, across 4 grants on its 2025 IRS Form 990.
Where does Tourette Association of America Inc give grants?
Tourette Association of America Inc's top state is California, with 25% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Connecticut (25%) and Minnesota (25%).
Does Tourette Association of America Inc give general operating support?
Not in 2025: none of the 4 grants with a stated purpose on Tourette Association of America Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (4 grants).
How large is Tourette Association of America Inc?
Tourette Association of America Inc reported $9.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $5.2M.
What is Tourette Association of America Inc?
Tourette Association of America Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Bayside, NY. It holds $9.5M in total assets as of 2025.
What is Tourette Association of America Inc's EIN?
Tourette Association of America Inc's EIN (Employer Identification Number) is 23-7191992. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 26, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 29, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS December 14, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS December 13, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 14, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS December 15, 2025)
- IRS filings on file for fiscal years 2020–2025
Live grants for the work Tourette Association of America Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Tourette Association of America Inc's focus areas in our free grants database
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