THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1-RELATED DISEASES THROUGH SUPPORTING RESEARCH, PROVIDING MEDICAL PROFESSIONAL EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.7M
+15.1% YoY
Annual Giving
$32K
+69.7% YoY
Grant Count
2
+100.0% YoY
Avg Grant Size
$16K
-15.1% YoY
About The Ryr-1 Foundation
Based on IRS filings
The Ryr-1 Foundation is a nonprofit organization focused on Medical Research, based in PITTSBURGH, PA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $2.7M in total assets. In 2024, it awarded 2 grants totaling $32K. Net investment income was $103K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,731,932 | $2,372,994 | $2,065,543 |
| Revenue | $681,990 | $600,451 | $411,112 |
| Expenses | $384,333 | $354,036 | $536,228 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $103,171 | $71,970 | $24,062 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
16 grants across all recorded years
Open Grants
3 open opportunities from The Ryr-1 Foundation
2026-2028 Individual Investigator Research Grant Awards
THE RYR-1 FOUNDATION
Amount
Varies
Deadline
May 16, 2026
Readthrough Therapies for RYR-1-Related Disease Due to Nonsense Variants Research Grant
THE RYR-1 FOUNDATION
Amount
Varies
Deadline
May 1, 2026
RYR-1 Foundation: Individual Investigator Research Grant
THE RYR-1 FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MICHAEL GOLDBERG | BOARD PRESIDENT | 5 | — |
| EMILY PEDERSEN | DIRECTOR | 1 | — |
| DONALD ZACK | DIRECTOR | 1 | — |
| SUSAN HAMILTON | DIRECTOR | 1 | — |
| BRYAN HEFT | DIRECTOR | 1 | — |
| ROBERT HANICH | DIRECTOR | 3 | — |
| JUSTIN C MCARTHUR | DIRECTOR | 1 | — |
| COURTNEY WOOMER | DIRECTOR | 2 | — |
| JENNIFER RYAN | BOARD VICE PRESIDENT AS OF MAY 2024 | 4 | — |
| RANDOLPH PEPPER | TREASURER | 5 | — |
| ANDREW HUSETH | SECRETARY | 2 | — |
| MICHAEL LEGUM | ASSISTANT TREASURER | 3 | — |
| MORTON GOLDBERG | PRIOR BOARD VICE PRES, RETIRED MAY 2024 | 1 | — |
| LINDSAY GOLDBERG | EXECUTIVE DIRECTOR AND PATIENT LIASION | 20 | $42,332 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with The Ryr-1 Foundation on Grantable?
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