The RYR-1 Foundation
The mission of the RYR-1 Foundation is to support research leading to an effective treatment or a cure for ryr-1-related diseases through supporting research, providing medical professional education, and patient & family support and advocacy.
The RYR-1 Foundation at a glance
In short: The RYR-1 Foundation gave $32K across 2 grants in 2024 (avg $16K), mostly in Illinois. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $32,012
- +69.7% vs 2023
- Grants made (2024)
- 2
- +100.0% vs 2023
- Average grant
- $16,006
- -15.1% vs 2023
- Median grant
- $16,006
- Total assets
- $2,731,932
- +15.1% vs 2023
- Primary geography
- Illinois (78% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to The RYR-1 Foundation
Open Grants
1 open opportunity from The RYR-1 Foundation
Who The RYR-1 Foundation funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Muscular Dystrophy Association ($25K). Together the top 2 received $32K.
Grant Size Distribution
16 grants across all recorded years
The most common grant size was under $50K: 16 grants of 16 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
How The RYR-1 Foundation gives
- Giving fell 53% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $19K (2023) to $105K (2020). In 2024 it made 2 grants totaling $32K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Muscular Dystrophy Association Chicago, IL | Research | $25,000 |
| Ingenious Targeting Laboratory Ronkonkoma, NY | Research | $7,012 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,731,932 | $681,990 | $384,333 | $32,012 | 2 | $103,171 |
| 2023 | $2,372,994 | $600,451 | $354,036 | $18,863 | 1 | $71,970 |
| 2022 | $2,065,543 | $411,112 | $536,228 | $57,397 | 4 | $24,062 |
| 2021 | $2,236,859 | $519,685 | $257,682 | $68,197 | 4 | $2,320 |
| 2020 | $1,951,506 | $393,570 | $330,396 | $104,913 | 5 | $12,659 |
| 2019 | $1,907,947 | $744,214 | $349,004 | $75,040 | 4 | $24,618 |
About The RYR-1 Foundation
Based on IRS filings
The RYR-1 Foundation is a public charity focused on Medical Research, based in Pittsburgh, PA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $2.7M in total assets. In 2024, it awarded 2 grants totaling $32K. Net investment income was $103K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The RYR-1 Foundation is led by Lindsay Goldberg, Executive Director & Patient Liasion since 2024 (on filings since 2019); 1 of 14 officers listed in 2024 is compensated.
Officers on the 2024 filing
Lindsay Goldberg
Executive Director & Patient Liasion
Secretary & Treasurer → Business Manager, 2023
Business Manager → Executive Director & Patient Liasion, 2024
On filings since 2019
20 hrs/week
$9K (2019) → $42K (2024)
Michael Goldberg
Board President
President → Board President, 2023
On filings since 2019
5 hrs/week
No compensation reported
Donald Zack
Director
Trustee → Director, 2020
On filings since 2019
1 hr/week
No compensation reported
Emily Pedersen
Director
Trustee → Director, 2020
On filings since 2019
1 hr/week
No compensation reported
Justin C. McArthur
Director
Trustee → Director, 2020
On filings since 2019
1 hr/week
No compensation reported
Bryan Heft
Director
On filings since 2023
1 hr/week
No compensation reported
Robert Hanich
Director
On filings since 2023
3 hrs/week
No compensation reported
Courtney Woomer
Director
New on the 2024 filing
2 hrs/week
No compensation reported
Susan Hamilton
Director
New on the 2024 filing
1 hr/week
No compensation reported
Jennifer Ryan
Board Vice President
Trustee → Director, 2020
Director → Board Vice President, 2024
On filings since 2019
4 hrs/week
No compensation reported
Michael Legum
Assistant Treasurer
On filings since 2019
3 hrs/week
No compensation reported
Morton Goldberg
Prior Board Vice President & Retired May
Vice President → Board Vice President, 2023
Board Vice President → Prior Board Vice President & Retired May, 2024
On filings since 2019
1 hr/week
No compensation reported
Randolph Pepper
Treasurer
Trustee → Director, 2020
Director → Treasurer, 2022
On filings since 2019
5 hrs/week
No compensation reported
Andrew Huseth
Secretary
On filings since 2022
2 hrs/week
No compensation reported
Former officers (6)
- Former: Myrna Goldberg (2019–2023) — Director & Retired
- Former: John Gallo (2023) — Executive Director
- Former: Allison Braswell (2019–2021) — Director · Filing note: Term ended sept 21
- Former: Andrew Huseth Start Sept (2021) — Director
- Former: Michael Orseck (2019–2020) — Director
- Former: Min Li (2019) — Trustee
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $42K, to Lindsay Goldberg (Executive Director and Patient Liasion).
Frequently asked questions about The RYR-1 Foundation
How much does The RYR-1 Foundation give each year?
The RYR-1 Foundation gave $32K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $19K across 1 grant.
How large is The RYR-1 Foundation?
The RYR-1 Foundation reported $2.7M in total assets on its 2024 IRS Form 990. Its revenue that year was $682K.
What is The RYR-1 Foundation?
The RYR-1 Foundation is a public charity focused on Medical Research, based in Pittsburgh, PA. It holds $2.7M in total assets as of 2024.
Where does The RYR-1 Foundation operate?
The RYR-1 Foundation has awarded grants in California, Connecticut, Illinois, Maryland, Minnesota, New York, Rhode Island, Texas.
What is The RYR-1 Foundation's EIN?
The RYR-1 Foundation's EIN (Employer Identification Number) is 47-1094057. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2019–2024
Live grants for the work The RYR-1 Foundation funds
Medical Research Open opportunities, soonest deadline first.
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Browse active grant opportunities in The RYR-1 Foundation's focus areas in our free grants database
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