The Lilly and Blair Foundation
The Lilly and Blair Foundation funds and coordinates research to accelerate treatment development for children affected by de novo spastic paraplegia SPG4, while fostering a collaborative and informed community.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$275K
+27.9% YoY
Annual Giving
$199K
Grant Count
4
Avg Grant Size
$50K
About The Lilly and Blair Foundation
Based on IRS filings
The Lilly and Blair Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in OAKTON, VA. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $275K in total assets. In 2024, it awarded 4 grants totaling $199K.
Focus Areas
Ready to take the next step with The Lilly and Blair Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 |
|---|---|---|
| Total Assets | $274,932 | $214,894 |
| Revenue | $276,912 | $218,242 |
| Expenses | $216,875 | $3,348 |
| Qualifying Distributions | — | — |
| Net Investment Income | — | — |
| Distributable Amount | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
4 grants across all recorded years
Open Grants
1 open opportunity from The Lilly and Blair Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include UMASS Chan Medical School ($50,000), University Of Wisconsin ($50,000), Boston Childrens Hospital ($50,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Drexel University Philadelphia, PA | SPG4 Mouse Model | $49,125 |
| UMASS Chan Medical School Worcester, MA | AAV9 Gene Therapy Project | $50,000 |
| University Of Wisconsin Madison, WI | AAv9 Gene Therapy Project | $50,000 |
| Boston Childrens Hospital Boston, MA | AAV9 Gene Therapy Project | $50,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Jay Coonan | Director | 0.25 | — |
| Scott Chilson | Director | 0.25 | — |
| Katie Gregg | President | 20 | — |
| Christopher Lorek | Vice President | 5 | — |
| Michael Gregg | Treasurer | 5 | — |
| Stephanie Lorek | Secretary | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Lilly and Blair Foundation?
The Lilly and Blair Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in OAKTON, VA. It holds $275K in total assets as of 2024.
How large is The Lilly and Blair Foundation?
As of 2024, The Lilly and Blair Foundation holds $275K in total assets with $277K in annual revenue. It awarded 4 grants totaling $199K in 2024.
Where does The Lilly and Blair Foundation operate?
The Lilly and Blair Foundation has awarded grants in Massachusetts, Pennsylvania, Wisconsin.
What size grants does The Lilly and Blair Foundation award?
In 2024, The Lilly and Blair Foundation awarded 4 grants totaling $199K — an average of about $50K per grant, based on its IRS Form 990 filings.
What is The Lilly and Blair Foundation's EIN?
The Lilly and Blair Foundation's EIN (Employer Identification Number) is 93-3381308. IRS Form 990 filing data is available on this page for 2023–2024.
Explore Open Grants
Browse active grant opportunities in The Lilly and Blair Foundation's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
President and Fellows of Harvard College
CAMBRIDGE, MA
Assets
$74.4B
Grants
344
Total Given
$181.7M
Fred Hutchinson Cancer Center
SEATTLE, WA
Assets
$3.5B
Grants
143
Total Given
$97.2M
Johns Hopkins University
BALTIMORE, MD
Assets
$23.0B
Grants
757
Total Given
$467.3M
Josiah Macy Jr Foundation
NEW YORK, NY
Assets
$147.2M
Grants
49
Total Given
$2.9M
American Heart Association Inc
DALLAS, TX
Assets
$1.9B
Grants
794
Total Given
$227.6M
Cecilia Hand Nelson and Morgan Hand Ii
RED BANK, NJ
Assets
$1.2M
Grants
40
Total Given
$74K
The Pew Charitable Trusts
WASHINGTON, DC
Assets
$1.4B
Grants
391
Total Given
$138.9M
Fred Hutchinson Cancer Research Center
SEATTLE, WA
Assets
$1.7B
Grants
299
Total Given
$122.1M
The Masonic Foundation of the District of Columbia
WASHINGTON, DC
Assets
$5.8M
Grants
21
Total Given
$312K
Enterprise Holdings Foundation
SAINT LOUIS, MO
Assets
—
Grants
9,499
Total Given
$73.1M
American Cancer Society Inc
ATLANTA, GA
Assets
$1.7B
Grants
688
Total Given
$197.1M
The George Washington University
ASHBURN, VA
Assets
$5.1B
Grants
194
Total Given
$50.5M
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with The Lilly and Blair Foundation on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities