The Lilly and Blair Foundation
The Lilly and Blair Foundation funds and coordinates research to accelerate treatment development for children affected by de novo spastic paraplegia SPG4, while fostering a collaborative and informed community.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$275K
+27.9% YoY
Annual Giving
$199K
Grant Count
4
Avg Grant Size
$50K
About The Lilly and Blair Foundation
Based on IRS filings
The Lilly and Blair Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in OAKTON, VA. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $275K in total assets. In 2024, it awarded 4 grants totaling $199K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 |
|---|---|---|
| Total Assets | $274,932 | $214,894 |
| Revenue | $276,912 | $218,242 |
| Expenses | $216,875 | $3,348 |
| Qualifying Distributions | — | — |
| Net Investment Income | — | — |
| Distributable Amount | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
4 grants across all recorded years
Open Grants
2 open opportunities from The Lilly and Blair Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Jay Coonan | Director | 0.25 | — |
| Scott Chilson | Director | 0.25 | — |
| Katie Gregg | President | 20 | — |
| Christopher Lorek | Vice President | 5 | — |
| Michael Gregg | Treasurer | 5 | — |
| Stephanie Lorek | Secretary | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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