The Lilly and Blair Foundation
The Lilly and Blair Foundation funds and coordinates research to accelerate treatment development for children affected by de novo spastic paraplegia SPG4, while fostering a collaborative and informed community.
The Lilly and Blair Foundation at a glance
In short: The Lilly and Blair Foundation gave $199K across 4 grants in 2024 (avg $50K), mostly in Massachusetts. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $199,125
- Grants made (2024)
- 4
- Average grant
- $49,781
- Median grant
- $50,000
- Total assets
- $274,932
- +27.9% vs 2023
- Primary geography
- Massachusetts (50% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to The Lilly and Blair Foundation
Open Grants
1 open opportunity from The Lilly and Blair Foundation
Who The Lilly and Blair Foundation funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
The largest 2024 recipient was UMASS Chan Medical School ($50K). Together the top 4 received $199K.
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 4 (75%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 4 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2024 it made 4 grants totaling $199K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UMASS Chan Medical School Worcester, MA | AAV9 Gene Therapy Project | $50,000 |
| University Of Wisconsin Madison, WI | AAv9 Gene Therapy Project | $50,000 |
| Boston Childrens Hospital Boston, MA | AAV9 Gene Therapy Project | $50,000 |
| Drexel University Philadelphia, PA | SPG4 Mouse Model | $49,125 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2024 | $274,932 | $276,912 | $216,875 | $199,125 | 4 |
| 2023 | $214,894 | $218,242 | $3,348 | — | — |
About The Lilly and Blair Foundation
Based on IRS filings
The Lilly and Blair Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Oakton, VA. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $275K in total assets. In 2024, it awarded 4 grants totaling $199K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The Lilly and Blair Foundation is led by Katie Gregg, President since 2024 (on filings since 2023); none of the 6 officers listed in 2024 report compensation.
Officers on the 2024 filing
Katie Gregg
President
President & Director → President, 2024
On filings since 2023
20 hrs/week
No compensation reported
Jay Coonan
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Scott Chilson
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Christopher Lorek
Vice President
Vice President & Director → Vice President, 2024
On filings since 2023
5 hrs/week
No compensation reported
Michael Gregg
Treasurer
Secretary & Director → Treasurer, 2024
On filings since 2023
5 hrs/week
No compensation reported
Stephanie Lorek
Secretary
Treasurer & Director → Secretary, 2024
On filings since 2023
5 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2023–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about The Lilly and Blair Foundation
How much does The Lilly and Blair Foundation give each year?
The Lilly and Blair Foundation gave $199K across 4 grants in 2024, according to its 2024 IRS Form 990.
What is The Lilly and Blair Foundation's typical grant size?
The Lilly and Blair Foundation's median grant in 2024 was $50,000, and its average grant was $49,781, across 4 grants on its 2024 IRS Form 990.
Where does The Lilly and Blair Foundation give grants?
The Lilly and Blair Foundation gives mostly in Massachusetts: 50% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest states were Wisconsin (25%) and Pennsylvania (25%).
Does The Lilly and Blair Foundation give general operating support?
Not in 2024: none of the 4 grants with a stated purpose on The Lilly and Blair Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "AAV9 Gene Therapy Project" (3 grants).
How large is The Lilly and Blair Foundation?
The Lilly and Blair Foundation reported $275K in total assets on its 2024 IRS Form 990. Its revenue that year was $277K.
What is The Lilly and Blair Foundation?
The Lilly and Blair Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Oakton, VA. It holds $275K in total assets as of 2024.
What is The Lilly and Blair Foundation's EIN?
The Lilly and Blair Foundation's EIN (Employer Identification Number) is 93-3381308. IRS Form 990 filing data is available on this page for 2023–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2023–2024
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