THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.1M
+7.4% YoY
Annual Giving
$113K
-10.0% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$56K
+35.0% YoY
About The Amyloidosis Foundation
Based on IRS filings
The Amyloidosis Foundation is a nonprofit organization focused on Medical Research, based in CLARKSTON, MI. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.1M in total assets. In 2024, it awarded 2 grants totaling $113K. Net investment income was $89K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,128,603 | $1,050,511 | $1,056,187 |
| Revenue | $688,539 | $535,162 | $710,435 |
| Expenses | $602,526 | $568,920 | $598,170 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $88,510 | $47,362 | $8,832 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
19 grants across all recorded years
Open Grants
2 open opportunities from The Amyloidosis Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Brigham & Womens Hospital ($75,000), Columbia University Medical Center ($37,500).
| Recipient | Purpose | Amount |
|---|---|---|
| COLUMBIA UNIVERSITY MEDICAL CENTER NEW YORK, NY | RESEARCH | $37,500 |
| BRIGHAM & WOMENS HOSPITAL SMERVILLE, MA | RESEARCH | $75,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MARY E ODONNELL | PRESIDENT/CEO | 30 | $63,050 |
| DANTE BURCHI | TREASURER | 5 | — |
| MARK SUTHERLAND | CHIEF FINANCIAL OFFICER | 5 | — |
| ERSKINE WHITE EDD | DIRECTOR | 5 | — |
| ADRIENNE MOLTENI | DIRECTOR | 5 | — |
| DAN LENIHAN | DIRECTOR | 5 | — |
| LORI LAWTER | DIRECTOR | 5 | — |
| STACY GOODMAN | DIRECTOR | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Amyloidosis Foundation?
The Amyloidosis Foundation is a nonprofit organization focused on Medical Research, based in CLARKSTON, MI. It holds $1.1M in total assets as of 2024.
How large is The Amyloidosis Foundation?
As of 2024, The Amyloidosis Foundation holds $1.1M in total assets with $689K in annual revenue. It awarded 2 grants totaling $113K in 2024.
Where does The Amyloidosis Foundation operate?
The Amyloidosis Foundation has awarded grants in Connecticut, Massachusetts, Maryland, Michigan, Minnesota, Missouri, New York, Pennsylvania.
What size grants does The Amyloidosis Foundation award?
In 2024, The Amyloidosis Foundation awarded 2 grants totaling $113K — an average of about $56K per grant, based on its IRS Form 990 filings.
What is The Amyloidosis Foundation's EIN?
The Amyloidosis Foundation's EIN (Employer Identification Number) is 20-0291856. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in The Amyloidosis Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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