The Amyloidosis Foundation logo

The Amyloidosis Foundation

CLARKSTON, MI EIN: 20-0291856 Website

THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$1.1M

+7.4% YoY

Annual Giving

$113K

-10.0% YoY

Grant Count

2

-33.3% YoY

Avg Grant Size

$56K

+35.0% YoY

About The Amyloidosis Foundation

Based on IRS filings

The Amyloidosis Foundation is a nonprofit organization focused on Medical Research, based in CLARKSTON, MI. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.1M in total assets. In 2024, it awarded 2 grants totaling $113K. Net investment income was $89K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

8states

Cities

BaltimoreBostonDetroitNew HavenNew YorkPhiladelphiaRochesterSmervilleSt Louis

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$214K$429K$643K$857K20202021202220232024
Metric202420232022
Total Assets$1,128,603$1,050,511$1,056,187
Revenue$688,539$535,162$710,435
Expenses$602,526$568,920$598,170
Qualifying Distributions
Net Investment Income$88,510$47,362$8,832
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$99K$198K$296K$395K4 grants20206 grants20214 grants20223 grants20232 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

BRIGHAM & WOMENS HOSPITAL$75KCOLUMBIA UNIVERSITY MEDI…$38K

Grant Size Distribution

19 grants across all recorded years

12<$50K4$50–100K3$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

2 open opportunities from The Amyloidosis Foundation

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

MARY E ODONNELLPRESIDENT/CEO$63K

From 2024 filing

NameTitleHoursCompensation
MARY E ODONNELLPRESIDENT/CEO30$63,050
DANTE BURCHITREASURER5
MARK SUTHERLANDCHIEF FINANCIAL OFFICER5
ERSKINE WHITE EDDDIRECTOR5
ADRIENNE MOLTENIDIRECTOR5
DAN LENIHANDIRECTOR5
LORI LAWTERDIRECTOR5
STACY GOODMANDIRECTOR5

Subject Areas

Focus areas based on grantmaking activity

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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