The Amyloidosis Foundation
The organizations mission is to increase education and awareness of amyloidosis, to assist patients in finding qualified medical care and to support research.
Key facts about The Amyloidosis Foundation
In short: The Amyloidosis Foundation gave $113K across 2 grants in 2024 (avg $56K), mostly in Massachusetts. Source: 2024 IRS Form 990.
- EIN
- 20-0291856
- Latest 990 filing
- Form 990, 2024
- Annual giving (2024)
- $112,500
- Grants made (2024)
- 2
- Average grant
- $56,250
- Median grant
- $56,250
- Total assets
- $1,128,603
- Primary geography
- Massachusetts (67% of itemized 2024 grant dollars)
Data from IRS Form 990, 2024; updated September 2026.
Financial Overview
From 2024 IRS Form 990 · View filing
Total Assets
$1.1M
+7.4% YoY
Annual Giving
$113K
-10.0% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$56K
+35.0% YoY
How The Amyloidosis Foundation gives
- Giving fell 72% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
About The Amyloidosis Foundation
Based on IRS filings
The Amyloidosis Foundation is a public charity focused on Medical Research, based in Clarkston, MI. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.1M in total assets. In 2024, it awarded 2 grants totaling $113K. Net investment income was $89K.
Focus Areas
Open Grants
2 open opportunities from The Amyloidosis Foundation
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $113K (2024) to $395K (2021). In 2024 it made 2 grants totaling $113K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Brigham & Womens Hospital ($75K). Together the top 2 received $113K.
Grant Size Distribution
19 grants across all recorded years
The most common grant size was under $50K: 12 grants of 19 (63%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Brigham & Womens Hospital Smerville, MA | Research | $75,000 |
| Columbia University Medical Center New York, NY | Research | $37,500 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,128,603 | $1,050,511 | $1,056,187 |
| Revenue | $688,539 | $535,162 | $710,435 |
| Expenses | $602,526 | $568,920 | $598,170 |
| Net Investment Income | $88,510 | $47,362 | $8,832 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS June 3, 2022)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 12, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 26, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 28, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 5, 2025)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
The Amyloidosis Foundation is led by Mary E. Odonnell, President & CEO on every filing since 2020; 1 of 8 officers listed in 2024 is compensated.
Officers on the 2024 filing
Mary E. Odonnell
President & CEO
On filings since 2020
30 hrs/week
$56K (2020) → $63K (2024)
Adrienne Molteni
Director
On filings since 2020
5 hrs/week
No compensation reported
Dan Lenihan
Director
On filings since 2020
5 hrs/week
No compensation reported
Lori Lawter
Director
On filings since 2020
5 hrs/week
No compensation reported
Stacy Goodman
Director
On filings since 2022
5 hrs/week
No compensation reported
Erskine White EdD
Director
New on the 2024 filing
5 hrs/week
No compensation reported
Dante Burchi
Treasurer
On filings since 2020
5 hrs/week
No compensation reported
Mark Sutherland
Chief Financial Officer
On filings since 2020
5 hrs/week
No compensation reported
Former officers (1)
- Former: Charlotte Haffner (2020–2023) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $63K, to Mary E Odonnell (President/CEO).
Frequently asked questions about The Amyloidosis Foundation
How much does The Amyloidosis Foundation give each year?
The Amyloidosis Foundation gave $113K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $125K across 3 grants.
How large is The Amyloidosis Foundation?
The Amyloidosis Foundation reported $1.1M in total assets on its 2024 IRS Form 990. Its revenue that year was $689K.
What is The Amyloidosis Foundation?
The Amyloidosis Foundation is a public charity focused on Medical Research, based in Clarkston, MI. It holds $1.1M in total assets as of 2024.
Where does The Amyloidosis Foundation operate?
The Amyloidosis Foundation has awarded grants in Connecticut, Massachusetts, Maryland, Michigan, Minnesota, Missouri, New York, Pennsylvania.
What is The Amyloidosis Foundation's EIN?
The Amyloidosis Foundation's EIN (Employer Identification Number) is 20-0291856. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching The Amyloidosis Foundation by hand.
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