The Adenoid Cystic Carcinoma Research Foundation
The adenoid cyctic carcinoma research foundation (ACCRF) supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.
Key facts about The Adenoid Cystic Carcinoma Research Foundation
In short: The Adenoid Cystic Carcinoma Research Foundation gave $260K across 5 grants in 2025 (avg $52K), mostly in Massachusetts. Source: 2025 IRS Form 990.
- EIN
- 20-6745475
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $259,920
- Grants made (2025)
- 5
- Average grant
- $51,984
- Median grant
- $24,920
- Total assets
- $2,250,095
- Primary geography
- Massachusetts (71% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$2.3M
-0.1% YoY
Annual Giving
$260K
-37.7% YoY
Grant Count
5
-37.5% YoY
Avg Grant Size
$52K
-0.3% YoY
How The Adenoid Cystic Carcinoma Research Foundation gives
- Giving fell 44% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About The Adenoid Cystic Carcinoma Research Foundation
Based on IRS filings
The Adenoid Cystic Carcinoma Research Foundation is a public charity focused on Medical Research, based in Needham, MA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $2.3M in total assets. In 2025, it awarded 5 grants totaling $260K. Net investment income was $81K.
Focus Areas
Open Grants
2 open opportunities from The Adenoid Cystic Carcinoma Research Foundation
Grant Opportunities (General Research Grants)
The Adenoid Cystic Carcinoma Research Foundation
Amount
$100,000 - $300,000 (typical; historic maximum $600,000)
Deadline
Rolling / Open
Kara Gelb Memorial Grant
The Adenoid Cystic Carcinoma Research Foundation
Amount
Varies
Deadline
Rolling / Open
Ready to take the next step with The Adenoid Cystic Carcinoma Research Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 5 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $176K (2023) to $637K (2019). In 2025 it made 5 grants totaling $260K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
The largest 2025 recipient was Massachusetts General Hospita ($165K). Together the top 4 received $260K.
Grant Size Distribution
29 grants across all recorded years
The most common grant size was under $50K: 18 grants of 29 (62%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Massachusetts General Hospita Boston, MA | Immune Microenvironment of ACC | $165,000 |
| MD Anderson Cancer Center Houston, TX | Multicenter Validation | $35,000 |
| Memorial Sloan Kettering New York, NY | Multicenter Validation | $24,920 |
| Boston University Boston, MA | Protease-Activated Antibodies | $20,000 |
| MD Anderson Cancer Center Houston, TX | Multicenter Validation | $15,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,250,095 | $2,251,893 | $2,690,770 |
| Revenue | $1,159,582 | $1,146,195 | $1,893,545 |
| Expenses | $1,221,810 | $1,458,198 | $1,872,720 |
| Net Investment Income | $80,772 | $96,890 | $90,836 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS May 14, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 16, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 13, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS July 2, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS July 29, 2026)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
The Adenoid Cystic Carcinoma Research Foundation is led by Jeffrey A. Kaufman, Executive Director since 2025 (on filings since 2019); 2 of 10 officers listed in 2025 are compensated.
Officers on the 2025 filing
Jeffrey A. Kaufman
Executive Director
Executive Director & Board Chair → Executive Director & Board C, 2023
Executive Director & Board C → Executive Director, 2025
On filings since 2019
50 hrs/week
$150K (2019) → $150K (2025)
Nicole Spardy Burr
Director of Resear
Scientific Program Officer → Director of Research, 2021
Director of Research → Director of Resear, 2025
On filings since 2019
$111K (2019) → $149K (2025)
Marnie A. Kaufman
Director
CFO → Director & CFO, 2022
Director & CFO → Director, 2025
On filings since 2019
35 hrs/week
No compensation reported
Bozho Todorich
Director
On filings since 2021
5 hrs/week
No compensation reported
David Morse
Director
On filings since 2022
5 hrs/week
No compensation reported
Elizabeth Wehlage
Director
On filings since 2022
5 hrs/week
No compensation reported
Emma Kinloch
Director
On filings since 2022
5 hrs/week
No compensation reported
Shalil Giannone
Director
New on the 2025 filing
5 hrs/week
No compensation reported
Ralph Mollis
Treasurer
On filings since 2019
5 hrs/week
No compensation reported
Thomas Dilenge
Board Vice Chai
Board Vice Chair → Board Vice Chai, 2025
On filings since 2019
5 hrs/week
No compensation reported
Former officers (2)
- Former: Lisa Bhakri (2019–2023) — Director
- Former: Douglas Meyer (2019–2021) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $150K, to Jeffrey Kaufman (Executive Dir.). 2 officers or directors reported compensation on that filing.
Frequently asked questions about The Adenoid Cystic Carcinoma Research Foundation
How much does The Adenoid Cystic Carcinoma Research Foundation give each year?
The Adenoid Cystic Carcinoma Research Foundation gave $260K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $417K across 8 grants.
What is The Adenoid Cystic Carcinoma Research Foundation's typical grant size?
The Adenoid Cystic Carcinoma Research Foundation's median grant in 2025 was $24,920, and its average grant was $51,984, across 5 grants on its 2025 IRS Form 990.
Where does The Adenoid Cystic Carcinoma Research Foundation give grants?
The Adenoid Cystic Carcinoma Research Foundation gives mostly in Massachusetts: 71% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Texas (19%) and New York (10%). The most frequent recipient cities were Boston, MA (2 grants) and Houston, TX (2 grants).
Does The Adenoid Cystic Carcinoma Research Foundation give general operating support?
Not in 2025: none of the 5 grants with a stated purpose on The Adenoid Cystic Carcinoma Research Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Multicenter Validation" (3 grants).
Who are The Adenoid Cystic Carcinoma Research Foundation's largest grantees?
The Adenoid Cystic Carcinoma Research Foundation's largest 2025 grantees include Massachusetts General Hospita ($165,000), MD Anderson Cancer Center ($50,000 across 2 grants) and Memorial Sloan Kettering ($24,920), according to its 2025 IRS Form 990. Together they received 92% of its itemized 2025 grant dollars.
How large is The Adenoid Cystic Carcinoma Research Foundation?
The Adenoid Cystic Carcinoma Research Foundation reported $2.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.2M.
What is The Adenoid Cystic Carcinoma Research Foundation?
The Adenoid Cystic Carcinoma Research Foundation is a public charity focused on Medical Research, based in Needham, MA. It holds $2.3M in total assets as of 2025.
What is The Adenoid Cystic Carcinoma Research Foundation's EIN?
The Adenoid Cystic Carcinoma Research Foundation's EIN (Employer Identification Number) is 20-6745475. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching The Adenoid Cystic Carcinoma Research Foundation by hand.
Explore Open Grants
Browse active grant opportunities in The Adenoid Cystic Carcinoma Research Foundation's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Trustees of Tufts College
Medford, MA
Trustees of Tufts College supports university instruction, research, student services, and related organizations; its 2025 grants had a median of $76,881, though many large awards were subcontract grants. Giving is concentrated in Massachusetts, and its Tufts Community Grants offer $5,000 for eligible nonprofit projects in Boston, Grafton, Medford, and Somerville; the profile does not state whether it accepts unsolicited requests.
Assets
$4.9B
Grants
149
Total Given
$38.3M
Northwestern University
Evanston, IL
Northwestern University funds research and community organizations, along with selected programs in community health, transportation research, and investigative journalism. Its 2025 grants ranged from $5,000 to $7.7 million, with a median of about $73,000; grants went largely to U.S. recipients, especially in Illinois, and its ANCHOR program focuses on Evanston and Chicago. The profile does not state whether it accepts unsolicited requests.
Assets
$20.8B
Grants
383
Total Given
$133.4M
The Greater Cincinnati Foundation
Cincinnati, OH
The Greater Cincinnati Foundation funds nonprofits working on education, housing, community and cultural vibrancy, and related regional needs, with responsive grants focused on its eight-county Greater Cincinnati service area. Its 2024 median grant was $20,000, though amounts vary widely; specific opportunities include awards of up to $35,000 for Resilient Communities and up to $450,000 through the Neighborhood Development Fund. It lists RFP and letter-of-intent opportunities but does not state whether it accepts unsolicited requests.
Assets
$1.0B
Grants
1,408
Total Given
$184.4M
Seattle Children's Hospital
Seattle, WA
Seattle Children’s funds pediatric medical research, education, healthcare access, mental health and children’s health initiatives; its external Crossett Fund supports projects benefiting children and youth in Southeast Alaska. Its 2025 grants ranged from $5,326 to $15.3 million, with a median of $57,582, while Crossett awards are capped at $10,000. The Crossett Fund accepts applications year-round; other unsolicited requests are not described.
Assets
$6.0B
Grants
181
Total Given
$56.3M
The Chicago Community Trust
Chicago, IL
The Chicago Community Trust funds eligible nonprofits working to narrow the wealth gap and meet urgent needs, with priorities including economic mobility, education, jobs, homeownership, and community development in metropolitan Chicago and Cook County. Its 2025 grants had a median of $26,500, though amounts varied widely; the profile does not state whether it accepts unsolicited requests.
Assets
$7.1B
Grants
4,316
Total Given
$1.2B
American Diabetes Association
Arlington, VA
The American Diabetes Association funds basic, clinical, translational, and other research related to diabetes, as well as early-career investigator programs; its 2024 grants ranged from $5,000 to $1,625,000, with a median of $73,652. Its 2024 awards went to institutions in various states, but the profile does not specify a geographic funding area or whether it accepts unsolicited requests.
Assets
$253.9M
Grants
241
Total Given
$26.5M
The Breast Cancer Research Foundation Inc
New York, NY
The Breast Cancer Research Foundation funds worldwide research to prevent and cure breast cancer, supporting scientists and projects at academic and medical institutions. Its 2025 grants had a median of $450,000, though awards varied widely; it discourages unsolicited funding requests and invites proposals through its Scientific Advisory Board.
Assets
$220.5M
Grants
76
Total Given
$61.1M
American Heart Association Inc
Dallas, TX
The American Heart Association funds basic, clinical, behavioral, translational and population research on cardiovascular, cerebrovascular and brain health, along with research training and education programs. In 2025 it awarded 833 grants totaling about $198 million; amounts ranged from $5,000 to nearly $9.93 million, with a median of $20,000. Research awards are for eligible U.S.-based nonprofit institutions, and the profile describes a formal proposal process but does not state whether unsolicited requests are accepted.
Assets
$2.0B
Grants
833
Total Given
$198.2M
The Simons Foundation Inc
New York, NY
The Simons Foundation funds research and public engagement in mathematics and the physical, life, autism, and neuroscience sciences. In 2024, it made 1,727 grants, with a median award of $72,000 and amounts ranging from $1,480 to $20 million, supporting organizations in the U.S. and internationally. It states that it funds only preselected charitable organizations and does not accept unsolicited requests.
Assets
$4.5B
Grants
1,727
Total Given
$272.0M
The Pew Charitable Trusts
Washington, DC
The Pew Charitable Trusts funds nonpartisan policy research and initiatives, civic participation, and—especially in Philadelphia—arts and culture and services for people in need. Its 2025 grants had a median of $75,000, though amounts varied widely; funding is national, with substantial support in Washington, D.C., and Pennsylvania. The profile does not state whether Pew accepts unsolicited requests.
Assets
$1.5B
Grants
535
Total Given
$140.6M
American Cancer Society Inc
Atlanta, GA
The American Cancer Society funds cancer research, patient support, and advocacy, including grants to researchers, institutions, and related organizations. Its 2025 grants ranged from $5,648 to $9.6 million, with a median of $15,000; research funding supports institutions across the United States. It accepts applications for specific research programs through ProposalCentral, but the profile does not state whether it accepts unsolicited requests generally.
Assets
$1.7B
Grants
509
Total Given
$23.1M
More Funders in Massachusetts
The Adenoid Cystic Carcinoma Research Foundation down — hundreds of funders to go?