Spinal Muscular Atrophy Foundation is a private foundation focused on Education, based in JACKSON, WY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $50.2M in total assets. In 2024, it awarded 11 grants totaling $1.5M. Net investment income was $19.5M.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$50.2M
+48.9% YoY
Annual Giving
$1.5M
+29.1% YoY
Grant Count
11
+22.2% YoY
Avg Grant Size
$136K
+5.6% YoY
About Spinal Muscular Atrophy Foundation
Based on IRS filings
Spinal Muscular Atrophy Foundation is a private foundation focused on Education, based in JACKSON, WY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $50.2M in total assets. In 2024, it awarded 11 grants totaling $1.5M. Net investment income was $19.5M.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $50,173,258 | $33,691,989 | $24,079,888 |
| Revenue | $19,527,538 | $12,507,750 | $25,419,539 |
| Expenses | $4,733,792 | $3,641,528 | $4,039,863 |
| Qualifying Distributions | $2,774,807 | $2,548,145 | $2,294,074 |
| Net Investment Income | $19,480,858 | $12,455,336 | $24,586,127 |
| Distributable Amount | $1,929,477 | $1,163,457 | $138,664 |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
29 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DINAKAR SINGH | BOARD CHAIRMAN | 1 | — |
| DOUGLAS COLE MD | DIRECTOR | 1 | — |
| GERALD FISCHBACH MD | DIRECTOR | 1 | — |
| ANDREW KNIGHT | DIRECTOR | 1 | — |
| JONATHAN LEFF | DIRECTOR | 1 | — |
| HELEN MEATES | DIRECTOR | 1 | — |
| STEPHEN MIKITA ESQ | DIRECTOR | 1 | — |
| JULI OH ESQ | TREASURER | 1 | — |
| SIMON PRISK ESQ | DIRECTOR | 1 | — |
| STORY LANDIS | DIRECTOR | 1 | — |
| LOREN ENG | PRESIDENT | 15 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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