Smith-Kingsmore Syndrome Foundation
Fund research to better understand Smith-Kingsmore syndrome and find treatments to improve patient quality of life and, ultimately, a cure.
Key facts about Smith-Kingsmore Syndrome Foundation
- EIN
- 84-2913037
- Latest 990 filing
- Form 990 filing, 2025
- Total assets
- $271,115
Data from IRS Form 990 filing, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 filing · View filing
Total Assets
$271K
-1.6% YoY
Revenue
$168K
-2.4% YoY
Net Investment Income
$1K
+157.3% YoY
Expenses
$166K
-52.5% YoY
About Smith-Kingsmore Syndrome Foundation
Based on IRS filings
Smith-Kingsmore Syndrome Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Cincinnati, OH. IRS filing data is available from 2022 through 2025. As of 2025, the organization holds $271K in total assets. Net investment income was $1K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2024, annual grant giving ranged from $59K (2022) to $94K (2023). In 2024 it made 1 grant totaling $68K.
Grant Insights
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 4 (75%).
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $271,115 | $275,600 | $509,150 |
| Revenue | $168,029 | $172,229 | $74,750 |
| Expenses | $165,899 | $349,410 | $224,706 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,487 | $578 | — |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2022–2025
Leadership & Key People
Officers and directors from IRS filings
Smith-Kingsmore Syndrome Foundation is led by Susan Dando, Executive Director on every filing since 2023; 2 of 9 officers listed in 2025 are compensated.
Officers on the 2025 filing
Susan Dando
Executive Director
On filings since 2023
40 hrs/week
$82K (2023) → $23K (2025)
Sarah Lepore
President
Vice President Chair Medical → President, 2023
On filings since 2022
7 hrs/week
No compensation reported
Kristen Groseclose
Director of Development
President → Director of Development, 2023
On filings since 2022
40 hrs/week
$70K (2024) → $35K (2025)
Cass Briggs
Director
On filings since 2022
2 hrs/week
No compensation reported
Dan Lepore
Director
On filings since 2022
2 hrs/week
No compensation reported
Matt Walsh
Director
On filings since 2022
1 hr/week
No compensation reported
Krista Burris
Director
New on the 2025 filing
5 hrs/week
No compensation reported
Mike Groseclose
Treasurer & Interim Secretary
On filings since 2022
15 hrs/week
No compensation reported
Nazira Kelly
Vice President
Vice Chair Medical Advisory → Vice President, 2023
On filings since 2022
5 hrs/week
No compensation reported
Former officers (1)
- Former: Eric Kelly (2022–2024) — Director
Data from IRS Form 990 filings, 2022–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $35K, to Kristen Groseclose (Director of Development). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Smith-Kingsmore Syndrome Foundation
How large is Smith-Kingsmore Syndrome Foundation?
Smith-Kingsmore Syndrome Foundation reported $271K in total assets on its 2025 IRS Form 990 filing. Its revenue that year was $168K.
What is Smith-Kingsmore Syndrome Foundation?
Smith-Kingsmore Syndrome Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Cincinnati, OH. It holds $271K in total assets as of 2025.
Where does Smith-Kingsmore Syndrome Foundation operate?
Smith-Kingsmore Syndrome Foundation has awarded grants in California, Florida.
What is Smith-Kingsmore Syndrome Foundation's EIN?
Smith-Kingsmore Syndrome Foundation's EIN (Employer Identification Number) is 84-2913037. IRS Form 990 filing data is available on this page for 2022–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Smith-Kingsmore Syndrome Foundation by hand.
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