Smith-Kingsmore Syndrome Foundation logo

Smith-Kingsmore Syndrome Foundation

CINCINNATI, OH EIN: 84-2913037 Website

Fund research to better understand Smith-Kingsmore syndrome and find treatments to improve patient quality of life and, ultimately, a cure.

Financial Overview

From 2025 IRS Form 990-PF · View filing

Total Assets

$271K

-1.6% YoY

Revenue

$168K

-2.4% YoY

Net Investment Income

$1K

+157.3% YoY

Expenses

$166K

-52.5% YoY

About Smith-Kingsmore Syndrome Foundation

Based on IRS filings

Smith-Kingsmore Syndrome Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in CINCINNATI, OH. IRS filing data is available from 2022 through 2025. As of 2025, the organization holds $271K in total assets. Net investment income was $1K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

2states

Cities

DavisGainesville

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$180K$361K$541K$721K2022202320242025
Metric202520242023
Total Assets$271,115$275,600$509,150
Revenue$168,029$172,229$74,750
Expenses$165,899$349,410$224,706
Qualifying Distributions
Net Investment Income$1,487$578
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$23K$47K$70K$94K1 grants20222 grants20231 grants20240 grants2025

Grant Insights

How this funder distributes its grants

Top Recipients

Top 0 recipients in 2025

Grant Size Distribution

4 grants across all recorded years

1<$50K3$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for 2025.

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2025 IRS filing

Kristen GrosecloseDirector of Development$35KSusan DandoExecutive Director$23K

From 2025 filing

NameTitleHoursCompensation
Kristen GrosecloseDirector of Development40$35,000
Susan DandoExecutive Director40$22,500
Cass BriggsDirector2
Dan LeporeDirector2
Krista BurrisDirector5
Matt WalshDirector1
Mike GrosecloseTreasurer and Interim Secretary15
Nazira KellyVice President5
Sarah LeporePresident7

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Smith-Kingsmore Syndrome Foundation?

Smith-Kingsmore Syndrome Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in CINCINNATI, OH. It holds $271K in total assets as of 2025.

How large is Smith-Kingsmore Syndrome Foundation?

As of 2025, Smith-Kingsmore Syndrome Foundation holds $271K in total assets with $168K in annual revenue.

Where does Smith-Kingsmore Syndrome Foundation operate?

Smith-Kingsmore Syndrome Foundation has awarded grants in California, Florida.

What is Smith-Kingsmore Syndrome Foundation's EIN?

Smith-Kingsmore Syndrome Foundation's EIN (Employer Identification Number) is 84-2913037. IRS Form 990 filing data is available on this page for 2022–2025.

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Browse active grant opportunities in Smith-Kingsmore Syndrome Foundation's focus areas in our free grants database

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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