Rare Access Action Project Inc
RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.
Rare Access Action Project Inc at a glance
In short: Rare Access Action Project Inc reported $250 in grants paid in 2024 (a total; its filing lists no individual grants). Source: 2024 IRS Form 990.
- Grants paid (2024)
- $250 — reported as a total on the IRS filing, without an itemized list
- -99.8% vs 2023
- Total assets
- $441,558
- +395.5% vs 2023
- Revenue (2024)
- $710,027
- +235.0% vs 2023
- Net investment income (2024)
- $27
- -94.4% vs 2023
- Expenses (2024)
- $357,589
- -63.6% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Rare Access Action Project Inc funds
How this funder distributes its grants
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 2 grants of 3 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How Rare Access Action Project Inc gives
- Giving grew 375% from 2020 to 2023. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $250 (2024) to $107K (2023). In 2024 it reported $250 in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| NCSL Foundation for State Leg Washington, DC | — | $106,900 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $441,558 | $710,027 | $357,589 | $250 | Total only | $27 |
| 2023 | $89,120 | $211,979 | $983,520 | $106,900 | 1 | $479 |
| 2022 | $860,661 | $2,445,165 | $3,056,887 | $8,300 | Total only | $165 |
| 2021 | $1,472,383 | $5,569,250 | $4,456,356 | $13,650 | 1 | — |
| 2020 | $359,489 | $493,351 | $379,717 | $22,500 | 1 | — |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Rare Access Action Project Inc
Based on IRS filings
Rare Access Action Project Inc is a public charity, based in Washington, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $442K in total assets. In 2024, it reported $250 in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $27.
Leadership & Key People
Officers and directors from IRS filings
Rare Access Action Project Inc is led by Michael Eging, Chairman on every filing since 2020; 2 of 4 officers listed in 2024 are compensated.
Officers on the 2024 filing
Michael Eging
Chairman
On filings since 2020
20 hrs/week
$110K (2020) → $36K (2024)
Tara Britt
Director
On filings since 2023
5 hrs/week
No compensation reported
Evan Kozlow
Treasurer
On filings since 2020
20 hrs/week
$40K (2020) → $36K (2024)
Chuck Clapton
Secretary
On filings since 2023
5 hrs/week
No compensation reported
Former officers (2)
- Former: Jennifer Beachell (2020–2022) — Director
- Former: Shelly Rosenstock (2020–2022) — Secretary
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $36K, to Michael Eging (Chairman). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Rare Access Action Project Inc
How much does Rare Access Action Project Inc give each year?
Rare Access Action Project Inc reported $250 in grants paid in 2024 on its 2024 IRS Form 990, as a total without an itemized list of grants. In 2023 it gave $107K across 1 grant.
How large is Rare Access Action Project Inc?
Rare Access Action Project Inc reported $442K in total assets on its 2024 IRS Form 990. Its revenue that year was $710K.
Where does Rare Access Action Project Inc operate?
Rare Access Action Project Inc has awarded grants in District of Columbia.
What is Rare Access Action Project Inc's EIN?
Rare Access Action Project Inc's EIN (Employer Identification Number) is 82-4433613. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS August 3, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 12, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 15, 2025)
- IRS filings on file for fiscal years 2020–2024
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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Rare Access Action Project Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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