Rare Access Action Project Inc
RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.
Key facts about Rare Access Action Project Inc
- EIN
- 82-4433613
- Latest 990 filing
- Form 990-PF, 2024
- Total assets
- $441,558
Data from IRS Form 990-PF, 2024; updated September 2026.
How Rare Access Action Project Inc gives
- Giving grew 375% from 2020 to 2023. Method
From the foundation's IRS Form 990-PF filings. Methodology.
Next steps with Rare Access Action Project Inc
- How to evaluate Rare Access Action Project Inc as a funder
Our grant prospecting guide: read the 990-PF, check fit, and decide whether to apply.
- Draft an LOI to Rare Access Action Project Inc with AI
AI grant writing that drafts from your organization’s own materials, in your voice.
- Track this opportunity in a free grant tracker
A free Google Sheets or Excel template for deadlines, award terms, and reports due.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$442K
+395.5% YoY
Revenue
$710K
+235.0% YoY
Net Investment Income
$27
-94.4% YoY
Expenses
$358K
-63.6% YoY
About Rare Access Action Project Inc
Based on IRS filings
Rare Access Action Project Inc is a nonprofit organization, based in Washington, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $442K in total assets. Net investment income was $27.
Ready to take the next step with Rare Access Action Project Inc?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $441,558 | $89,120 | $860,661 |
| Revenue | $710,027 | $211,979 | $2,445,165 |
| Expenses | $357,589 | $983,520 | $3,056,887 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $27 | $479 | $165 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Michael Eging | Chairman | 20 | $36,000 |
| Evan Kozlow | Treasurer | 20 | $36,000 |
| Chuck Clapton | Secretary | 5 | — |
| Tara Britt | Director | 5 | — |
Frequently Asked Questions
How large is Rare Access Action Project Inc?
As of 2024, Rare Access Action Project Inc holds $442K in total assets with $710K in annual revenue.
Where does Rare Access Action Project Inc operate?
Rare Access Action Project Inc has awarded grants in District of Columbia.
What is Rare Access Action Project Inc's EIN?
Rare Access Action Project Inc's EIN (Employer Identification Number) is 82-4433613. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Rare Access Action Project Inc's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
NCRC Community Development Fund Inc
Washington, DC
Assets
$55.6M
Grants
2,666
Total Given
$149.3M
National Fish and Wildlife Foundation
Washington, DC
Assets
$3.1B
Grants
1,165
Total Given
$432.4M
Amalgamated Charitable Foundation Inc
Washington, DC
Assets
$361.1M
Grants
1,134
Total Given
$165.7M
New Venture Fund
Washington, DC
Assets
$624.9M
Grants
854
Total Given
$359.6M
AARP
Washington, DC
Assets
$13.1B
Grants
688
Total Given
$35.8M
Corporation for Public Broadcasting
Washington, DC
Assets
—
Grants
555
Total Given
$175.8M
City First Enterprises Inc
Washington, DC
Assets
$74.2M
Grants
526
Total Given
$40.9M
Frontstream Global Fund
Washington, DC
Assets
$421K
Grants
556
Total Given
$13.4M
Pharmaceutical Research and Manufacturers of America
Washington, DC
Assets
$349.0M
Grants
461
Total Given
$41.4M
Windward Fund
Washington, DC
Assets
$432.7M
Grants
458
Total Given
$137.7M
The Morris and Gwendolyn Cafritz
Washington, DC
Assets
$636.1M
Grants
451
Total Given
$23.7M
Greater Washington Community Foundation
Washington, DC
Assets
$518.3M
Grants
1,417
Total Given
$116.9M
More Funders in District of Columbia
Data last updated September 2026. Sourced from IRS Form 990-PF filings.