TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.7M
+5.2% YoY
Annual Giving
$1.8M
-37.7% YoY
Grant Count
7
+40.0% YoY
Avg Grant Size
$262K
-55.5% YoY
About Project Als Inc
Based on IRS filings
Project Als Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.7M in total assets. In 2024, it awarded 7 grants totaling $1.8M. Net investment income was $31K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,748,266 | $1,661,605 | $1,177,668 |
| Revenue | $2,979,518 | $3,776,913 | $3,596,233 |
| Expenses | $3,412,851 | $4,483,713 | $3,498,948 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $30,867 | $-313 | $459 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
23 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Columbia University ($718,001), University of California San Francisco ($355,316), Projenx ($253,797).
| Recipient | Purpose | Amount |
|---|---|---|
| COLUMBIA UNIVERSITY NEW YORK, NY | MEDICAL RESEARCH | $718,001 |
| PROJENX NEW YORK, NY | MEDICAL RESEARCH | $253,797 |
| RUTGERS MEDICAL SCHOOL PISCATAWAY, NJ | MEDICAL RESEARCH | $221,394 |
| SALK INSTITUTE LA JOLLA, CA | MEDICAL RESEARCH | $101,519 |
| UNIVERSITY OF CALIFORNIA SAN DIEGO LA JOLLA, CA | MEDICAL RESEARCH | $152,278 |
| UNIVERSITY OF CALIFORNIA SAN FRANCISCO SAN FRANCISCO, CA | MEDICAL RESEARCH | $355,316 |
| WEILL CORNELL MEDICAL COLLEGE NEW YORK, NY | MEDICAL RESEARCH | $30,207 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MEREDITH ESTESS HULBERT | PRESIDENT | 50 | $225,000 |
| VALERIE ESTESS | VICE PRESIDENT | 50 | $225,000 |
| ROBERT S KAPLAN | CHAIR | 5 | — |
| DEBBIE WILPON | CHAIR | 10 | — |
| ROB BURNETT | DIRECTOR | 0.25 | — |
| MICHAEL BERMAN | DIRECTOR | 0.25 | — |
| DARCI CARLTON | DIRECTOR | 0.25 | — |
| CHAD CASCARILLA | DIRECTOR | 0.25 | — |
| F JONATHAN DRACOS | DIRECTOR | 0.25 | — |
| MARCIE FLECK | DIRECTOR | 0.25 | — |
| ARTHUR FRASIER | DIRECTOR | 0.25 | — |
| STACEY GRIFFITH | DIRECTOR | 0.25 | — |
| SIMON HALLS | DIRECTOR | 0.25 | — |
| PETER J HULBERT | DIRECTOR | 0.25 | — |
| DAVID L JAFFE | DIRECTOR | 0.25 | — |
| NANCY JARECKI | DIRECTOR | 0.25 | — |
| DANIEL KELLISON | DIRECTOR | 0.25 | — |
| STACI KIRCHHOFF | DIRECTOR | 0.25 | — |
| SUE LEIBMAN | DIRECTOR | 0.25 | — |
| MARTHA MCCULLY | DIRECTOR | 0.25 | — |
| JACK MERRILL | DIRECTOR | 0.25 | — |
| ROB MORROW | DIRECTOR | 0.25 | — |
| LORI HIRSHLIEFER SILLS | DIRECTOR | 0.25 | — |
| TARA SPIEGEL | DIRECTOR | 0.25 | — |
| BRUCE SPOHLER | DIRECTOR | 0.25 | — |
| LAWRENCE TARICA | DIRECTOR | 0.25 | — |
| CHRISTINE TAYLOR | DIRECTOR | 0.25 | — |
| DEBRA WASSERMAN | DIRECTOR | 0.25 | — |
| BONNIE VERBITSKY | DIRECTOR | 0.25 | — |
| GAIL CARSON | CONTROLLER (CFO) | 40 | $103,900 |
| MARGARET SHANAHAN | EXECUTIVE DIRECTOR | 40 | $85,000 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Project Als Inc?
Project Als Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. It holds $1.7M in total assets as of 2024.
How large is Project Als Inc?
As of 2024, Project Als Inc holds $1.7M in total assets with $3.0M in annual revenue. It awarded 7 grants totaling $1.8M in 2024.
Where does Project Als Inc operate?
Project Als Inc has awarded grants in California, Maryland, New Jersey, New York.
What size grants does Project Als Inc award?
In 2024, Project Als Inc awarded 7 grants totaling $1.8M — an average of about $262K per grant, based on its IRS Form 990 filings.
What is Project Als Inc's EIN?
Project Als Inc's EIN (Employer Identification Number) is 13-4019464. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Project Als Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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