TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.7M
+5.2% YoY
Annual Giving
$1.8M
-37.7% YoY
Grant Count
7
+40.0% YoY
Avg Grant Size
$262K
-55.5% YoY
About Project Als Inc
Based on IRS filings
Project Als Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.7M in total assets. In 2024, it awarded 7 grants totaling $1.8M. Net investment income was $31K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,748,266 | $1,661,605 | $1,177,668 |
| Revenue | $2,979,518 | $3,776,913 | $3,596,233 |
| Expenses | $3,412,851 | $4,483,713 | $3,498,948 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $30,867 | $-313 | $459 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
23 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MEREDITH ESTESS HULBERT | PRESIDENT | 50 | $225,000 |
| VALERIE ESTESS | VICE PRESIDENT | 50 | $225,000 |
| ROBERT S KAPLAN | CHAIR | 5 | — |
| DEBBIE WILPON | CHAIR | 10 | — |
| ROB BURNETT | DIRECTOR | 0.25 | — |
| MICHAEL BERMAN | DIRECTOR | 0.25 | — |
| DARCI CARLTON | DIRECTOR | 0.25 | — |
| CHAD CASCARILLA | DIRECTOR | 0.25 | — |
| F JONATHAN DRACOS | DIRECTOR | 0.25 | — |
| MARCIE FLECK | DIRECTOR | 0.25 | — |
| ARTHUR FRASIER | DIRECTOR | 0.25 | — |
| STACEY GRIFFITH | DIRECTOR | 0.25 | — |
| SIMON HALLS | DIRECTOR | 0.25 | — |
| PETER J HULBERT | DIRECTOR | 0.25 | — |
| DAVID L JAFFE | DIRECTOR | 0.25 | — |
| NANCY JARECKI | DIRECTOR | 0.25 | — |
| DANIEL KELLISON | DIRECTOR | 0.25 | — |
| STACI KIRCHHOFF | DIRECTOR | 0.25 | — |
| SUE LEIBMAN | DIRECTOR | 0.25 | — |
| MARTHA MCCULLY | DIRECTOR | 0.25 | — |
| JACK MERRILL | DIRECTOR | 0.25 | — |
| ROB MORROW | DIRECTOR | 0.25 | — |
| LORI HIRSHLIEFER SILLS | DIRECTOR | 0.25 | — |
| TARA SPIEGEL | DIRECTOR | 0.25 | — |
| BRUCE SPOHLER | DIRECTOR | 0.25 | — |
| LAWRENCE TARICA | DIRECTOR | 0.25 | — |
| CHRISTINE TAYLOR | DIRECTOR | 0.25 | — |
| DEBRA WASSERMAN | DIRECTOR | 0.25 | — |
| BONNIE VERBITSKY | DIRECTOR | 0.25 | — |
| GAIL CARSON | CONTROLLER (CFO) | 40 | $103,900 |
| MARGARET SHANAHAN | EXECUTIVE DIRECTOR | 40 | $85,000 |
Subject Areas
Focus areas based on grantmaking activity
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Assets
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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