Project Alive
Project Alive exists to find a cure for hunter syndrome through research and advocacy, and provide education and resources to the hunter syndrome community.
Project Alive at a glance
In short: Project Alive gave $46K across 2 grants in 2025 (avg $23K), top state Minnesota. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $46,015
- -85.4% vs 2024
- Grants made (2025)
- 2
- -33.3% vs 2024
- Average grant
- $23,008
- -78.1% vs 2024
- Median grant
- $23,008
- Total assets
- $1,882,123
- -18.7% vs 2024
- Primary geography
- Minnesota (31% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Project Alive funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was Society for Mucopolysacharide Diseases (MPS Society) ($32K). Together the top 2 received $46K.
Grant Size Distribution
5 grants across all recorded years
The most common grant size was under $50K: 3 grants of 5 (60%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $5K (2020) to $315K (2024). In 2025 it made 2 grants totaling $46K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Society for Mucopolysacharide Diseases (MPS Society) | Phase ii of the mps airway project, publication phase of international consensus guidelines on airway management. | $31,931 |
| Brianna Yund PHD LP-University of MN Minneapolis, MN | Project: cognitive and somatic outcomes of hematopoietic cell transplantation for hunter syndrome. | $14,084 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,882,123 | $468,046 | $849,174 | $46,015 | 2 | $42,535 |
| 2024 | $2,316,110 | $407,104 | $914,008 | $314,568 | 3 | $80,359 |
| 2023 | $2,584,090 | $301,636 | $439,138 | — | — | — |
| 2022 | $2,679,056 | $364,179 | $246,998 | — | — | — |
| 2021 | $2,579,826 | $1,330,220 | $161,977 | — | — | — |
| 2020 | $1,387,438 | $316,382 | $138,566 | $5,000 | Total only | — |
| 2019 | $1,210,717 | $417,701 | $221,814 | — | — | — |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Project Alive
Based on IRS filings
Project Alive is a public charity, based in Davenport, FL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.9M in total assets. In 2025, it awarded 2 grants totaling $46K. Net investment income was $43K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Project Alive is led by Kristin McKay, President on every filing since 2023; 1 of 16 officers listed in 2025 is compensated.
Officers on the 2025 filing
Kristin McKay
President
On filings since 2023
40 hrs/week
$75K (2023) → $86K (2025)
Kyle Underwood
Chair
Vice President → Vice Chair, 2023
Vice Chair → Chair, 2025
On filings since 2022
2 hrs/week
No compensation reported
Katey Hoffman
Director
Board Member → Director, 2025
On filings since 2020
1 hr/week
No compensation reported
Jeanette Henriquez
Director
Treasurer → Director, 2025
On filings since 2022
1 hr/week
No compensation reported
Ashly Wiebelt
Director
On filings since 2024
1 hr/week
No compensation reported
Daiza Gordon
Director
On filings since 2024
1 hr/week
No compensation reported
John Barbour
Director
On filings since 2024
1 hr/week
No compensation reported
Kyrah Jones
Director
On filings since 2024
2 hrs/week
No compensation reported
Miriam Pedroza
Director
On filings since 2024
1 hr/week
No compensation reported
Aaron Byzak
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Anne And Jeff Denneen
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Cory Briddle
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Victor Nwaba
Director
New on the 2025 filing
1 hr/week
No compensation reported
Elia Henriquez
Vice Chair
Treasurer → Vice Chair, 2025
On filings since 2023
2 hrs/week
No compensation reported
Jenn Estevez
Secretary
Director → Secretary, 2025
On filings since 2024
2 hrs/week
No compensation reported
Kevin Fuhrmann
Treasurer
Director → Treasurer, 2025
On filings since 2024
2 hrs/week
No compensation reported
Former officers (24)
- Former: Andrew Hoffman (2020–2024) — Chair
- Former: Adam Haas (2022–2024) — Director
- Former: Cory Blain (2022–2024) — Director
- Former: Julie David Ferullo (2022–2024) — Secretary
- Former: Nathan Grant (2022–2024) — Director
- Former: Karen Beatty (2023) — Director
- Former: Jon and Allison Muedder (2019–2022) — Board Member
- Former: Kim Stephens Dba (2019–2022) — President
- Former: Mario A. Estevez (2019–2022) — Board Member
- Former: Sarah Mitchell (2019–2022) — Board Member
- Former: Aywon Nguyen (2020–2022) — Board Member
- Former: Jennifer Hanebury-Estevez (2020–2022) — Board Member
- Former: Dave Ferrullo (2022) — Board Member
- Former: Angela Hoover (2019–2021) — Board Member
- Former: Jamie Fowler (2019–2021) — Board Member
- Former: Alexa Diaz Formidoni (2020–2021) — Board Member
- Former: Jennifer Carter MD (2020–2021) — Board Member
- Former: Jonathan Muedder (2020–2021) — Treasurer
- Former: Kristin Stockin (2020–2021) — Board Member
- Former: Alison Muedder (2020) — Board Member
- Former: Tammi Wolfenbarger (2020) — Secretary
- Former: Barry Alyssa Meisel (2019) — Director
- Former: Katherine Lizana (2019) — Director
- Former: Melissa Hogan (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $86K, to Kristin McKay (President).
Frequently asked questions about Project Alive
How much does Project Alive give each year?
Project Alive gave $46K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $315K across 3 grants.
How large is Project Alive?
Project Alive reported $1.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $468K.
Where does Project Alive operate?
Project Alive has awarded grants in California, Florida, Minnesota, North Carolina.
What is Project Alive's EIN?
Project Alive's EIN (Employer Identification Number) is 46-4617970. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Added Form 990 for fiscal year 2019 (received by the IRS May 1, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS June 1, 2026)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Project Alive funds
Philanthropy, Voluntarism & Grantmaking Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Project Alive's focus areas in our free grants database
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