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Project Alive

Public charity · Grantmaker Davenport, FL EIN: 46-4617970 Website

Project Alive exists to find a cure for hunter syndrome through research and advocacy, and provide education and resources to the hunter syndrome community.

Key facts about Project Alive

In short: Project Alive gave $46K across 2 grants in 2025 (avg $23K), top state Minnesota. Source: 2025 IRS Form 990.

EIN
46-4617970
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$46,015
Grants made (2025)
2
Average grant
$23,008
Median grant
$23,008
Total assets
$1,882,123
Primary geography
Minnesota (31% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$1.9M

-18.7% YoY

Annual Giving

$46K

-85.4% YoY

Grant Count

2

-33.3% YoY

Avg Grant Size

$23K

-78.1% YoY

About Project Alive

Based on IRS filings

Project Alive is a public charity, based in Davenport, FL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.9M in total assets. In 2025, it awarded 2 grants totaling $46K. Net investment income was $43K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

4states

Share of 2025 grant dollars across all 2 itemized grants.

Cities

Chapel HillHollywoodLos AngelesMinneapolis

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K$400K0 grants2019 Total only2020 0 grants2021 0 grants2022 0 grants2023 3 grants2024 2 grants2025

From 2020 to 2025, annual grant giving ranged from $5K (2020) to $315K (2024). In 2025 it made 2 grants totaling $46K.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2025

Society for Mucopolysacharide Diseases (MPS Society): $32KSociety for MucopolysacharideDiseases (MPS Society)$32KBrianna Yund PHD LP-University of MN: $14KBrianna Yund PHD LP-Universityof MN$14K

The largest 2025 recipient was Society for Mucopolysacharide Diseases (MPS Society) ($32K). Together the top 2 received $46K.

Grant Size Distribution

5 grants across all recorded years

3<$50K1$50–100K1$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 3 grants of 5 (60%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Society for Mucopolysacharide Diseases (MPS Society) Phase ii of the mps airway project, publication phase of international consensus guidelines on airway management.$31,931
Brianna Yund PHD LP-University of MN Minneapolis, MNProject: cognitive and somatic outcomes of hematopoietic cell transplantation for hunter syndrome.$14,084

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$500K$1M$1.5M2019 2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$1,882,123$2,316,110$2,584,090
Revenue$468,046$407,104$301,636
Expenses$849,174$914,008$439,138
Net Investment Income$42,535$80,359—

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
  2. Added Form 990 for fiscal year 2019 (received by the IRS May 1, 2020)
  3. Added Form 990 for fiscal year 2025 (received by the IRS June 1, 2026)
  4. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

Project Alive is led by Kristin McKay, President on every filing since 2023; 1 of 16 officers listed in 2025 is compensated.

Officers on the 2025 filing

  • Kristin McKay

    President

    On filings since 2023

    40 hrs/week

    $75K (2023) → $86K (2025)

  • Kyle Underwood

    Chair

    Vice President → Vice Chair, 2023

    Vice Chair → Chair, 2025

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Katey Hoffman

    Director

    Board Member → Director, 2025

    On filings since 2020

    1 hr/week

    No compensation reported

  • Jeanette Henriquez

    Director

    Treasurer → Director, 2025

    On filings since 2022

    1 hr/week

    No compensation reported

  • Ashly Wiebelt

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Daiza Gordon

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • John Barbour

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Kyrah Jones

    Director

    On filings since 2024

    2 hrs/week

    No compensation reported

  • Miriam Pedroza

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Aaron Byzak

    Director

    New on the 2025 filing

    2 hrs/week

    No compensation reported

  • Anne And Jeff Denneen

    Director

    New on the 2025 filing

    2 hrs/week

    No compensation reported

  • Cory Briddle

    Director

    New on the 2025 filing

    2 hrs/week

    No compensation reported

  • Victor Nwaba

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Elia Henriquez

    Vice Chair

    Treasurer → Vice Chair, 2025

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Jenn Estevez

    Secretary

    Director → Secretary, 2025

    On filings since 2024

    2 hrs/week

    No compensation reported

  • Kevin Fuhrmann

    Treasurer

    Director → Treasurer, 2025

    On filings since 2024

    2 hrs/week

    No compensation reported

Former officers (24)
  • Former: Andrew Hoffman (2020–2024) — Chair
  • Former: Adam Haas (2022–2024) — Director
  • Former: Cory Blain (2022–2024) — Director
  • Former: Julie David Ferullo (2022–2024) — Secretary
  • Former: Nathan Grant (2022–2024) — Director
  • Former: Karen Beatty (2023) — Director
  • Former: Jon and Allison Muedder (2019–2022) — Board Member
  • Former: Kim Stephens Dba (2019–2022) — President
  • Former: Mario A. Estevez (2019–2022) — Board Member
  • Former: Sarah Mitchell (2019–2022) — Board Member
  • Former: Aywon Nguyen (2020–2022) — Board Member
  • Former: Jennifer Hanebury-Estevez (2020–2022) — Board Member
  • Former: Dave Ferrullo (2022) — Board Member
  • Former: Angela Hoover (2019–2021) — Board Member
  • Former: Jamie Fowler (2019–2021) — Board Member
  • Former: Alexa Diaz Formidoni (2020–2021) — Board Member
  • Former: Jennifer Carter MD (2020–2021) — Board Member
  • Former: Jonathan Muedder (2020–2021) — Treasurer
  • Former: Kristin Stockin (2020–2021) — Board Member
  • Former: Alison Muedder (2020) — Board Member
  • Former: Tammi Wolfenbarger (2020) — Secretary
  • Former: Barry Alyssa Meisel (2019) — Director
  • Former: Katherine Lizana (2019) — Director
  • Former: Melissa Hogan (2019) — Director

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Kristin McKay — President: $86KKristin McKayPresident$86K

The highest reported compensation on the 2025 filing was $86K, to Kristin McKay (President).

Frequently asked questions about Project Alive

How much does Project Alive give each year?

Project Alive gave $46K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $315K across 3 grants.

How large is Project Alive?

Project Alive reported $1.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $468K.

Where does Project Alive operate?

Project Alive has awarded grants in California, Florida, Minnesota, North Carolina.

What is Project Alive's EIN?

Project Alive's EIN (Employer Identification Number) is 46-4617970. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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