PRADER-WIllI SYNDROME ASSOCIATION (USA)
TO ENCHANCE THE QUALITY OF LIFE AND EMPOWER THOSE AFFECTED BY PRADER-WILLI SYNDROME
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.7M
+33.6% YoY
Revenue
$1.6M
+0.5% YoY
Net Investment Income
$62K
-13.5% YoY
Expenses
$1.6M
-15.2% YoY
About PRADER-WIllI SYNDROME ASSOCIATION (USA)
Based on IRS filings
PRADER-WIllI SYNDROME ASSOCIATION (USA) is a nonprofit organization, based in BRANDON, FL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.7M in total assets. Net investment income was $62K.
Ready to take the next step with PRADER-WIllI SYNDROME ASSOCIATION (USA)?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,678,825 | $2,753,019 | $2,880,192 |
| Revenue | $1,585,370 | $1,577,352 | $2,242,320 |
| Expenses | $1,567,125 | $1,847,424 | $1,555,709 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $61,509 | $71,134 | $100,611 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
10 grants across all recorded years
Open Grants
3 open opportunities from PRADER-WIllI SYNDROME ASSOCIATION (USA)
Prader-Willi Syndrome Mini-Fellowship Grant
PRADER-WIllI SYNDROME ASSOCIATION (USA)
Amount
Up to US $25,000
Deadline
Rolling / Open
Prader-Willi Syndrome Research Grant - 12 Month Larger Grant
PRADER-WIllI SYNDROME ASSOCIATION (USA)
Amount
Up to US $100,000
Deadline
Rolling / Open
Prader-Willi Syndrome Research Grant - Individual and Rolling Basis Smaller Grant
PRADER-WIllI SYNDROME ASSOCIATION (USA)
Amount
Up to US $25,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| STACY WARD | CHIEF EXECUTIVE OFFICER | 50 | $102,259 |
| MARGUERITE RUPNOW | CHAIR | 5 | — |
| MITCH COHEN | VICE CHAIR | 3 | — |
| DENISE SERVAIS | SECRETARY | 3 | — |
| TINA THLENFELD | TREASURER | 3 | — |
| TIM HEARN | DIRECTOR | 3 | — |
| JOHN LENS | DIRECTOR | 3 | — |
| MICHELLE TOLBERT | DIRECTOR | 3 | — |
| MATT MCCLEERY | DIRECTOR | 3 | — |
| KATHRYN LUCERO | DIRECTOR | 3 | — |
| LISA LAMB | DIRECTOR | 3 | — |
| JEFF COVINGTON | DIRECTOR | 3 | — |
| ANN SCHEIMANN | DIRECTOR | 3 | — |
| CLINT HURDLE | DIRECTOR | 3 | — |
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with PRADER-WIllI SYNDROME ASSOCIATION (USA) on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities