The mission of the Phelan-McDermid Syndrome Foundation is to make today better and the future brighter for everyone living with Phelan-McDermid syndrome - from the moment of diagnosis to the delivery of treatments and cures.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.1M
-5.9% YoY
Annual Giving
$271K
+23.4% YoY
Grant Count
3
-25.0% YoY
Avg Grant Size
$90K
+64.5% YoY
About Phelan Mcdermid Syndrome Foundation
Based on IRS filings
Phelan Mcdermid Syndrome Foundation is a nonprofit organization focused on Medical Research, based in OSPREY, FL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.1M in total assets. In 2024, it awarded 3 grants totaling $271K. Net investment income was $45K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,109,869 | $2,243,009 | $2,113,920 |
| Revenue | $1,306,884 | $1,062,761 | $853,648 |
| Expenses | $1,437,564 | $1,098,819 | $715,263 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $44,888 | $14,095 | $-8,775 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
9 grants across all recorded years
Open Grants
3 open opportunities from Phelan Mcdermid Syndrome Foundation
PMSF Innovation Award (Early Career Investigator)
PHELAN MCDERMID SYNDROME FOUNDATION
Amount
Varies
Deadline
Rolling / Open
PMSF Shannon O’Boyle Memorial Grant – Neuropsychiatric Illness
PHELAN MCDERMID SYNDROME FOUNDATION
Amount
Varies
Deadline
Rolling / Open
PMSF Translational Research Award
PHELAN MCDERMID SYNDROME FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Rhonda Blumenthal | Chief Executive Officer | 40 | $122,244 |
| Denise Croden | President | 5 | — |
| Ben Holocher | Vice President | 5 | — |
| Lisa Brown | Secretary | 5 | — |
| Michael Cento | Treasurer | 5 | — |
| Catherine Valcourt-Pearce | Director | 5 | — |
| Chardell Buchanan | Director | 5 | — |
| Eden Rivera | Director | 5 | — |
| Dr Lori Levi | Director | 5 | — |
| Heidi Grabenstatter PhD | Director | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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