Patientrightsadvocateorg Inc
Conduct research and advocacy in support of systemwide price transparency in healthcare to lower costs for all americans
Patientrightsadvocateorg Inc at a glance
In short: Patientrightsadvocateorg Inc gave $1.3M across 12 grants in 2025 (avg $105K), top state Virginia. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,264,500
- +31.6% vs 2024
- Grants made (2025)
- 12
- +33.3% vs 2024
- Average grant
- $105,375
- -1.3% vs 2024
- Median grant
- $100,000
- Total assets
- $537,260
- -79.9% vs 2024
- Primary geography
- Virginia (28% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated November 2026.
Who Patientrightsadvocateorg Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was America First Policy Institute ($200K). Together the top 10 received $1.2M.
Grant Size Distribution
39 grants across all recorded years
The most common grant size was in the $100–250K range: 14 grants of 39 (36%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 12 itemized grants.
States
Cities
How Patientrightsadvocateorg Inc gives
Estimate from itemized grant lists in IRS Form 990 filings (2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $54K (2020) to $6.9M (2022). In 2025 it made 12 grants totaling $1.3M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| America First Policy Institute Arlington, VA | Supporting the Organization | $200,000 |
| American Legislative Exchange Council Arlington, VA | Supporting the Organization | $150,000 |
| Brown University Providence, RI | Supporting the Organization | $150,000 |
| Committee to Unleash Prosperity Potomac, MD | Supporting the Organization | $150,000 |
| US Pirg Education Fund Denver, CO | Supporting the Organization | $139,500 |
| People for Opportunity Inc DBA Save Our State Oklahoma City, OK | Supporting the Organization | $100,000 |
| Amac Action Bohemia, NY | Supporting the Organization | $100,000 |
| Johns Hopkins University Baltimore, MD | Supporting the Organization | $90,000 |
| Rice University Houston, TX | Supporting the Organization | $75,000 |
| Dollar for Vancouver, WA | Supporting the Organization | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $537,260 | $8,633,333 | $10,769,906 | $1,264,500 | 12 | $566,131 |
| 2024 | $2,675,094 | $7,790,684 | $12,087,760 | $960,850 | 9 | $2,453,184 |
| 2023 | $7,030,185 | $1,879,059 | $13,913,567 | $2,997,500 | 6 | $474,973 |
| 2022 | $19,033,677 | $18,992,127 | $16,820,884 | $6,865,000 | 8 | $2,232,127 |
| 2021 | $16,831,821 | $23,214,386 | $12,746,104 | $5,360,000 | 4 | $1,136,423 |
| 2020 | $6,361,249 | $8,588,787 | $2,282,504 | $53,500 | 1 | $60,541 |
About Patientrightsadvocateorg Inc
Based on IRS filings
Patientrightsadvocateorg Inc is a public charity focused on Health, based in West Palm Beach, FL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $537K in total assets. In 2025, it awarded 12 grants totaling $1.3M. Net investment income was $566K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Patientrightsadvocateorg Inc is led by Cynthia Fisher, Chairman since 2021 (on filings since 2020); 3 of 5 officers listed in 2025 are compensated.
Officers on the 2025 filing
Cynthia Fisher
Chairman
Chairman & Founder → Chairman, 2021
On filings since 2020
10 hrs/week
No compensation reported
Linda Bent
Board Member
President → Board Member, 2021
On filings since 2020
13 hrs/week
$87K (2020) → $0 (2025)
Ilaria Santangelo
Employee
On filings since 2023
25 hrs/week
$129K (2023) → $212K (2025)
Marie Larobareier
Employee
On filings since 2023
25 hrs/week
$108K (2023) → $105K (2025)
Julia Havlak
Research & Communications
Research & Communications Manager → Research & Communications, 2025
On filings since 2024
25 hrs/week
$130K (2024) → $135K (2025)
Former officers (2)
- Former: Kara Grasso (2020–2022) — Board Member
- Former: Nadia Altomare (2020–2022) — Board Member
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $212K, to Ilaria Santangelo (Employee). 3 officers or directors reported compensation on that filing.
Frequently asked questions about Patientrightsadvocateorg Inc
How much does Patientrightsadvocateorg Inc give each year?
Patientrightsadvocateorg Inc gave $1.3M across 12 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $961K across 9 grants.
What is Patientrightsadvocateorg Inc's typical grant size?
Patientrightsadvocateorg Inc's median grant in 2025 was $100,000, and its average grant was $105,375, across 12 grants on its 2025 IRS Form 990.
Where does Patientrightsadvocateorg Inc give grants?
Patientrightsadvocateorg Inc's top state is Virginia, with 28% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Maryland (19%) and Rhode Island (12%). The most frequent recipient cities were Arlington, VA (2 grants) and Oklahoma City, OK (2 grants).
Does Patientrightsadvocateorg Inc give general operating support?
Not in 2025: none of the 12 grants with a stated purpose on Patientrightsadvocateorg Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Supporting the Organization" (12 grants).
Who are Patientrightsadvocateorg Inc's largest grantees?
Patientrightsadvocateorg Inc's largest 2025 grantees include America First Policy Institute ($200,000), American Legislative Exchange Council ($150,000) and Brown University ($150,000), according to its 2025 IRS Form 990. Together they received 40% of its itemized 2025 grant dollars.
How large is Patientrightsadvocateorg Inc?
Patientrightsadvocateorg Inc reported $537K in total assets on its 2025 IRS Form 990. Its revenue that year was $8.6M.
What is Patientrightsadvocateorg Inc?
Patientrightsadvocateorg Inc is a public charity focused on Health, based in West Palm Beach, FL. It holds $537K in total assets as of 2025.
What is Patientrightsadvocateorg Inc's EIN?
Patientrightsadvocateorg Inc's EIN (Employer Identification Number) is 82-3586244. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated November 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS September 18, 2026)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 8, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 9, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 18, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 21, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Patientrightsadvocateorg Inc funds
Health Open opportunities, soonest deadline first.
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