Patientrightsadvocateorg Inc
Conduct research and advocacy in support of systemwide price transparency in healthcare to lower costs for all americans
Patientrightsadvocateorg Inc at a glance
In short: Patientrightsadvocateorg Inc gave $961K across 9 grants in 2024 (avg $107K), top state Virginia. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $960,850
- -67.9% vs 2023
- Grants made (2024)
- 9
- +50.0% vs 2023
- Average grant
- $106,761
- -78.6% vs 2023
- Median grant
- $100,000
- Total assets
- $2,675,094
- -61.9% vs 2023
- Primary geography
- Virginia (34% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Patientrightsadvocateorg Inc funds
How this funder distributes its grants
Top Recipients
Top 9 recipients in 2024
The largest 2024 recipient was Bentley University ($250K). Together the top 9 received $961K.
Grant Size Distribution
28 grants across all recorded years
The most common grant size was in the $100–250K range: 7 grants of 28 (25%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 9 itemized grants.
States
Cities
How Patientrightsadvocateorg Inc gives
- Giving fell 82% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $54K (2020) to $6.9M (2022). In 2024 it made 9 grants totaling $961K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Bentley University Waltham, MA | Supporting the Organization | $250,000 |
| American Legislative Exchange Council Arlington, VA | Supporting the Organization | $230,000 |
| Brown University Providence, RI | Supporting the Organization | $150,000 |
| US Pirg Education Fund Denver, CO | Supporting the Organization | $100,850 |
| America First Policy Institute Arlington, VA | Supporting the Organization | $100,000 |
| Johns Hopkins University Baltimore, MD | Supporting the Organization | $90,000 |
| Dollar for Vancouver, WA | Supporting the Organization | $20,000 |
| Power to the Patients Winter Park, FL | Supporting the Organization | $10,000 |
| Young Americans for Liberty Austin, TX | Supporting the Organization | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,675,094 | $7,790,684 | $12,087,760 | $960,850 | 9 | $2,453,184 |
| 2023 | $7,030,185 | $1,879,059 | $13,913,567 | $2,997,500 | 6 | $474,973 |
| 2022 | $19,033,677 | $18,992,127 | $16,820,884 | $6,865,000 | 8 | $2,232,127 |
| 2021 | $16,831,821 | $23,214,386 | $12,746,104 | $5,360,000 | 4 | $1,136,423 |
| 2020 | $6,361,249 | $8,588,787 | $2,282,504 | $53,500 | 1 | $60,541 |
About Patientrightsadvocateorg Inc
Based on IRS filings
Patientrightsadvocateorg Inc is a public charity focused on Health, based in West Palm Beach, FL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.7M in total assets. In 2024, it awarded 9 grants totaling $961K. Net investment income was $2.5M.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Patientrightsadvocateorg Inc is led by Cynthia Fisher, Chairman since 2021 (on filings since 2020); 3 of 5 officers listed in 2024 are compensated.
Officers on the 2024 filing
Cynthia Fisher
Chairman
Chairman & Founder → Chairman, 2021
On filings since 2020
10 hrs/week
No compensation reported
Linda Bent
Board Member
President → Board Member, 2021
On filings since 2020
13 hrs/week
$87K (2020) → $0 (2024)
Ilaria Santangelo
Employee
On filings since 2023
25 hrs/week
$129K (2023) → $189K (2024)
Marie Larobareier
Employee
On filings since 2023
25 hrs/week
$108K (2023) → $115K (2024)
Julia Havlak
Research & Communications Manager
New on the 2024 filing
25 hrs/week
$130K (2024)
Former officers (2)
- Former: Kara Grasso (2020–2022) — Board Member
- Former: Nadia Altomare (2020–2022) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $189K, to Ilaria Santangelo (Employee). 3 officers or directors reported compensation on that filing.
Frequently asked questions about Patientrightsadvocateorg Inc
How much does Patientrightsadvocateorg Inc give each year?
Patientrightsadvocateorg Inc gave $961K across 9 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $3.0M across 6 grants.
What is Patientrightsadvocateorg Inc's typical grant size?
Patientrightsadvocateorg Inc's median grant in 2024 was $100,000, and its average grant was $106,761, across 9 grants on its 2024 IRS Form 990.
Where does Patientrightsadvocateorg Inc give grants?
Patientrightsadvocateorg Inc's top state is Virginia, with 34% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (26%) and Rhode Island (16%). The most frequent recipient cities were Arlington, VA (2 grants).
Does Patientrightsadvocateorg Inc give general operating support?
Not in 2024: none of the 9 grants with a stated purpose on Patientrightsadvocateorg Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Supporting the Organization" (9 grants).
Who are Patientrightsadvocateorg Inc's largest grantees?
Patientrightsadvocateorg Inc's largest 2024 grantees include Bentley University ($250,000), American Legislative Exchange Council ($230,000) and Brown University ($150,000), according to its 2024 IRS Form 990. Together they received 66% of its itemized 2024 grant dollars.
How large is Patientrightsadvocateorg Inc?
Patientrightsadvocateorg Inc reported $2.7M in total assets on its 2024 IRS Form 990. Its revenue that year was $7.8M.
What is Patientrightsadvocateorg Inc?
Patientrightsadvocateorg Inc is a public charity focused on Health, based in West Palm Beach, FL. It holds $2.7M in total assets as of 2024.
What is Patientrightsadvocateorg Inc's EIN?
Patientrightsadvocateorg Inc's EIN (Employer Identification Number) is 82-3586244. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 8, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 9, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 18, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 21, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Patientrightsadvocateorg Inc funds
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