PACS1 Syndrome Research Foundation
PACS1 Syndrome Research Foundation is a private foundation focused on Diseases, Disorders & Medical Disciplines, based in Old Greenwich, CT. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $354K in total assets. In 2024, it awarded 2 grants totaling $136K. Net investment income was $11K.
PACS1 Syndrome Research Foundation at a glance
In short: PACS1 Syndrome Research Foundation gave $136K across 2 grants in 2024 (avg $68K), mostly in Texas. Source: 2024 IRS Form 990-PF.
- Annual giving (2024)
- $135,667
- -55.3% vs 2023
- Grants made (2024)
- 2
- -60.0% vs 2023
- Average grant
- $67,834
- +11.8% vs 2023
- Median grant
- $67,834
- Total assets
- $353,606
- -42.0% vs 2023
- Primary geography
- Texas (87% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990-PF, 2024 View filing
Data from IRS Form 990-PF, 2024; updated September 2026.
Who PACS1 Syndrome Research Foundation funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was The University of Texas Southwestern Medical Center ($119K). Together the top 2 received $136K.
Grant Size Distribution
17 grants across all recorded years
The most common grant size was under $50K: 9 grants of 17 (53%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
How PACS1 Syndrome Research Foundation gives
- Giving grew 443% from 2021 to 2024. Method
- In 2024 it paid out 608% of its IRS minimum distribution (the 5% rule). Method
From the foundation's IRS Form 990-PF filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $25K (2021) to $329K (2022). In 2024 it made 2 grants totaling $136K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The University of Texas Southwestern Medical Center Dallas, TX | Exploring the structural biology of the pacs1 - wdr37 connection. | $118,560 |
| Broad Institute Cambridge, MA | Cell-Based Screeing Study Using Patient Fibroblasts. | $17,107 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Net Investment Income | Distributable Amount |
|---|---|---|---|---|---|---|---|---|
| 2024 | $353,606 | $162,460 | $367,382 | $135,667 | 2 | $135,667 | $10,722 | $22,315 |
| 2023 | $609,523 | $618,429 | $503,645 | $303,257 | 5 | $424,221 | $4,220 | $35,049 |
| 2022 | $492,202 | $404,738 | $488,324 | $329,280 | 6 | $427,807 | — | $26,299 |
| 2021 | $575,788 | $476,967 | $59,724 | $25,000 | 1 | $54,522 | — | $18,083 |
| 2020 | $158,545 | $177,389 | $208,259 | $170,703 | 3 | — | — | $9,765 |
Under IRS private-foundation payout rules, PACS1 Syndrome Research Foundation reported a distributable amount of $22K for 2024 — the minimum it must pay out in qualifying distributions.
Leadership & Key People
Officers and directors from IRS filings
PACS1 Syndrome Research Foundation's 2024 filing lists 3 officers; none of the 3 officers listed in 2024 report compensation.
Officers on the 2024 filing
Amy Cram
Trustee
On filings since 2020
1 hr/week
No compensation reported
Nicolas Vassalli
Trustee
On filings since 2020
1 hr/week
No compensation reported
Taruna Reddy
Trustee
On filings since 2020
5 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about PACS1 Syndrome Research Foundation
How much does PACS1 Syndrome Research Foundation give each year?
PACS1 Syndrome Research Foundation gave $136K across 2 grants in 2024, according to its 2024 IRS Form 990-PF. In 2023 it gave $303K across 5 grants.
How large is PACS1 Syndrome Research Foundation?
PACS1 Syndrome Research Foundation reported $354K in total assets on its 2024 IRS Form 990-PF. It paid out $136K in qualifying distributions that year, against a required minimum of $22K (roughly 5% of its investment assets).
What is PACS1 Syndrome Research Foundation?
PACS1 Syndrome Research Foundation is a private foundation focused on Diseases, Disorders & Medical Disciplines, based in Old Greenwich, CT. It holds $354K in total assets as of 2024.
Where does PACS1 Syndrome Research Foundation operate?
PACS1 Syndrome Research Foundation has awarded grants in California, Georgia, Illinois, Massachusetts, Maine, Pennsylvania, Texas, Wisconsin.
What is PACS1 Syndrome Research Foundation's EIN?
PACS1 Syndrome Research Foundation's EIN (Employer Identification Number) is 82-6460046. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990-PF filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
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