Organic Acidemia Association Corporation
To provide information and support to parents and professionals dealing with a set of inborn errors of metabolism diseases known as organic acidemia.
Organic Acidemia Association Corporation at a glance
- Total assets
- $644,289
- +0.1% vs 2024
- Revenue (2025)
- $100,612
- -37.6% vs 2024
- Net investment income (2025)
- $24,507
- +21.5% vs 2024
- Expenses (2025)
- $99,894
- -28.2% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026.
Who Organic Acidemia Association Corporation funds
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was under $50K: 2 grants of 4 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2024, annual grant giving ranged from $2K (2024) to $100K (2021). In 2024 it reported $2K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| National Institute of Health Bethesda, MD | — | $50,000 |
| Oxford University | — | $25,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $644,289 | $100,612 | $99,894 | — | — | $24,507 |
| 2024 | $643,572 | $161,337 | $139,190 | $2,000 | Total only | $20,178 |
| 2023 | $620,936 | $96,803 | $164,297 | $75,000 | 2 | $6,512 |
| 2022 | $689,296 | $109,117 | $139,647 | $10,000 | 1 | $10,579 |
| 2021 | $719,299 | $773,343 | $130,632 | $100,000 | 1 | — |
| 2020 | $76,588 | $55,131 | $47,613 | — | — | — |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Organic Acidemia Association Corporation
Based on IRS filings
Organic Acidemia Association Corporation is a public charity, based in Golden Valley, MN. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $644K in total assets. Net investment income was $25K.
Leadership & Key People
Officers and directors from IRS filings
Organic Acidemia Association Corporation is led by Kathy Stagni, Executive Director on every filing since 2020; 1 of 9 officers listed in 2025 is compensated.
Officers on the 2025 filing
Kathy Stagni
Executive Director
On filings since 2020
25 hrs/week
$45K (2022) → $45K (2025)
Cay Welch
Board Member
Director → Board Member, 2025
On filings since 2020
1 hr/week
No compensation reported
Jana Monaco
Board Liason
On filings since 2020
1 hr/week
No compensation reported
Menta Pitre
Board Member
Director → Board Member, 2025
On filings since 2020
1 hr/week
No compensation reported
Allison Wood
Board Member
Director → Board Member, 2025
On filings since 2021
1 hr/week
No compensation reported
Karen Dalton
Finance Manager
Finance Director → Finance Manager, 2025
On filings since 2021
1 hr/week
No compensation reported
Richard Bazzy
Board Member
Director → Board Member, 2025
On filings since 2021
1 hr/week
No compensation reported
Jenni Jaehnke
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Steph Mustin
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (1)
- Former: Erin MacLean (2021–2023) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $45K, to Kathy Stagni (Executive Dir.).
Frequently asked questions about Organic Acidemia Association Corporation
How large is Organic Acidemia Association Corporation?
Organic Acidemia Association Corporation reported $644K in total assets on its 2025 IRS Form 990. Its revenue that year was $101K.
Where does Organic Acidemia Association Corporation operate?
Organic Acidemia Association Corporation has awarded grants in Maryland.
What is Organic Acidemia Association Corporation's EIN?
Organic Acidemia Association Corporation's EIN (Employer Identification Number) is 48-1038050. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS March 30, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 27, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 23, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 4, 2026)
Explore Open Grants
Browse active grant opportunities in Organic Acidemia Association Corporation's focus areas in our free grants database
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Organic Acidemia Association Corporation down — hundreds of funders to go?