North American Association of Central Cancer Registries
The North American Association of Central Cancer Registries, Inc. (NAACCR) is a professional organization based in Springfield, Illinois, that works to improve cancer registry data and its use. It offers grants and awards to U.S. central cancer registries; its 2025 filing also reports grants to cancer registry and public health entities in multiple states and Puerto Rico.
Key facts about North American Association of Central Cancer Registries
In short: North American Association of Central Cancer Registries gave $376K across 24 grants in 2025 (avg $16K), top state Missouri. 17% of 2025 grantees were new. Source: 2025 IRS Form 990.
- EIN
- 77-0324654
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $376,200
- Grants made (2025)
- 24
- Average grant
- $15,675
- Median grant
- $16,250
- New grantees (estimate)
- 17% first-time grantees (4 of 24, 2025; small sample)
- Total assets
- $3,466,501
- Primary geography
- Missouri (11% of itemized 2025 grant dollars)
- How to apply
- For a listed opportunity, a qualified registry should submit one application through the opportunity’s application process. Full details ↓
Data from IRS Form 990, 2025; updated September 2026. New grantees are estimated by matching recipient names across years (methodology). Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$3.5M
+6.4% YoY
Annual Giving
$376K
+45.3% YoY
Grant Count
24
+20.0% YoY
Avg Grant Size
$16K
+21.0% YoY
Is North American Association of Central Cancer Registries open to new grantees?
17%
first-time grantees, 2025
In 2025, 4 of 24 grantees (17%) were first-time recipients. With only 24 grantees, that is a small sample: one grantee more or less moves the share by about 4 points. First grants averaged $16K; repeat grants $16K. How we count
Medians: $18K first-time, $12K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2021–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Mission & Focus Areas
NAACCR’s stated mission is to develop and promote uniform data standards for cancer registration; provide education and training; certify population-based registries; aggregate and publish data from central cancer registries; and promote the use of cancer surveillance data and systems in cancer control, epidemiologic research, public health programs, and patient care.
Its grant and award program is specifically designed for U.S.-based central cancer registries. Listed opportunities include participation in the National Childhood Cancer Registry and annual linkage with it through the Virtual Pooled Registry. Deliverables described for those opportunities include submitting childhood cancer data and performing registry-data linkage.
Grantmaking
In filing year 2025, NAACCR reported 24 grants totaling $376,200. Grants ranged from $8,000 to $40,600, with a median of $16,250. The largest reported grant was $40,600 to the Curators of the University of Missouri in Kansas City, Missouri, for “contribution.” Other large grants included $21,800 to the Florida Cancer Data System/University of Miami ORA, listed in Atlanta, Georgia; $21,600 each to the Arkansas Department of Health, Oregon State Cancer Registry, Pennsylvania Cancer Registry, and Michigan Cancer Surveillance Program; and $20,100 to the Ohio Department of Health.
NAACCR says opportunities are announced on its website and that each is managed, critiqued, and monitored by the organization. It works with recipients to monitor project progress and adherence to deliverables. The listed NCCR opportunities invite qualified registries to submit a single application. The Global CR-CS Fellowship described in the supplied program information was a 2019 program and is not a current application cycle.
How to Apply
For a listed opportunity, a qualified registry should submit one application through the opportunity’s application process.
Open Grants
2 open opportunities from North American Association of Central Cancer Registries
Global CR-CS Fellowship
North American Association of Central Cancer Registries
Amount
Hotel accommodation, registration fees, and up to $1,000 travel reimbursement
Deadline
Deadline not published
NAACCR Grant/Award Program
North American Association of Central Cancer Registries
Amount
Varies
Deadline
Deadline not published
Ready to take the next step with North American Association of Central Cancer Registries?
Geographic Focus
Where this funder awards grants
NAACCR’s general grant and award program is specifically for U.S.-based central cancer registries. Its 2025 grants were reported to recipients in multiple U.S. states and Puerto Rico. The 2019 Global CR-CS Fellowship described in the program information had an international scope, including individuals working with low-resource population-based registries; that cycle was closed.
Grant Distribution by State
Share of 2025 grant dollars across all 24 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $157K (2023) to $376K (2025). In 2025 it made 24 grants totaling $376K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Curators of the University of Missouri ($41K). Together the top 10 received $225K.
Grant Size Distribution
103 grants across all recorded years
The most common grant size was under $50K: 103 grants of 103 (100%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Curators of the University of Missouri Kansas City, MO | Contribution | $40,600 |
| Florida Cancer Data Systemuniversity of Miami Ora Atlanta, GA | Contribution | $21,800 |
| Arkansas Dept of Health Little Rock, AR | Contribution | $21,600 |
| Oregon State Cancer Registry Portland, OR | Contribution | $21,600 |
| Pennsylvania Cancer Registry Harrisburg, PA | Contribution | $21,600 |
| Michigan Cancer Surveillance Program Lansing, MI | Contribution | $21,600 |
| Ohio Department of Health Columbus, OH | Contribution | $20,100 |
| Indiana State Cancer Registry Indianapolis, IN | Contribution | $19,000 |
| Puerto Rico Comprehensive Cancer Center San Juan, PR | Contribution | $19,000 |
| MN Cancer Reporting System St. Paul, MN | Contribution | $18,300 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grants reported |
|---|---|---|---|---|
| 2025 | $3,466,501 | $4,611,461 | $4,347,793 | $376,200 (24 grants) |
| 2024 | $3,259,159 | $4,112,403 | $4,283,585 | $259,000 (20 grants) |
| 2023 | $3,234,313 | $4,139,331 | $4,368,211 | $157,250 (15 grants) |
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $3,466,501 | $3,259,159 | $3,234,313 |
| Revenue | $4,611,461 | $4,112,403 | $4,139,331 |
| Expenses | $4,347,793 | $4,283,585 | $4,368,211 |
| Net Investment Income | $105,804 | $119,217 | $64,159 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS October 12, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 27, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 4, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS October 9, 2025)
- IRS filings on file for fiscal years 2021–2025
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Wendy Aldinger as president, Eric Durbin as president-elect, Kevin Ward as treasurer, and Lori Swain as SMO representative. It also lists Valerie Somma, Joshua Mazuryk, Lihua Liu, Bozena Morawski, Lori Koch, and Sarah Nash as representatives at large.
North American Association of Central Cancer Registries is led by Wendy Aldinger, President since 2024 (on filings since 2022); 8 of 18 officers listed in 2025 are compensated.
Officers on the 2025 filing
Wendy Aldinger
President
Representative - At- Large → President Elect, 2023
President Elect → President, 2024
On filings since 2022
1 hr/week
$2K (2022) → $0 (2025)
Karen Knight
Executive Director
Chief of Registry Operaons → Chief of Registry Development, 2024
Chief of Registry Development → Executive Director, 2025
On filings since 2023
37.5 hrs/week
$115K (2023) → $164K (2025)
Charlie Blackburn
Chief Operating Officer
On filings since 2021
37.5 hrs/week
$137K (2021) → $172K (2025)
Jim Hofferkamp
Program Manager
On filings since 2021
37.5 hrs/week
$114K (2021) → $140K (2025)
Lori Havener
Program Manager
On filings since 2021
37.5 hrs/week
$110K (2021) → $125K (2025)
Stephanie Hill
Associate Director
On filings since 2021
37.5 hrs/week
$112K (2021) → $171K (2025)
Adele Hileman
Controller
On filings since 2022
37.5 hrs/week
$120K (2022) → $137K (2025)
Castine Clerkin
Program Manager
On filings since 2022
37.5 hrs/week
$118K (2022) → $133K (2025)
Fernanda Silva Michels
Program Manager
On filings since 2024
37.5 hrs/week
$104K (2024) → $108K (2025)
Kevin Ward
Treasurer
Representative - At- Large → Treasurer, 2022
On filings since 2021
1 hr/week
No compensation reported
Lori Swain
Smo Representative
Representative & Sponsoring → Smo Representative, 2024
On filings since 2021
1 hr/week
No compensation reported
Sarah Nash
Rep at Large
Representative - At- Large → Rep-At-Large, 2024
Rep-At-Large → Rep at Large, 2025
On filings since 2022
1 hr/week
No compensation reported
Lihua Liu
Rep at Large
Representative - At- Large → Rep-At-Large, 2024
Rep-At-Large → Rep at Large, 2025
On filings since 2023
1 hr/week
No compensation reported
Lori Koch
Rep at Large
Representative - At- Large → Rep-At-Large, 2024
Rep-At-Large → Rep at Large, 2025
On filings since 2023
1 hr/week
No compensation reported
Bozena Morawski
Rep at Large
Rep-At-Large → Rep at Large, 2025
On filings since 2024
1 hr/week
No compensation reported
Joshua Mazuryk
Rep at Large
Rep-At-Large → Rep at Large, 2025
On filings since 2024
1 hr/week
No compensation reported
Eric Durbin
President-Elect
New on the 2025 filing
1 hr/week
No compensation reported
Valerie Somma
Rep at Large
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (10)
- Former: Betsy A. Kohler (2021–2025) — Executive Director · Filing note: Thru 11/14/2024
- Former: Monique Hernandez (2021–2024) — Rep-At-Large
- Former: Winny Roshala (2021–2024) — Past-President
- Former: Lorraine Shack (2021–2023) — Representative - At- Large
- Former: Randi Rycroft (2021–2023) — Representative - At- Large
- Former: Casne Clerkin (2023) — Program Manager
- Former: Angela Meisner (2021–2022) — Representative - At- Large
- Former: Mary Jane King (2021–2022) — Representative - At- Large
- Former: Isaac Hands (2021) — Representative - At- Large
- Former: Maria Schymura (2021) — Treasurer
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $261K, to Betsy Kohler Thru 11142024 (Executive Director). 9 officers or directors reported compensation on that filing.
Contact
Mailing address: 2050 W Iles Ste A, Springfield, IL 62704
Phone: (217) 698-0800
Website: https://naaccr.org
Frequently asked questions about North American Association of Central Cancer Registries
How much does North American Association of Central Cancer Registries give each year?
North American Association of Central Cancer Registries gave $376K across 24 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $259K across 20 grants.
What is North American Association of Central Cancer Registries's typical grant size?
North American Association of Central Cancer Registries's median grant in 2025 was $16,250, and its average grant was $15,675, across 24 grants on its 2025 IRS Form 990. Organizations receiving their first grant from North American Association of Central Cancer Registries that year got $16K on average.
Where does North American Association of Central Cancer Registries give grants?
North American Association of Central Cancer Registries's top state is Missouri, with 11% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Georgia (6%) and Arkansas (6%).
Does North American Association of Central Cancer Registries give general operating support?
Not in 2025: none of the 24 grants with a stated purpose on North American Association of Central Cancer Registries's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Contribution" (24 grants).
Who are North American Association of Central Cancer Registries's largest grantees?
North American Association of Central Cancer Registries's largest 2025 grantees include Curators of the University of Missouri ($40,600), Florida Cancer Data Systemuniversity of Miami Ora ($21,800) and Arkansas Dept of Health ($21,600), according to its 2025 IRS Form 990. Together they received 22% of its itemized 2025 grant dollars.
How large is North American Association of Central Cancer Registries?
North American Association of Central Cancer Registries reported $3.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $4.6M.
What does North American Association of Central Cancer Registries fund?
NAACCR’s stated mission is to develop and promote uniform data standards for cancer registration; provide education and training; certify population-based registries; aggregate and publish data from central cancer registries; and promote the use of cancer surveillance data and systems in cancer control, epidemiologic research, public health programs, and patient care. See mission & focus areas ↑
How do I apply for a grant from North American Association of Central Cancer Registries?
For a listed opportunity, a qualified registry should submit one application through the opportunity’s application process. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is North American Association of Central Cancer Registries's EIN?
North American Association of Central Cancer Registries's EIN (Employer Identification Number) is 77-0324654. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Here's the math on researching North American Association of Central Cancer Registries by hand.
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