TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$366K
+24.8% YoY
Revenue
$308K
+27.5% YoY
Net Investment Income
$9K
+19.1% YoY
Expenses
$253K
-3.8% YoY
About Neurofibromatosis Midwest
Based on IRS filings
Neurofibromatosis Midwest is a nonprofit organization focused on Medical Research, based in ST CHARLES, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $366K in total assets. Net investment income was $9K.
Focus Areas
Ready to take the next step with Neurofibromatosis Midwest?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $366,270 | $293,598 | $317,579 |
| Revenue | $307,665 | $241,223 | $220,690 |
| Expenses | $252,673 | $262,588 | $218,142 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $8,627 | $7,244 | $3,042 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Open Grants
1 open opportunity from Neurofibromatosis Midwest
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DENISE DULCEAK | BOARD CHAIR | 1 | — |
| DIANA HABERKAMP | EXECUTIVE DI | 40 | — |
| GAIL MAVROGENES | BOARD MEMBER | 1 | — |
| ANDY RINGO | TREASURER | 1 | — |
| LESLI WEGNER | SECRETARY | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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