Neurodegenerative Disease ResearchInc
Our goal is to facilitate research that will bring new treatments to those suffering from neurodegenerative diseases. We fund researchers that have projects intended to bring new hope to ALS patients.
Neurodegenerative Disease ResearchInc at a glance
- Total assets
- $14,852
- -94.0% vs 2024
- Revenue (2025)
- $385
- -100.0% vs 2024
- Expenses (2025)
- $234,236
- -84.8% vs 2024
- Latest 990 filing
- Form 990-EZ, 2025 View filing
Data from IRS Form 990-EZ, 2025; updated September 2026.
Who Neurodegenerative Disease ResearchInc funds
How this funder distributes its grants
Grant Size Distribution
20 grants across all recorded years
The most common grant size was under $50K: 7 grants of 20 (35%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How Neurodegenerative Disease ResearchInc gives
- Giving fell 82% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $616K (2024) to $3.3M (2021). In 2024 it made 2 grants totaling $616K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Rho Worldwide Inc Durham, NC | Medical research | $609,817 |
| University of Florida Research Foun Gainesville, FL | Medical research | $6,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $14,852 | $385 | $234,236 | — | — | — |
| 2024 | $248,396 | $1,561,118 | $1,540,222 | $615,817 | 2 | — |
| 2023 | $227,525 | $1,814,325 | $2,138,891 | $640,419 | 2 | $29 |
| 2022 | $563,346 | $4,274,249 | $4,380,443 | $1,918,199 | 9 | $273 |
| 2021 | $603,568 | $3,928,115 | $4,384,392 | $3,343,173 | 7 | $491 |
| 2020 | $1,063,188 | $3,250,647 | $2,190,895 | $1,752,974 | 9 | $647 |
About Neurodegenerative Disease ResearchInc
Based on IRS filings
Neurodegenerative Disease ResearchInc is a public charity focused on Medical Research, based in Reddick, FL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $15K in total assets.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Neurodegenerative Disease ResearchInc is led by Siobhan Ellison, President & CEO on every filing since 2020; none of the 3 officers listed in 2025 report compensation.
Officers on the 2025 filing
Siobhan Ellison
President & CEO
On filings since 2020
40 hrs/week
$100K (2020) → $0 (2025)
Bill Killeen
Vice President
Director → Vice President, 2024
On filings since 2020
6 hrs/week
No compensation reported
Julie Osborne
Board Member
Secretary → Board Member, 2024
On filings since 2020
6 hrs/week
No compensation reported
Former officers (1)
- Former: Lindsay Helms (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $150K, to Siobhan Ellison (President and CEO).
Frequently asked questions about Neurodegenerative Disease ResearchInc
How large is Neurodegenerative Disease ResearchInc?
Neurodegenerative Disease ResearchInc reported $15K in total assets on its 2025 IRS Form 990-EZ. Its revenue that year was $385.
What is Neurodegenerative Disease ResearchInc?
Neurodegenerative Disease ResearchInc is a public charity focused on Medical Research, based in Reddick, FL. It holds $15K in total assets as of 2025.
Where does Neurodegenerative Disease ResearchInc operate?
Neurodegenerative Disease ResearchInc has awarded grants in California, District of Columbia, Florida, Georgia, Illinois, Indiana, Maryland, North Carolina, New York, Pennsylvania, Texas.
What is Neurodegenerative Disease ResearchInc's EIN?
Neurodegenerative Disease ResearchInc's EIN (Employer Identification Number) is 85-0520661. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 27, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS April 8, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS March 28, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS September 5, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 30, 2025)
- Added Form 990-EZ for fiscal year 2025 (received by the IRS August 7, 2026)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Neurodegenerative Disease ResearchInc funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Neurodegenerative Disease ResearchInc's focus areas in our free grants database
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Neurodegenerative Disease ResearchInc down — hundreds of funders to go?