National Tay-sachs & Allied Diseases Ass
NTSAD LEADS THE WORLDWIDE FIGHT TO TREAT AND CURE TAY-SACHS, CANAVAN, GM1, AND SANDHOFF DISEASES BY DRIVING RESEARCH, FORGING COLLABORATIION, AND FOSTERING COMMUNITY, SUPPORTING FAMILIES IS THE CENTER OF EVERYTHING WE DO.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$2.8M
-2.9% YoY
Revenue
$1.4M
+1.5% YoY
Net Investment Income
$66K
-10.6% YoY
Expenses
$1.4M
+7.8% YoY
About National Tay-sachs & Allied Diseases Ass
Based on IRS filings
National Tay-sachs & Allied Diseases Ass is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BRIGHTON, MA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $2.8M in total assets. Net investment income was $66K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,769,718 | $2,853,352 | $2,868,442 |
| Revenue | $1,397,598 | $1,376,815 | $1,177,492 |
| Expenses | $1,448,700 | $1,344,428 | $1,507,806 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $65,747 | $73,557 | $37,785 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
7 grants across all recorded years
Open Grants
2 open opportunities from National Tay-sachs & Allied Diseases Ass
Gottlieb Sibling Scholarships (Jeffrey Alan and Stanley N. Gottlieb Memorial Scholarship Funds)
NATIONAL TAY-SACHS & ALLIED DISEASES ASS
Amount
Varies
Deadline
January 3, 2027
NTSAD Research Initiative Program
NATIONAL TAY-SACHS & ALLIED DISEASES ASS
Amount
$2,000 - $75,000 (one year); $20,000 - $140,000 (two years)
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ORALEA MARQUARDT | DIRECTOR | 2.5 | — |
| SARA SCAPAROTTI | PRESIDENT | 2.5 | — |
| MICHAEL RICHARDS | TREASURER | 2.5 | — |
| LISAJANE ROMER | SECRETARY | 2.5 | — |
| LAUREN CELANO | DIRECTOR | 2.5 | — |
| MATTHEW GOLDSTEIN | DIRECTOR | 2.5 | — |
| GERRY COX | DIRECTOR | 2.5 | — |
| BONNIE DAVIS | DIRECTOR | 2.5 | — |
| AMBER FRANZEN | DIRECTOR | 2.5 | — |
| STACI KALLISH | DIRECTOR | 2.5 | — |
| JONATHAN KATZ | DIRECTOR | 2.5 | — |
| MARTHA KLEINMAN | DIRECTOR | 2.5 | — |
| DAWN LANEY | DIRECTOR | 2.5 | — |
| JONATHAN LAWRENCE | VICE PRESIDENT | 2.5 | — |
| JAMIE RING | DIRECTOR | 2.5 | — |
| SUSAN RODEN | DIRECTOR | 2.5 | — |
| ABBY ROGERS | DIRECTOR | 2.5 | — |
| DEBORAH SANDERS | DIRECTOR | 2.5 | — |
| CARLA STECKMAN | DIRECTOR | 2.5 | — |
| KATHLEEN FLYNN | CEO | 40 | $169,733 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is National Tay-sachs & Allied Diseases Ass?
National Tay-sachs & Allied Diseases Ass is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BRIGHTON, MA. It holds $2.8M in total assets as of 2025.
How large is National Tay-sachs & Allied Diseases Ass?
As of 2025, National Tay-sachs & Allied Diseases Ass holds $2.8M in total assets with $1.4M in annual revenue.
Where does National Tay-sachs & Allied Diseases Ass operate?
National Tay-sachs & Allied Diseases Ass has awarded grants in Alabama, Massachusetts, Maryland, Missouri, Tennessee.
What is National Tay-sachs & Allied Diseases Ass's EIN?
National Tay-sachs & Allied Diseases Ass's EIN (Employer Identification Number) is 13-1912877. IRS Form 990 filing data is available on this page for 2020–2025.
Explore Open Grants
Browse active grant opportunities in National Tay-sachs & Allied Diseases Ass's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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