OUR MISSION IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PKU, PURSUE A CURE BY EXPANDING RESEARCH AND PROVIDE EDUCATION AND SUPPORT TO INDIVIDUALS LIVING WITH PKU AND THEIR CAREGIVERS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$5.3M
+11.7% YoY
Annual Giving
$258K
-37.9% YoY
Grant Count
2
-50.0% YoY
Avg Grant Size
$129K
+24.2% YoY
About National Pku Alliance Inc
Based on IRS filings
National Pku Alliance Inc is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.3M in total assets. In 2024, it awarded 2 grants totaling $258K. Net investment income was $440K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,311,012 | $4,756,738 | $4,987,467 |
| Revenue | $2,563,389 | $1,305,823 | $2,213,963 |
| Expenses | $2,131,703 | $1,874,560 | $1,806,805 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $439,923 | $143,457 | $32,422 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
18 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Oregon Health and Science University ($249,362), Maryland Alliance of Pku Families Inc ($8,440).
| Recipient | Purpose | Amount |
|---|---|---|
| OREGON HEALTH AND SCIENCE UNIVERSITY PORTLAND, OR | PKU RESEARCH | $249,362 |
| MARYLAND ALLIANCE OF PKU FAMILIES INC PASADENA, MD | PKU RESEARCH | $8,440 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| RHONDA CONNOLLY | PRESIDENT | 10 | — |
| ELIZABETH ASELAGE | VICE PRESIDENT | 2 | — |
| ALISON REYNOLDS | SECRETARY | 2 | — |
| DAN LAZZARI | TREASURER | 2 | — |
| CHRISTINA LOVE | DIRECTOR | 2 | — |
| CHARLES BUCKLER | DIRECTOR | 2 | — |
| MARK GRALEN | DIRECTOR | 2 | — |
| MICHAEL FINKEL | DIRECTOR | 2 | — |
| SUSAN BERRY | DIRECTOR | 2 | — |
| LILLIAN ISABELLA | DIRECTOR | 2 | — |
| HEIDI MAXFIELD | DIRECTOR | 2 | — |
| ADAM SHERMAN | DIRECTOR | 2 | — |
| LISA MILBERG THRU MAY 24 | EXECUTIVE DIRECTOR | 40 | $97,163 |
| CATHERINE WARREN | EXECUTIVE DIRECTOR | 40 | $118,346 |
| SUSAN GRAY | DIRECTOR OF DEVELOPMENT | 40 | $140,372 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is National Pku Alliance Inc?
National Pku Alliance Inc is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. It holds $5.3M in total assets as of 2024.
How large is National Pku Alliance Inc?
As of 2024, National Pku Alliance Inc holds $5.3M in total assets with $2.6M in annual revenue. It awarded 2 grants totaling $258K in 2024.
Where does National Pku Alliance Inc operate?
National Pku Alliance Inc has awarded grants in California, Massachusetts, Maryland, Missouri, Oregon, Pennsylvania.
What size grants does National Pku Alliance Inc award?
In 2024, National Pku Alliance Inc awarded 2 grants totaling $258K — an average of about $129K per grant, based on its IRS Form 990 filings.
What is National Pku Alliance Inc's EIN?
National Pku Alliance Inc's EIN (Employer Identification Number) is 26-2849140. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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