National Pku Alliance Inc
OUR MISSION IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PKU, PURSUE A CURE BY EXPANDING RESEARCH AND PROVIDE EDUCATION AND SUPPORT TO INDIVIDUALS LIVING WITH PKU AND THEIR CAREGIVERS.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$5.3M
+11.7% YoY
Annual Giving
$258K
-37.9% YoY
Grant Count
2
-50.0% YoY
Avg Grant Size
$129K
+24.2% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,311,012 | $4,756,738 | $4,987,467 |
| Revenue | $2,563,389 | $1,305,823 | $2,213,963 |
| Expenses | $2,131,703 | $1,874,560 | $1,806,805 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $439,923 | $143,457 | $32,422 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
18 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does National Pku Alliance Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| RHONDA CONNOLLY | PRESIDENT | 10 | — |
| ELIZABETH ASELAGE | VICE PRESIDENT | 2 | — |
| ALISON REYNOLDS | SECRETARY | 2 | — |
| DAN LAZZARI | TREASURER | 2 | — |
| CHRISTINA LOVE | DIRECTOR | 2 | — |
| CHARLES BUCKLER | DIRECTOR | 2 | — |
| MARK GRALEN | DIRECTOR | 2 | — |
| MICHAEL FINKEL | DIRECTOR | 2 | — |
| SUSAN BERRY | DIRECTOR | 2 | — |
| LILLIAN ISABELLA | DIRECTOR | 2 | — |
| HEIDI MAXFIELD | DIRECTOR | 2 | — |
| ADAM SHERMAN | DIRECTOR | 2 | — |
| LISA MILBERG THRU MAY 24 | EXECUTIVE DIRECTOR | 40 | $97,163 |
| CATHERINE WARREN | EXECUTIVE DIRECTOR | 40 | $118,346 |
| SUSAN GRAY | DIRECTOR OF DEVELOPMENT | 40 | $140,372 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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