National Gaucher Foundation Inc
Raise funds to promote education and awareness; meet ever-increasing needs of individuals with gaucher disease and their families.
National Gaucher Foundation Inc at a glance
- Total assets
- $801,379
- +17.2% vs 2023
- Revenue (2024)
- $391,582
- -15.6% vs 2023
- Net investment income (2024)
- $28,185
- +98.5% vs 2023
- Expenses (2024)
- $273,727
- -58.9% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who National Gaucher Foundation Inc funds
How this funder distributes its grants
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $1–5M range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2023, annual grant giving ranged from $85K (2023) to $2.5M (2020). In 2023 it reported $85K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| National Gaucher Care Foundation Inc Rockville, MD | To provide financial assistance with insurance premiums and ancillary expenses related to gaucher disease. | $1,800,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $801,379 | $391,582 | $273,727 | — | — | $28,185 |
| 2023 | $683,972 | $463,859 | $666,746 | $85,000 | Total only | $14,196 |
| 2022 | $934,631 | $1,158,205 | $1,695,253 | $1,125,000 | Total only | $150 |
| 2021 | $1,425,962 | $2,242,536 | $2,519,615 | $1,800,000 | 1 | $3,579 |
| 2020 | $1,767,775 | $3,272,527 | $3,337,066 | $2,500,000 | Total only | $23,707 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About National Gaucher Foundation Inc
Based on IRS filings
National Gaucher Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Rockville, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $801K in total assets. Net investment income was $28K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
National Gaucher Foundation Inc is led by Brian Berman, President on every filing since 2020; none of the 3 officers listed in 2024 report compensation.
Officers on the 2024 filing
Brian Berman
President
On filings since 2020
8 hrs/week
$200K (2020) → $0 (2024)
Samantha Rubenstein
Vice President
On filings since 2023
2 hrs/week
No compensation reported
Saul Yanovich
Secretary
On filings since 2023
2 hrs/week
No compensation reported
Former officers (3)
- Former: Amy Blum (2020–2022) — Chief Operating Officer
- Former: Dennis L. Berman (2020–2022) — Treasurer
- Former: Robin A. Ely MD (2020–2022) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2022 IRS filing
The highest reported compensation on the 2022 filing was $112K, to Amy Blum (Chief Operating Officer).
Frequently asked questions about National Gaucher Foundation Inc
How large is National Gaucher Foundation Inc?
National Gaucher Foundation Inc reported $801K in total assets on its 2024 IRS Form 990. Its revenue that year was $392K.
What is National Gaucher Foundation Inc?
National Gaucher Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Rockville, MD. It holds $801K in total assets as of 2024.
Where does National Gaucher Foundation Inc operate?
National Gaucher Foundation Inc has awarded grants in Maryland.
What is National Gaucher Foundation Inc's EIN?
National Gaucher Foundation Inc's EIN (Employer Identification Number) is 52-1350226. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS September 23, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 6, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 26, 2024)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in National Gaucher Foundation Inc's focus areas in our free grants database
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Figures come from National Gaucher Foundation Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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