Mucolipidosis Type IV Foundation Inc
The Mucolipidosis Type IV Foundation operates to raise contributions from individuals and companies in order to fund medical research grants. All medical reserach grants are provided to researchers studying the cause and symptoms of mucolipidosis type iv with the hope of finding a cure for this disease.
Mucolipidosis Type IV Foundation Inc at a glance
In short: Mucolipidosis Type IV Foundation Inc gave $2.7M across 2 grants in 2024 (avg $1.3M), mostly in Massachusetts. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $2,666,142
- +1329.7% vs 2023
- Grants made (2024)
- 2
- +100.0% vs 2023
- Average grant
- $1,333,071
- +614.8% vs 2023
- Median grant
- $1,333,071
- Total assets
- $2,166,558
- +46.6% vs 2023
- Primary geography
- Massachusetts (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Mucolipidosis Type IV Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was UMass Chan Medical School ($1.9M). Together the top 2 received $2.7M.
Grant Size Distribution
6 grants across all recorded years
The most common grant size was in the $100–250K range: 2 grants of 6 (33%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
States
Cities
How Mucolipidosis Type IV Foundation Inc gives
- Giving grew 443% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $186K (2023) to $2.7M (2024). In 2024 it made 2 grants totaling $2.7M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UMass Chan Medical School Worcester, MA | Research for Treatment of ML4 Disease | $1,948,905 |
| Massachussets General Hospital Boston, MA | Research for Treatment of ML4 Disease | $717,237 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2024 | $2,166,558 | $3,776,356 | $3,084,160 | $2,666,142 | 2 |
| 2023 | $1,477,459 | $1,080,997 | $656,195 | $186,485 | 1 |
| 2022 | $1,047,509 | $860,271 | $653,162 | $391,347 | 1 |
| 2021 | $839,865 | $676,492 | $715,602 | $490,670 | 1 |
| 2020 | $905,712 | $652,541 | $442,280 | $224,461 | 1 |
About Mucolipidosis Type IV Foundation Inc
Based on IRS filings
Mucolipidosis Type IV Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Atlanta, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.2M in total assets. In 2024, it awarded 2 grants totaling $2.7M.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Mucolipidosis Type IV Foundation Inc is led by Rebecca Oberman, Executive Director on every filing since 2020; 1 of 7 officers listed in 2024 is compensated.
Officers on the 2024 filing
Rebecca Oberman
Executive Director
On filings since 2020
40 hrs/week
$166K (2020) → $214K (2024)
Randy Gold
President Treasurer
On filings since 2020
5 hrs/week
No compensation reported
Caroline Gold
Secretary
On filings since 2020
2 hrs/week
No compensation reported
Debra Goldschmidt
Board Member
On filings since 2020
2 hrs/week
No compensation reported
Michael Friedman
Board Member
On filings since 2020
2 hrs/week
No compensation reported
Nathaniel Fernhoff
Board Member
On filings since 2020
2 hrs/week
No compensation reported
Paula Kutner
Board Member
On filings since 2020
2 hrs/week
No compensation reported
Former officers (1)
- Former: Janet Price (2020–2021) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $214K, to Rebecca Oberman (Executive Director).
Frequently asked questions about Mucolipidosis Type IV Foundation Inc
How much does Mucolipidosis Type IV Foundation Inc give each year?
Mucolipidosis Type IV Foundation Inc gave $2.7M across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $186K across 1 grant.
How large is Mucolipidosis Type IV Foundation Inc?
Mucolipidosis Type IV Foundation Inc reported $2.2M in total assets on its 2024 IRS Form 990. Its revenue that year was $3.8M.
What is Mucolipidosis Type IV Foundation Inc?
Mucolipidosis Type IV Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Atlanta, GA. It holds $2.2M in total assets as of 2024.
Where does Mucolipidosis Type IV Foundation Inc operate?
Mucolipidosis Type IV Foundation Inc has awarded grants in Massachusetts.
What is Mucolipidosis Type IV Foundation Inc's EIN?
Mucolipidosis Type IV Foundation Inc's EIN (Employer Identification Number) is 13-3633501. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 16, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 13, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 11, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 16, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Mucolipidosis Type IV Foundation Inc's focus areas in our free grants database
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