Midwest Rett Syndrome Foundation
Midwest Rett Syndrome Foundation is a private foundation, based in Brooklyn Park, MN. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $49K in total assets. In 2024, it awarded 1 grant totaling $60K.
Midwest Rett Syndrome Foundation at a glance
In short: Midwest Rett Syndrome Foundation gave $60K across 1 grant in 2024 (avg $60K), mostly in Ohio. Source: 2024 IRS Form 990-PF.
- Annual giving (2024)
- $60,000
- +0.0% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $60,000
- +0.0% vs 2023
- Median grant
- $60,000
- Total assets
- $49,228
- +103.3% vs 2023
- Primary geography
- Ohio (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990-PF, 2024 View filing
Data from IRS Form 990-PF, 2024; updated September 2026.
Who Midwest Rett Syndrome Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was International Rett Syndrome Foundat ($60K).
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 5 (60%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
Cities
How Midwest Rett Syndrome Foundation gives
- In 2024 it paid out well above its IRS minimum distribution (the 5% rule). Method
From the foundation's IRS Form 990-PF filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $30K (2020) to $100K (2022). In 2024 it made 1 grant totaling $60K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| International Rett Syndrome Foundat Cinnati, OH | Research | $60,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Distributable Amount |
|---|---|---|---|---|---|---|---|
| 2024 | $49,228 | $122,235 | $97,226 | $60,000 | 1 | $95,580 | $2,612 |
| 2023 | $24,219 | $42,634 | $79,670 | $60,000 | 1 | $78,546 | $2,981 |
| 2022 | $61,255 | $136,769 | $133,019 | $100,000 | 2 | $132,353 | $3,229 |
| 2021 | $57,505 | $8,460 | $13,746 | — | — | $13,685 | $3,005 |
| 2020 | $62,791 | $31,942 | $42,849 | $30,000 | 1 | — | $4,245 |
Under IRS private-foundation payout rules, Midwest Rett Syndrome Foundation reported a distributable amount of $3K for 2024 — the minimum it must pay out in qualifying distributions.
Leadership & Key People
Officers and directors from IRS filings
Midwest Rett Syndrome Foundation is led by Mitch Bleske, President since 2023 (on filings since 2022); none of the 10 officers listed in 2024 report compensation.
Officers on the 2024 filing
Mitch Bleske
President
Treasurer → President, 2023
On filings since 2022
2 hrs/week
No compensation reported
Lisa Evert
Board Member
President → Board Member, 2023
On filings since 2020
0.5 hrs/week
No compensation reported
Luke Knutson
Treasurer
Secretary → Board Member, 2022
Board Member → Treasurer, 2023
On filings since 2020
1 hr/week
No compensation reported
Brandon Hofer
Vice President
Board Member → Vice President, 2023
On filings since 2022
1 hr/week
No compensation reported
Matt Dahms
Board Member
On filings since 2022
0.5 hrs/week
No compensation reported
Matt Knutson
Secretary
On filings since 2022
1 hr/week
No compensation reported
Kayla Stielow
Board Member
On filings since 2023
0.5 hrs/week
No compensation reported
Julie Evers
Board Member
New on the 2024 filing
0.5 hrs/week
No compensation reported
Lexi Deitchler
Board Member
New on the 2024 filing
0.5 hrs/week
No compensation reported
Sami Morris
Board Member
New on the 2024 filing
0.5 hrs/week
No compensation reported
Former officers (3)
- Former: Daniel Brinkhaus (2020–2023) — Board Member
- Former: Maryann Nelson (2020–2023) — Board Member
- Former: Kevin Streifel (2022–2023) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Midwest Rett Syndrome Foundation
How much does Midwest Rett Syndrome Foundation give each year?
Midwest Rett Syndrome Foundation gave $60K across 1 grant in 2024, according to its 2024 IRS Form 990-PF. In 2023 it gave $60K across 1 grant.
How large is Midwest Rett Syndrome Foundation?
Midwest Rett Syndrome Foundation reported $49K in total assets on its 2024 IRS Form 990-PF. It paid out $96K in qualifying distributions that year, against a required minimum of $3K (roughly 5% of its investment assets).
Where does Midwest Rett Syndrome Foundation operate?
Midwest Rett Syndrome Foundation has awarded grants in Minnesota, Ohio.
What is Midwest Rett Syndrome Foundation's EIN?
Midwest Rett Syndrome Foundation's EIN (Employer Identification Number) is 04-3737935. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990-PF filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Midwest Rett Syndrome Foundation funds
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