Macular Degeneration Foundation Inc
To educate and support those who suffer from macular degeneration by providing informationm resources working with low vision centers to recycle donated lowvision deviices providing low cost magnification funding grants for support groups and to further research to restore vision
Macular Degeneration Foundation Inc at a glance
In short: Macular Degeneration Foundation Inc gave $272K across 6 grants in 2025 (avg $45K), top state Alabama. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $272,000
- +15.7% vs 2024
- Grants made (2025)
- 6
- +0.0% vs 2024
- Average grant
- $45,333
- +15.7% vs 2024
- Median grant
- $48,500
- Total assets
- $4,576,403
- +2.4% vs 2024
- Primary geography
- Alabama (29% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Macular Degeneration Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Community Services for Vision Rehabilitation ($80K). Together the top 6 received $272K.
Grant Size Distribution
30 grants across all recorded years
The most common grant size was under $50K: 20 grants of 30 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
Cities
How Macular Degeneration Foundation Inc gives
- Giving held roughly steady from 2022 to 2025 (+8%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $142K (2021) to $272K (2025). In 2025 it made 6 grants totaling $272K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Community Services for Vision Rehabilitation Mobile, AL | Education Support and training on low vision devices and products for independent living | $80,000 |
| SUNY at Buffalo Research Foundation Amherst, NY | Research Grant Epigenetic Architecture of the RPE and Choroid Identification of Therapeutic Targets for AMe | $75,000 |
| Greater Detroit Agency for Blind and Visually Impaired Southfield, MI | Low Vision Activities of Daily Living ADL Technology Training and Orientation & Mobility Program | $57,000 |
| MD Support Lees Summit, MO | program for macular degeneration support groups travel to related conferences | $40,000 |
| VIS Group Crossville, TN | 1 InSight on Vision Conference 2 Office Maintenance 3 Community CCTV Project 4 Equipment On-Loan Program 5 Media Publicity and 6 TN Council of the Blind | $10,000 |
| Detroit Institute of Ophthalmology Grosse Pointe Park, MI | sponsor the World Research Congress The Eye and The Chip and the Brain | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $4,576,403 | $654,051 | $681,790 | $272,000 | 6 | $124,758 |
| 2024 | $4,470,012 | $833,215 | $678,654 | $235,000 | 6 | $128,644 |
| 2023 | $4,117,522 | $116,476 | $600,881 | $180,000 | 7 | — |
| 2022 | $4,601,927 | $974,717 | $667,651 | $251,200 | 6 | $116,619 |
| 2021 | $4,967,274 | $594,248 | $416,066 | $142,484 | 5 | $185,165 |
| 2020 | $4,331,605 | $606,919 | $500,792 | $232,023 | 7 | $157,819 |
About Macular Degeneration Foundation Inc
Based on IRS filings
Macular Degeneration Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Henderson, NV. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $4.6M in total assets. In 2025, it awarded 6 grants totaling $272K. Net investment income was $125K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Macular Degeneration Foundation Inc is led by Betty Trauernicht, President CEO on every filing since 2020; all 5 officers listed in 2025 are compensated.
Officers on the 2025 filing
Betty Trauernicht
President CEO
On filings since 2020
40 hrs/week
$33K (2020) → $62K (2025)
Julie Zavala
Secretary Director of Operations
Director of Operations → Secretary Director of Operations, 2022
On filings since 2020
40 hrs/week
$73K (2020) → $85K (2025)
Rylee Zavala
Director Community Outreach
On filings since 2022
32 hrs/week
$13K (2022) → $40K (2025)
Keith Colgan
Vice President Director of It
It Director → Vice President Director of It, 2022
On filings since 2020
20 hrs/week
$30K (2020) → $35K (2025)
David Seftel MD
Medical Consultant
Research Director → Medical Consultant, 2025
On filings since 2021
10 hrs/week
$30K (2025)
Former officers (2)
- Former: Marybeth Sundstrom (2021–2022) — Treasurer Legal Counsel
- Former: Marybeth Sundstrom-Westmeyer (2020) — Legal Council Treasurer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $85K, to Julie Zavala (Secretary Director of Operations). 5 officers or directors reported compensation on that filing.
Frequently asked questions about Macular Degeneration Foundation Inc
How much does Macular Degeneration Foundation Inc give each year?
Macular Degeneration Foundation Inc gave $272K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $235K across 6 grants.
What is Macular Degeneration Foundation Inc's typical grant size?
Macular Degeneration Foundation Inc's median grant in 2025 was $48,500, and its average grant was $45,333, across 6 grants on its 2025 IRS Form 990.
Where does Macular Degeneration Foundation Inc give grants?
Macular Degeneration Foundation Inc's top state is Alabama, with 29% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were New York (28%) and Michigan (25%).
Does Macular Degeneration Foundation Inc give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on Macular Degeneration Foundation Inc's 2025 IRS Form 990 were described as general or operating support.
Who are Macular Degeneration Foundation Inc's largest grantees?
Macular Degeneration Foundation Inc's largest 2025 grantees include Community Services for Vision Rehabilitation ($80,000), SUNY at Buffalo Research Foundation ($75,000) and Greater Detroit Agency for Blind and Visually Impaired ($57,000), according to its 2025 IRS Form 990. Together they received 78% of its itemized 2025 grant dollars.
How large is Macular Degeneration Foundation Inc?
Macular Degeneration Foundation Inc reported $4.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $654K.
What is Macular Degeneration Foundation Inc?
Macular Degeneration Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Henderson, NV. It holds $4.6M in total assets as of 2025.
What is Macular Degeneration Foundation Inc's EIN?
Macular Degeneration Foundation Inc's EIN (Employer Identification Number) is 65-0403437. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS January 20, 2023)
- Updated Form 990 for fiscal year 2021 (received by the IRS December 19, 2022)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 13, 2025)
- Updated Form 990 for fiscal year 2022 (received by the IRS March 28, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 2, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS May 7, 2026)
- IRS filings on file for fiscal years 2020–2024
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Macular Degeneration Foundation Inc down — hundreds of funders to go?