Lymphangiomatosis & Gorhams Disease Alliance Inc
Lymphangiomatosis & Gorhams Disease Alliance Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in SAINT PETERSBURG, FL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $354K in total assets.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$354K
-8.4% YoY
Revenue
$119K
-56.1% YoY
Net Investment Income
—
-100.0% YoY
Expenses
$153K
-50.7% YoY
About Lymphangiomatosis & Gorhams Disease Alliance Inc
Based on IRS filings
Lymphangiomatosis & Gorhams Disease Alliance Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in SAINT PETERSBURG, FL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $354K in total assets.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $353,825 | $386,253 | $421,865 |
| Revenue | $118,890 | $271,042 | $121,403 |
| Expenses | $153,100 | $310,725 | $280,940 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | — | $5,655 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
6 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| LOUISE MURGIA | DIRECTOR OF OPERATIONS | 40 | $64,608 |
| MICHAEL KELLY | EXECUTIVE DIRECTOR | 20 | $3,125 |
| SCOTT WEISNER | PRESIDENT | 2 | — |
| SCOTT GOLDFARB | TREASURER | 2 | — |
| TIFFANY FERRY | BOARD MEMBER | 2 | — |
| MITCH MAERSCH | BOARD MEMBER | 2 | — |
| SEAN CHASTAIN | BOARD MEMBER | 2 | — |
| KEVIN MARTIN | BOARD MEMBER | 2 | — |
| SAMIRA FAROUNI | BOARD MEMBER | 2 | — |
| OFELIA RODRIGUEZ NIEVAS | BOARD MEMBER | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Lymphangiomatosis & Gorhams Disease Alliance Inc?
Lymphangiomatosis & Gorhams Disease Alliance Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in SAINT PETERSBURG, FL. It holds $354K in total assets as of 2025.
How large is Lymphangiomatosis & Gorhams Disease Alliance Inc?
As of 2025, Lymphangiomatosis & Gorhams Disease Alliance Inc holds $354K in total assets with $119K in annual revenue.
Where does Lymphangiomatosis & Gorhams Disease Alliance Inc operate?
Lymphangiomatosis & Gorhams Disease Alliance Inc has awarded grants in Maryland, Oregon, Pennsylvania.
What is Lymphangiomatosis & Gorhams Disease Alliance Inc's EIN?
Lymphangiomatosis & Gorhams Disease Alliance Inc's EIN (Employer Identification Number) is 26-1224181. IRS Form 990 filing data is available on this page for 2020–2025.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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