International Society of Amyloidosis logo

International Society of Amyloidosis

Foundation · Grantmaker BURNSVILLE, MN EIN: 54-2153449 Website

To promote research, education, clinical studies (including diagnosis and treatment), conferences and symposia on all aspects of amyloidosis worldwide.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$2.5M

+242.0% YoY

Annual Giving

$219K

Grant Count

2

Avg Grant Size

$110K

About International Society of Amyloidosis

Based on IRS filings

International Society of Amyloidosis is a nonprofit organization focused on Medical Research, based in BURNSVILLE, MN. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $2.5M in total assets. In 2024, it awarded 2 grants totaling $219K. Net investment income was $36K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

2states

Cities

BostonRedwood

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$633K$1M$2M$3M2021202220232024
Metric202420232022
Total Assets$2,489,452$727,899$355,375
Revenue$2,301,926$697,376$130,581
Expenses$641,451$300,698$131,520
Qualifying Distributions
Net Investment Income$35,949$4,582
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$55K$110K$164K$219K0 grants20210 grants20220 grants20232 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

The Board of Trustees of…$111KNYU School of Medicine$108K

Grant Size Distribution

2 grants across all recorded years

<$50K$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include The Board of Trustees of the Leland Stanford Junior University ($111,415), NYU School of Medicine ($107,779).

RecipientPurposeAmount
NYU School of Medicine Boston, MAFellowship Program 2024-2025 Year$107,779
The Board of Trustees of the Leland Stanford Junior University Redwood, CAFellowship Program 2024-2025 Year$111,415

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
Shaji KumarPresident2
Stefan SchoenlandPast President2
Yoshiki SekijimaVice President/President-Elect2
Mathew MaurerSecretary1
Anita D'SouzaTreasurer1
Efstathios KastritisMember at Large0.5
Lisa MendelsonMember at Large0.5
Hironobu NaikeRepresentative of the Japanese Society0.5
Maite Teresa CibeiraMember at Large0.5
Eloisa RivaMember at Large0.5
Giovanni PalladiniRepresentative of the German Society0.5
Alexander CarpintieroRepresentative of the Italian Society0.5
Mona JohnsonExecutive Director20

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is International Society of Amyloidosis?

International Society of Amyloidosis is a nonprofit organization focused on Medical Research, based in BURNSVILLE, MN. It holds $2.5M in total assets as of 2024.

How large is International Society of Amyloidosis?

As of 2024, International Society of Amyloidosis holds $2.5M in total assets with $2.3M in annual revenue. It awarded 2 grants totaling $219K in 2024.

Where does International Society of Amyloidosis operate?

International Society of Amyloidosis has awarded grants in California, Massachusetts.

What size grants does International Society of Amyloidosis award?

In 2024, International Society of Amyloidosis awarded 2 grants totaling $219K — an average of about $110K per grant, based on its IRS Form 990 filings.

What is International Society of Amyloidosis's EIN?

International Society of Amyloidosis's EIN (Employer Identification Number) is 54-2153449. IRS Form 990 filing data is available on this page for 2021–2024.

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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