International Society of Amyloidosis
ISA is the leading global organization dedicated to engaging with scientists, healthcare providers, patients and other stakeholders to provide education, raise awareness and advance research and multidisciplinary clinical practice for all types of amyloidosis.
International Society of Amyloidosis at a glance
In short: International Society of Amyloidosis reported $80K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.
- Grants paid (2025)
- $80,227 — reported as a total on the IRS filing, without an itemized list
- -63.4% vs 2024
- Total assets
- $2,923,349
- +17.4% vs 2024
- Revenue (2025)
- $946,221
- -58.9% vs 2024
- Net investment income (2025)
- $72,123
- +100.6% vs 2024
- Expenses (2025)
- $616,862
- -3.8% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who International Society of Amyloidosis funds
How this funder distributes its grants
Grant Size Distribution
2 grants across all recorded years
The most common grant size was in the $100–250K range: 2 grants of 2 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2025, annual grant giving ranged from $10K (2023) to $219K (2024). In 2025 it reported $80K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The Board of Trustees of the Leland Stanford Junior University Redwood, CA | Fellowship Program 2024-2025 Year | $111,415 |
| NYU School of Medicine Boston, MA | Fellowship Program 2024-2025 Year | $107,779 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $2,923,349 | $946,221 | $616,862 | $80,227 | Total only | $72,123 |
| 2024 | $2,489,452 | $2,301,926 | $641,451 | $219,194 | 2 | $35,949 |
| 2023 | $727,899 | $697,376 | $300,698 | $10,123 | Total only | $4,582 |
| 2022 | $355,375 | $130,581 | $131,520 | — | — | — |
| 2021 | $355,913 | $248,977 | $89,134 | — | — | — |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About International Society of Amyloidosis
Based on IRS filings
International Society of Amyloidosis is a public charity focused on Medical Research, based in Burnsville, MN. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $2.9M in total assets. In 2025, it reported $80K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $72K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
International Society of Amyloidosis is led by Mona Johnson, Executive Director on every filing since 2024; 1 of 12 officers listed in 2025 is compensated.
Officers on the 2025 filing
Mona Johnson
Executive Director
On filings since 2024
20 hrs/week
$75K (2025)
Shaji Kumar
President
Vice President → President, 2024
On filings since 2021
2 hrs/week
No compensation reported
Efstathios Kastritis
Member at Large
Secretary → Member at Large, 2024
On filings since 2021
0.5 hrs/week
No compensation reported
Eloisa Riva
Member at Large
Director → Member at Large, 2024
On filings since 2021
0.5 hrs/week
No compensation reported
Giovanni Palladini
Representative of the Italian Society
Past President → Representative of the German Society, 2024
Representative of the German Society → Representative of the Italian Society, 2025
On filings since 2021
0.5 hrs/week
No compensation reported
Stefan Schonland
Past President
President → Past President, 2024
On filings since 2021
2 hrs/week
No compensation reported
Yoshiki Sekijima
Vice President
Director → Vice President & President-Elect, 2024
Vice President & President-Elect → Vice President, 2025
On filings since 2021
2 hrs/week
No compensation reported
Anita D'Souza
Treasurer
On filings since 2023
1 hr/week
No compensation reported
Alexander Carpintiero
Representative of the German Society
Representative of the Italian Society → Representative of the German Society, 2025
On filings since 2024
0.5 hrs/week
No compensation reported
Lisa Mendelson
Member at Large
On filings since 2024
0.5 hrs/week
No compensation reported
Maite Teresa Cibeira
Member at Large
On filings since 2024
0.5 hrs/week
No compensation reported
Mathew Maurer
Secretary
On filings since 2024
1 hr/week
No compensation reported
Former officers (5)
- Former: Hironobu Naike (2021–2024) — Representative of the Japanese Society
- Former: Eli Muchtar (2021–2023) — Director
- Former: Marina Ramirez-Alvarado (2021–2023) — Treasurer
- Former: Per Westermark (2021–2023) — Director
- Former: Giampaolo Merlini (2021) — Director
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $75K, to Mona Johnson (Executive Director).
Frequently asked questions about International Society of Amyloidosis
How much does International Society of Amyloidosis give each year?
International Society of Amyloidosis reported $80K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants. In 2024 it gave $219K across 2 grants.
How large is International Society of Amyloidosis?
International Society of Amyloidosis reported $2.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $946K.
What is International Society of Amyloidosis?
International Society of Amyloidosis is a public charity focused on Medical Research, based in Burnsville, MN. It holds $2.9M in total assets as of 2025.
Where does International Society of Amyloidosis operate?
International Society of Amyloidosis has awarded grants in California, Massachusetts.
What is International Society of Amyloidosis's EIN?
International Society of Amyloidosis's EIN (Employer Identification Number) is 54-2153449. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS September 16, 2025)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS August 7, 2026)
- IRS filings on file for fiscal years 2021–2024
Explore Open Grants
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International Society of Amyloidosis down — hundreds of funders to go?