International League Against Epilepsy logo

International League Against Epilepsy

WASHINGTON, DC EIN: 52-1298610 Website

The goals of The International League Against Epilepsy are to advance and disseminate knowledge about epilepsy, promote research, education, and training, and improve services and care for patients, especially by prevention, diagnosis and treatment.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$32.3M

+19.6% YoY

Annual Giving

$28K

+40.0% YoY

Grant Count

2

+100.0% YoY

Avg Grant Size

$14K

-30.0% YoY

About International League Against Epilepsy

Based on IRS filings

International League Against Epilepsy is a nonprofit organization focused on Health, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $32.3M in total assets. In 2024, it awarded 2 grants totaling $28K. Net investment income was $494K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

5states

Cities

BronxChicagoClevelandEast GreenwichPittsburgh

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$3M$6M$8M$11M20202021202220232024
Metric202420232022
Total Assets$32,307,875$27,021,568$25,182,697
Revenue$6,105,104$4,857,405$4,579,167
Expenses$6,205,716$5,663,041$5,131,704
Qualifying Distributions
Net Investment Income$493,761$27,815$-72,228
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$7K$14K$21K$28K1 grants20202 grants20210 grants20221 grants20232 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

Gordon Research Conferen…$18KCURE Epilepsy$10K

Grant Size Distribution

6 grants across all recorded years

6<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Justin HawkinsDirector of Finance$147KNancy VolkersCommunications Officer$106K

From 2024 filing

NameTitleHoursCompensation
Samuel WiebePast President3
Helen CrossPresident6
Alla GuekhtTreasurer5
Edward H Bertram IIISecretary General5
Jaideep KapurChair, ILAE-North America1
Jo WilmshurstChair, ILAE-Africa1
John DunneChair, ILAE-Asia Oceania1
Matthew WalkerChair, ILAE-Europe1
Ghaieb Al JandeelChair, ILAE-Eastern Medite1
Roberto CaraballoVice President3
Mario Arturo Alonso VanegasChair, ILAE-Latin America1
Julie HallExecutive Director40
Nancy VolkersCommunications Officer40$105,600
Justin HawkinsDirector of Finance40$147,239

Subject Areas

Focus areas based on grantmaking activity

Related Funders

Similar funders by location and focus area

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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