International League Against Epilepsy
The goals of The International League Against Epilepsy are to advance and disseminate knowledge about epilepsy, promote research, education, and training, and improve services and care for patients, especially by prevention, diagnosis and treatment.
International League Against Epilepsy at a glance
In short: International League Against Epilepsy gave $28K across 2 grants in 2024 (avg $14K), mostly in Rhode Island. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $28,000
- +40.0% vs 2023
- Grants made (2024)
- 2
- +100.0% vs 2023
- Average grant
- $14,000
- -30.0% vs 2023
- Median grant
- $14,000
- Total assets
- $32,307,875
- +19.6% vs 2023
- Primary geography
- Rhode Island (64% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who International League Against Epilepsy funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Gordon Research Conferences ($18K). Together the top 2 received $28K.
Grant Size Distribution
6 grants across all recorded years
The most common grant size was under $50K: 6 grants of 6 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
How International League Against Epilepsy gives
- Giving held roughly steady from 2021 to 2024 (+11%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $15K (2020) to $143K (2022). In 2024 it made 2 grants totaling $28K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Gordon Research Conferences East Greenwich, RI | Education Grant | $18,000 |
| CURE Epilepsy Chicago, IL | EEG machines in Ukraine | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $32,307,875 | $6,105,104 | $6,205,716 | $28,000 | 2 | $493,761 |
| 2023 | $27,021,568 | $4,857,405 | $5,663,041 | $20,000 | 1 | $27,815 |
| 2022 | $25,182,697 | $4,579,167 | $5,131,704 | $142,722 | Total only | $-72,228 |
| 2021 | $28,768,514 | $10,070,838 | $3,636,660 | $25,184 | 2 | $5,503,947 |
| 2020 | $26,560,794 | $4,297,708 | $3,522,688 | $14,960 | 1 | $1,446,951 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About International League Against Epilepsy
Based on IRS filings
International League Against Epilepsy is a public charity focused on Health, based in Washington, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $32.3M in total assets. In 2024, it awarded 2 grants totaling $28K. Net investment income was $494K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
International League Against Epilepsy is led by Helen Cross, President since 2021 (on filings since 2020); 2 of 14 officers listed in 2024 are compensated.
Officers on the 2024 filing
Helen Cross
President
Treasurer → President, 2021
On filings since 2020
6 hrs/week
No compensation reported
Julie Hall
Executive Director
On filings since 2020
40 hrs/week
No compensation reported
Ghaieb Al Jandeel
Chair & Ilae-Eastern Medite
On filings since 2021
1 hr/week
No compensation reported
Jaideep Kapur
Chair & Ilae-North America
On filings since 2021
1 hr/week
No compensation reported
Jo Wilmshurst
Chair & Ilae-Africa
On filings since 2021
1 hr/week
No compensation reported
John Dunne
Chair & Ilae-Asia Oceania
On filings since 2021
1 hr/week
No compensation reported
Mario Arturo Alonso Vanegas
Chair & Ilae-Latin America
On filings since 2021
1 hr/week
No compensation reported
Matthew Walker
Chair & Ilae-Europe
On filings since 2021
1 hr/week
No compensation reported
Justin Hawkins
Director of Finance
New on the 2024 filing
40 hrs/week
$147K (2024)
Nancy Volkers
Communications Officer
On filings since 2021
40 hrs/week
$104K (2021) → $106K (2024)
Alla Guekht
Treasurer
Vice President → Treasurer, 2021
On filings since 2020
5 hrs/week
No compensation reported
Edward H Bertram III
Secretary General
On filings since 2020
5 hrs/week
No compensation reported
Roberto Caraballo
Vice President
Chair & Ilae-Latin America → Vice President, 2021
On filings since 2020
3 hrs/week
No compensation reported
Samuel Wiebe
Past President
President → Past President, 2021
On filings since 2020
3 hrs/week
No compensation reported
Former officers (8)
- Former: Priscilla Shisler (2021–2022) — Director of Engagement & E
- Former: Linda Beza (2022) — Director of Finance
- Former: Akio Ikeda (2020) — Chair & Ilae-Asia Oceania
- Former: Angelina Kakooza (2020) — Chair & Ilae-Africa
- Former: Chahnez Triki (2020) — Chair & Ilae-Eastern Medite
- Former: Emilio Perucca (2020) — Past President
- Former: Eugen Trinka (2020) — Chair & Ilae-Europe
- Former: Nathalie Jette (2020) — Chair & Ilae-America
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $147K, to Justin Hawkins (Director of Finance). 2 officers or directors reported compensation on that filing.
Frequently asked questions about International League Against Epilepsy
How much does International League Against Epilepsy give each year?
International League Against Epilepsy gave $28K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $20K across 1 grant.
How large is International League Against Epilepsy?
International League Against Epilepsy reported $32.3M in total assets on its 2024 IRS Form 990. Its revenue that year was $6.1M.
What is International League Against Epilepsy?
International League Against Epilepsy is a public charity focused on Health, based in Washington, DC. It holds $32.3M in total assets as of 2024.
Where does International League Against Epilepsy operate?
International League Against Epilepsy has awarded grants in Illinois, New York, Ohio, Pennsylvania, Rhode Island.
What is International League Against Epilepsy's EIN?
International League Against Epilepsy's EIN (Employer Identification Number) is 52-1298610. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 13, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in International League Against Epilepsy's focus areas in our free grants database
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