Hereditary Angioedema Association Inc

FAIRFAX, VA EIN: 25-1852548 Website

Health

SEE SCHEDULE O COMMENT.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$21.9M

+33.4% YoY

Annual Giving

$185K

-34.9% YoY

Grant Count

+0.0% YoY

Avg Grant Size

$185K

-34.9% YoY

About Hereditary Angioedema Association Inc

Based on IRS filings

Hereditary Angioedema Association Inc is a nonprofit organization focused on Health, based in FAIRFAX, VA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $21.9M in total assets. In 2024, it awarded 1 grants totaling $185K. Net investment income was $658K.

Focus Areas

Health

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

California $1.7M (100%)

States

California

Cities

La Jolla

Financial History

Multi-year comparison from IRS filings

Revenue

Expenses

Qualifying Distributions

Net Investment Income

Metric	2024	2023	2022
Total Assets	$21,869,496	$16,392,496	$11,968,085
Revenue	$9,963,196	$10,200,149	$7,898,783
Expenses	$5,527,827	$7,232,856	$4,828,602
Qualifying Distributions	—	—	—
Net Investment Income	$657,655	$200,223	$3,029
Distributable Amount	—	—	—

Giving Over Time

Total grant dollars and number of grants per year

Grant Insights

How this funder distributes its grants

Top Recipients

Top 1 recipients in 2024

Grant Size Distribution

5 grants across all recorded years

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Uc San Diego Foundation ($185,124).

Recipient	Purpose	Amount
UC SAN DIEGO FOUNDATION La Jolla, CA	RESEARCH & MEDICINE	$185,124

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

Name	Title	Hours	Compensation
MICHELLE CUEVAS	FORMER SENIOR EXECUTIVE VPCOO	20	$336,688
ANTHONY CASTALDO	CHAIRCHIEF EXECUTIVE OFFICER	40	$245,295
LEIGH FARRAR	EXECUTIVE VPCHIEF FINANCIAL OFFICE	40	$225,004
CHRISTINE SELVA	SENIOR DIRECTOR HEALTH & RESEARCH	40	$180,963
LARRY SALUS	DIRECTOR	2	$7,800
DR ERIC PHILLIPS	DIRECTOR	2	—
HENRIK BALLE BOYSEN	PRESIDENT	20	—
KAREN BAIRD	DIRECTOR	2	—
LOIS PERRY	DIRECTOR	2	—

Subject Areas

Focus areas based on grantmaking activity

Health

Frequently Asked Questions

What is Hereditary Angioedema Association Inc?

Hereditary Angioedema Association Inc is a nonprofit organization focused on Health, based in FAIRFAX, VA. It holds $21.9M in total assets as of 2024.

How large is Hereditary Angioedema Association Inc?

As of 2024, Hereditary Angioedema Association Inc holds $21.9M in total assets with $10.0M in annual revenue. It awarded 1 grants totaling $185K in 2024.

Where does Hereditary Angioedema Association Inc operate?

Hereditary Angioedema Association Inc has awarded grants in California.

What size grants does Hereditary Angioedema Association Inc award?

In 2024, Hereditary Angioedema Association Inc awarded 1 grants totaling $185K — an average of about $185K per grant, based on its IRS Form 990 filings.

What is Hereditary Angioedema Association Inc's EIN?

Hereditary Angioedema Association Inc's EIN (Employer Identification Number) is 25-1852548. IRS Form 990 filing data is available on this page for 2020–2024.