Hereditary Angioedema Association Inc
COMMENT.
Hereditary Angioedema Association Inc at a glance
In short: Hereditary Angioedema Association Inc gave $185K across 1 grant in 2024 (avg $185K), mostly in California. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $185,124
- -34.9% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $185,124
- -34.9% vs 2023
- Median grant
- $185,124
- Total assets
- $21,869,496
- +33.4% vs 2023
- Primary geography
- California (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Hereditary Angioedema Association Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Uc San Diego Foundation ($185K).
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $250–500K range: 4 grants of 5 (80%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
How Hereditary Angioedema Association Inc gives
- Giving fell 50% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $185K (2024) to $471K (2020). In 2024 it made 1 grant totaling $185K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Uc San Diego Foundation La Jolla, CA | Research & Medicine | $185,124 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $21,869,496 | $9,963,196 | $5,527,827 | $185,124 | 1 | $657,655 |
| 2023 | $16,392,496 | $10,200,149 | $7,232,856 | $284,523 | 1 | $200,223 |
| 2022 | $11,968,085 | $7,898,783 | $4,828,602 | $354,935 | 1 | $3,029 |
| 2021 | $9,129,787 | $7,202,295 | $4,691,232 | $372,358 | 1 | $4,536 |
| 2020 | $6,970,847 | $6,151,608 | $4,358,034 | $471,487 | 1 | $25,582 |
About Hereditary Angioedema Association Inc
Based on IRS filings
Hereditary Angioedema Association Inc is a public charity focused on Health, based in Fairfax, VA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $21.9M in total assets. In 2024, it awarded 1 grant totaling $185K. Net investment income was $658K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Hereditary Angioedema Association Inc is led by Henrik Balle Boysen, President since 2023 (on filings since 2020); 5 of 9 officers listed in 2024 are compensated.
Officers on the 2024 filing
Henrik Balle Boysen
President
Director → President, 2023
On filings since 2020
20 hrs/week
No compensation reported
Larry Salus
Director
Chief Compliance Officer → Treasurerchief Compliance of, 2023
Treasurerchief Compliance of → Director, 2024
On filings since 2020
2 hrs/week
$63K (2020) → $8K (2024)
Christine Selva
Senior Director Health & Research
Senior Director Health & Rese → Senior Director Health & Research, 2024
On filings since 2022
40 hrs/week
$148K (2022) → $181K (2024)
Lois Perry
Director
Retired Director of Health Se → Director, 2023
On filings since 2022
2 hrs/week
$138K (2022) → $0 (2024)
Eric Phillips
Director
On filings since 2020
2 hrs/week
No compensation reported
Karen Baird
Director
On filings since 2020
2 hrs/week
No compensation reported
Anthony Castaldo
Chairchief Executive Officer
President → Chairchief Executive Officer, 2023
On filings since 2020
40 hrs/week
$205K (2020) → $245K (2024)
Leigh Farrar
Executive Vpchief Financial Officer
Executive Vpcfo → Executive Vpchief Financial, 2023
Executive Vpchief Financial → Executive Vpchief Financial Officer, 2024
On filings since 2020
40 hrs/week
$133K (2020) → $225K (2024)
Michelle Cuevas
Former Senior Executive Vpcoo
Senior Executive Vpcoo → Former Senior Executive Vpco, 2023
Former Senior Executive Vpco → Former Senior Executive Vpcoo, 2024
On filings since 2020
20 hrs/week
$218K (2020) → $337K (2024)
Former officers (1)
- Former: David Mallory (2022) — Community Engagement Manager
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $337K, to Michelle Cuevas (Former Senior Executive VPCOO). 5 officers or directors reported compensation on that filing.
Frequently asked questions about Hereditary Angioedema Association Inc
How much does Hereditary Angioedema Association Inc give each year?
Hereditary Angioedema Association Inc gave $185K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $285K across 1 grant.
How large is Hereditary Angioedema Association Inc?
Hereditary Angioedema Association Inc reported $21.9M in total assets on its 2024 IRS Form 990. Its revenue that year was $10.0M.
What is Hereditary Angioedema Association Inc?
Hereditary Angioedema Association Inc is a public charity focused on Health, based in Fairfax, VA. It holds $21.9M in total assets as of 2024.
Where does Hereditary Angioedema Association Inc operate?
Hereditary Angioedema Association Inc has awarded grants in California.
What is Hereditary Angioedema Association Inc's EIN?
Hereditary Angioedema Association Inc's EIN (Employer Identification Number) is 25-1852548. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 13, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 8, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 11, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 7, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Hereditary Angioedema Association Inc funds
Health Open opportunities, soonest deadline first.
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