SEE SCHEDULE O COMMENT.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$21.9M
+33.4% YoY
Annual Giving
$185K
-34.9% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$185K
-34.9% YoY
About Hereditary Angioedema Association Inc
Based on IRS filings
Hereditary Angioedema Association Inc is a nonprofit organization focused on Health, based in FAIRFAX, VA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $21.9M in total assets. In 2024, it awarded 1 grants totaling $185K. Net investment income was $658K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $21,869,496 | $16,392,496 | $11,968,085 |
| Revenue | $9,963,196 | $10,200,149 | $7,898,783 |
| Expenses | $5,527,827 | $7,232,856 | $4,828,602 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $657,655 | $200,223 | $3,029 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MICHELLE CUEVAS | FORMER SENIOR EXECUTIVE VPCOO | 20 | $336,688 |
| ANTHONY CASTALDO | CHAIRCHIEF EXECUTIVE OFFICER | 40 | $245,295 |
| LEIGH FARRAR | EXECUTIVE VPCHIEF FINANCIAL OFFICE | 40 | $225,004 |
| CHRISTINE SELVA | SENIOR DIRECTOR HEALTH & RESEARCH | 40 | $180,963 |
| LARRY SALUS | DIRECTOR | 2 | $7,800 |
| DR ERIC PHILLIPS | DIRECTOR | 2 | — |
| HENRIK BALLE BOYSEN | PRESIDENT | 20 | — |
| KAREN BAIRD | DIRECTOR | 2 | — |
| LOIS PERRY | DIRECTOR | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
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Total Given
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Iraqi Children Foundation Inc
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Mjh Foundation
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Assets
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Total Given
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The Roth Family Foundation
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Assets
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Total Given
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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