Helen's Pink Sky Foundation
Helen's Pink Sky Foundation is committed to advocacy, research and care for those with batten disease & cln2. Through our platform, you can stay updated on helen's journey, contribute to the cause, and be a part of our growing community dedicated to supporting affected families.
Helen's Pink Sky Foundation at a glance
In short: Helen's Pink Sky Foundation gave $1.2M across 3 grants in 2025 (avg $396K), top state Minnesota. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,187,000
- Grants made (2025)
- 3
- Average grant
- $395,667
- Median grant
- $500,000
- Total assets
- $1,059,492
- Primary geography
- Minnesota (46% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Helen's Pink Sky Foundation funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
The largest 2025 recipient was University of Minnesota Foundation ($550K). Together the top 3 received $1.2M.
Grant Size Distribution
3 grants across all recorded years
The most common grant size was in the $500K–1M range: 2 grants of 3 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 3 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2025 it made 3 grants totaling $1.2M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Minnesota Foundation Minneapolis, MN | CLN2 Batten Disease Research | $550,000 |
| Latus Bio Inc Boston, MA | CLN2 Batten Disease Research | $500,000 |
| The Children's Hospital of Philadelphia Foundation Philadelphia, PA | CLN2 Batten Disease Research | $137,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2025 | $1,059,492 | $2,248,524 | $1,189,032 | $1,187,000 | 3 |
About Helen's Pink Sky Foundation
Based on IRS filings
Helen's Pink Sky Foundation is a public charity, based in Minnetrista, MN. IRS filing data is available for 2025. As of 2025, the organization holds $1.1M in total assets. In 2025, it awarded 3 grants totaling $1.2M.
Leadership & Key People
Officers and directors from IRS filings
Helen's Pink Sky Foundation is led by Mark Schneider, President on the 2025 filing; none of the 7 officers listed in 2025 report compensation.
Officers on the 2025 filing
Mark Schneider
President
New on the 2025 filing
1 hr/week
No compensation reported
Tim Meyer
Director
New on the 2025 filing
1 hr/week
No compensation reported
Dan Born
Vice President
New on the 2025 filing
1 hr/week
No compensation reported
Dave Born
Treasurer
New on the 2025 filing
1 hr/week
No compensation reported
Meg Jackson
Secretary
New on the 2025 filing
1 hr/week
No compensation reported
Nick Schneider
Co-Vice President
New on the 2025 filing
1 hr/week
No compensation reported
Stephanie Born
Co-Vice President
New on the 2025 filing
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Helen's Pink Sky Foundation
How much does Helen's Pink Sky Foundation give each year?
Helen's Pink Sky Foundation gave $1.2M across 3 grants in 2025, according to its 2025 IRS Form 990.
What is Helen's Pink Sky Foundation's typical grant size?
Helen's Pink Sky Foundation's median grant in 2025 was $500,000, and its average grant was $395,667, across 3 grants on its 2025 IRS Form 990.
Where does Helen's Pink Sky Foundation give grants?
Helen's Pink Sky Foundation's top state is Minnesota, with 46% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Massachusetts (42%) and Pennsylvania (12%).
Does Helen's Pink Sky Foundation give general operating support?
Not in 2025: none of the 3 grants with a stated purpose on Helen's Pink Sky Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "CLN2 Batten Disease Research" (3 grants).
How large is Helen's Pink Sky Foundation?
Helen's Pink Sky Foundation reported $1.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.2M.
What is Helen's Pink Sky Foundation's EIN?
Helen's Pink Sky Foundation's EIN (Employer Identification Number) is 33-4330209. IRS Form 990 filing data is available on this page for 2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS July 16, 2026)
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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Helen's Pink Sky Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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