National MPS Society Inc
THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).
Key facts about National MPS Society Inc
- EIN
- 11-2734849
- Latest 990 filing
- Form 990-PF, 2024
- Annual giving (2024)
- $256,379
- Grants made (2024)
- 4
- Average grant
- $64,095
- Median grant
- $75,000
- Total assets
- $3,874,160
- Primary geography
- Missouri (39% of itemized 2024 grant dollars)
Data from IRS Form 990-PF, 2024; updated September 2026.
Who National MPS Society Inc funds
By grant dollars, the top recipient states for National MPS Society Inc's 4 itemized 2024 grants were Missouri (39%), California (39%) and South Carolina (20%). None of its 4 grants with a stated purpose were described as general or operating support. Recurring purposes include "Medical Research" (4 grants).
How National MPS Society Inc gives
- Giving fell 42% from 2021 to 2024. Method
From the foundation's IRS Form 990-PF filings. Methodology.
Next steps with National MPS Society Inc
- How to evaluate National MPS Society Inc as a funder
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Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.9M
-3.5% YoY
Annual Giving
$256K
-30.6% YoY
Grant Count
4
-42.9% YoY
Avg Grant Size
$64K
+21.5% YoY
About National MPS Society Inc
Based on IRS filings
National MPS Society Inc is a nonprofit organization, based in Durham, NC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.9M in total assets. In 2024, it awarded 4 grants totaling $256K. Net investment income was $163K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 4 itemized 2024 grant dollars.
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,874,160 | $4,013,909 | $4,525,008 |
| Revenue | $2,108,438 | $2,296,659 | $1,837,186 |
| Expenses | $2,506,869 | $2,758,261 | $2,686,456 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $162,666 | $107,962 | $30,690 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
32 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest recipients include Washington University ($100,000), Regents of the Univ of California ($100,000), Greenwood Genetic Center ($50,000).
| Recipient | Purpose | Amount |
|---|---|---|
| WASHINGTON UNIVERSITY St Louis, MO | MEDICAL RESEARCH | $100,000 |
| REGENTS OF THE UNIV OF CALIFORNIA La Jolla, CA | MEDICAL RESEARCH | $100,000 |
| GREENWOOD GENETIC CENTER Greenwood, SC | MEDICAL RESEARCH | $50,000 |
| TRUSTEES OF UNIVERSITY OF PA Philadelphia, PA | MEDICAL RESEARCH | $6,379 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Matthew Ellinwood | Cso | 40 | $167,019 |
| Terri Klein | President & | 55 | $137,445 |
| Lynn Scott Hopkins | Treasurer | 1 | — |
| Maureen Cote | Secretary | 1 | — |
| Lisa Todd | Board Chairm | 1 | — |
| Steve Amy Holland | Vice Chairma | 1 | — |
| Stephanie Cozine | Director | 1 | — |
| Tamara Cullere | Director | 1 | — |
| Lisa Berry | Director | 1 | — |
| Carl Kapes | Director | 1 | — |
| Patricia Espinal | Director | 1 | — |
| Jason Madison | Director | 1 | — |
| Stacey Montgomery | Director | 1 | — |
| Sheri Wise | Director | 1 | — |
Frequently Asked Questions
How large is National MPS Society Inc?
As of 2024, National MPS Society Inc holds $3.9M in total assets with $2.1M in annual revenue. It awarded 4 grants totaling $256K in 2024.
Where does National MPS Society Inc operate?
National MPS Society Inc has awarded grants in California, Florida, Iowa, Minnesota, Missouri, North Carolina, New York, Ohio, Pennsylvania, South Carolina.
What size grants does National MPS Society Inc award?
In 2024, National MPS Society Inc awarded 4 grants totaling $256K — an average of about $64K per grant, based on its IRS Form 990 filings.
What is National MPS Society Inc's EIN?
National MPS Society Inc's EIN (Employer Identification Number) is 11-2734849. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.