National MPS Society Inc
The National MPS Society exists to cure, support, and advocate for mucopolysaccharidosis (MPS) and mucolipidosis (ML).
National MPS Society Inc at a glance
In short: National MPS Society Inc gave $285K across 6 grants in 2025 (avg $48K), mostly in California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $285,225
- +11.3% vs 2024
- Grants made (2025)
- 6
- +50.0% vs 2024
- Average grant
- $47,538
- -25.8% vs 2024
- Median grant
- $50,000
- Total assets
- $6,619,926
- +70.9% vs 2024
- Primary geography
- California (53% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who National MPS Society Inc funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Regents of the Univ of California San Diego ($100K). Together the top 6 received $285K.
Grant Size Distribution
32 grants across all recorded years
The most common grant size was in the $50–100K range: 14 grants of 32 (44%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
States
Cities
How National MPS Society Inc gives
- Giving fell 50% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $86K (2019) to $574K (2022). In 2025 it made 6 grants totaling $285K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Regents of the Univ of California San Diego La Jolla, CA | Medical Research | $100,000 |
| Greenwood Genetic Center Inc Greenwood, SC | Medical Research | $50,000 |
| Stanford University Redwood City, CA | Medical Research | $50,000 |
| Crosswalks Therapeutics Inc Cambridge, MA | Medical Research | $50,000 |
| Massachusetts Eye & Ear Infirmary Boston, MA | Medical Research | $22,725 |
| University of Minnesota Foundation Minneapolis, MN | Medical Research | $12,500 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $6,619,926 | $5,554,247 | $2,747,970 | $285,225 | 6 | $402,848 |
| 2024 | $3,874,160 | $2,108,438 | $2,506,869 | $256,379 | 4 | $162,666 |
| 2023 | $4,013,909 | $2,296,659 | $2,758,261 | $369,242 | 7 | $107,962 |
| 2022 | $4,525,008 | $1,837,186 | $2,686,456 | $574,020 | 7 | $30,690 |
| 2021 | $5,360,039 | $1,902,823 | $2,087,379 | $439,076 | 8 | $222,873 |
| 2020 | $5,467,051 | $2,011,223 | $1,741,828 | $286,371 | 6 | $-106,486 |
| 2019 | $5,077,461 | $2,740,255 | $1,977,648 | $86,337 | 4 | $126,496 |
About National MPS Society Inc
Based on IRS filings
National MPS Society Inc is a public charity, based in Durham, NC. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $6.6M in total assets. In 2025, it awarded 6 grants totaling $285K. Net investment income was $403K.
Leadership & Key People
Officers and directors from IRS filings
National MPS Society Inc is led by Terri Klein, President on every filing since 2019; 4 of 16 officers listed in 2025 are compensated.
Officers on the 2025 filing
Terri Klein
President
On filings since 2019
55 hrs/week
$111K (2019) → $156K (2025)
Steve Amy Holland
Board Chairman
Vice Chairman → Board Chairman, 2025
On filings since 2019
1 hr/week
No compensation reported
Jason Madison
Director
On filings since 2019
1 hr/week
No compensation reported
Tamara Cullere
Director
On filings since 2022
1 hr/week
No compensation reported
Patricia Espinal
Director
On filings since 2023
1 hr/week
No compensation reported
Lisa Berry
Director
On filings since 2024
1 hr/week
No compensation reported
Colleen Kraft
Director
New on the 2025 filing
1 hr/week
No compensation reported
Scott Lynn Hopkins
Director
New on the 2025 filing
1 hr/week
No compensation reported
Sheri Lueb
Director
New on the 2025 filing
1 hr/week
No compensation reported
Steven Chesser
Director
New on the 2025 filing
1 hr/week
No compensation reported
Matthew Ellinwood
Cso
On filings since 2020
40 hrs/week
$47K (2020) → $64K (2025)
Scott Loiler
Cso
New on the 2025 filing
40 hrs/week
$133K (2025)
Sharon King
COO
New on the 2025 filing
40 hrs/week
$63K (2025)
Stephanie Cozine
Secretary
Director → Secretary, 2025
On filings since 2020
1 hr/week
No compensation reported
Maureen Cote
Vice Chairman
Director → Secretary, 2023
Secretary → Vice Chairman, 2025
On filings since 2021
1 hr/week
No compensation reported
Carl Kapes
Treasurer
Director → Treasurer, 2025
On filings since 2022
1 hr/week
No compensation reported
Former officers (16)
- Former: Lisa Todd (2019–2024) — Board Chairman
- Former: Lynn Scott Hopkins (2019–2024) — Treasurer
- Former: Sheri Wise (2019–2024) — Director
- Former: Stacey Montgomery (2023–2024) — Director
- Former: Austin Noll (2019–2023) — Director
- Former: Nicole Bennett (2021–2023) — Director
- Former: Mercedes Johnson (2022–2023) — Director
- Former: Christine Tippett (2019–2022) — Secretary
- Former: Stephanie Austin Bozarth (2019–2022) — Director
- Former: Noni Langford (2020–2022) — Director
- Former: Amber Mongan (2019–2021) — Director
- Former: Larry Kirch (2019–2021) — Director
- Former: Kristine Klenke (2019–2020) — Director
- Former: Caroline Dabney (2019) — Director - P
- Former: Cristol Barrett O'Loughlin (2019) — Director - P
- Former: Shelby Lyon (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $156K, to Terri Klein (President &). 4 officers or directors reported compensation on that filing.
Frequently asked questions about National MPS Society Inc
How much does National MPS Society Inc give each year?
National MPS Society Inc gave $285K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $256K across 4 grants.
What is National MPS Society Inc's typical grant size?
National MPS Society Inc's median grant in 2025 was $50,000, and its average grant was $47,538, across 6 grants on its 2025 IRS Form 990.
Where does National MPS Society Inc give grants?
National MPS Society Inc gives mostly in California: 53% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Massachusetts (25%) and South Carolina (18%).
Does National MPS Society Inc give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on National MPS Society Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Medical Research" (6 grants).
Who are National MPS Society Inc's largest grantees?
National MPS Society Inc's largest 2025 grantees include Regents of the Univ of California San Diego ($100,000), Greenwood Genetic Center Inc ($50,000) and Stanford University ($50,000), according to its 2025 IRS Form 990. Together they received 70% of its itemized 2025 grant dollars.
How large is National MPS Society Inc?
National MPS Society Inc reported $6.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $5.6M.
What is National MPS Society Inc's EIN?
National MPS Society Inc's EIN (Employer Identification Number) is 11-2734849. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS July 29, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS July 21, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 20, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 12, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 24, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS August 6, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS July 21, 2026)
- IRS filings on file for fiscal years 2020–2024
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