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National Mps Society Inc

DURHAM, NC EIN: 11-2734849 Website

THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$3.9M

-3.5% YoY

Annual Giving

$256K

-30.6% YoY

Grant Count

4

-42.9% YoY

Avg Grant Size

$64K

+21.5% YoY

About National Mps Society Inc

Based on IRS filings

National Mps Society Inc is a nonprofit organization, based in DURHAM, NC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.9M in total assets. In 2024, it awarded 4 grants totaling $256K. Net investment income was $163K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

10states
+2 more states

Cities

AmesColumbusGreenwoodJacksonvilleLa JollaMinneapolisNew YorkPhiladelphiaResearch Triangle ParkSan FranciscoSt LouisTorrance

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$759K$2M$2M$3M20202021202220232024
Metric202420232022
Total Assets$3,874,160$4,013,909$4,525,008
Revenue$2,108,438$2,296,659$1,837,186
Expenses$2,506,869$2,758,261$2,686,456
Qualifying Distributions
Net Investment Income$162,666$107,962$30,690
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$144K$287K$431K$574K6 grants20208 grants20217 grants20227 grants20234 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2024

WASHINGTON UNIVERSITY$100KREGENTS OF THE UNIV OF C…$100KGREENWOOD GENETIC CENTER$50KTRUSTEES OF UNIVERSITY O…$6K

Grant Size Distribution

32 grants across all recorded years

12<$50K12$50–100K8$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Washington University ($100,000), Regents of the Univ of California ($100,000), Greenwood Genetic Center ($50,000).

RecipientPurposeAmount
TRUSTEES OF UNIVERSITY OF PA PHILADELPHIA, PAMEDICAL RESEARCH$6,379
GREENWOOD GENETIC CENTER GREENWOOD, SCMEDICAL RESEARCH$50,000
WASHINGTON UNIVERSITY ST LOUIS, MOMEDICAL RESEARCH$100,000
REGENTS OF THE UNIV OF CALIFORNIA LA JOLLA, CAMEDICAL RESEARCH$100,000

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

MATTHEW ELLINWOODCSO$167KTERRI KLEINPRESIDENT &$137K

From 2024 filing

NameTitleHoursCompensation
MATTHEW ELLINWOODCSO40$167,019
TERRI KLEINPRESIDENT &55$137,445
LYNN SCOTT HOPKINSTREASURER1
MAUREEN COTESECRETARY1
LISA TODDBOARD CHAIRM1
STEVE AMY HOLLANDVICE CHAIRMA1
STEPHANIE COZINEDIRECTOR1
TAMARA CULLEREDIRECTOR1
LISA BERRYDIRECTOR1
CARL KAPESDIRECTOR1
PATRICIA ESPINALDIRECTOR1
JASON MADISONDIRECTOR1
STACEY MONTGOMERYDIRECTOR1
SHERI WISEDIRECTOR1

Frequently Asked Questions

How large is National Mps Society Inc?

As of 2024, National Mps Society Inc holds $3.9M in total assets with $2.1M in annual revenue. It awarded 4 grants totaling $256K in 2024.

Where does National Mps Society Inc operate?

National Mps Society Inc has awarded grants in California, Florida, Iowa, Minnesota, Missouri, North Carolina, New York, Ohio, Pennsylvania, South Carolina.

What size grants does National Mps Society Inc award?

In 2024, National Mps Society Inc awarded 4 grants totaling $256K — an average of about $64K per grant, based on its IRS Form 990 filings.

What is National Mps Society Inc's EIN?

National Mps Society Inc's EIN (Employer Identification Number) is 11-2734849. IRS Form 990 filing data is available on this page for 2020–2024.

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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