TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY. AN IMPORTANT PART OF THIS MISSION IS TO SUPPORT THE GLOBAL AFFILIATE ORGANIZATIONS THAT WE HELPED ESTABLISH AND CONTINUE TO FUNDRAISE FOR. GLOBAL AND OUR AFFILIATES WORK TOGETHER TO ELONGATE LIFE AND DRAMATICALLY IMPROVE HEALTH OUTCOMES TO ENSURE PEOPLE WITH THE CONDITION CAN REACH THEIR TRUE POTENTIAL. GLOBAL AFFILIATES INCLUDE: CRNIC INSTITUTE FOR DOWN SYNDROME, ALZHEIMER'S & COGNITION CENTER, SIE CENTER FOR DOWN SYNDROME, AND GLOBAL ADULT CLINIC. ANOTHER IMPORTANT PART OF OUR MISSION IS TO ENGAGE IN GOVERNMENT ADVOCACY THAT LEADS TO TRANSFORMATIVE INCREASES IN GOVERNMENT FUNDING FOR DOWN SYNDROME RESEARCH AND MEDICAL CARE WHICH IN TURN WILL CREATE A PIPELINE OF YOUNG TALENT DEDICATED TO THIS POPULATION. BECAUSE OF GLOBAL'S WORK, SCIENTISTS ARE DEVELOPING BETTER METHODS TO UNDERSTAND HOW THE TRIPLICATION LEADS TO A MUCH HIGHER INCIDENCE OF CERTAIN DISEASES (FOR EXAM
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$8.7M
+0.5% YoY
Annual Giving
$729K
+33.8% YoY
Grant Count
4
-42.9% YoY
Avg Grant Size
$182K
+134.2% YoY
About Global Down Syndrome Foundation
Based on IRS filings
Global Down Syndrome Foundation is a nonprofit organization focused on Health, based in DENVER, CO. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $8.7M in total assets. In 2025, it awarded 4 grants totaling $729K. Net investment income was $192K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $8,688,920 | $8,646,012 | $9,055,430 |
| Revenue | $4,716,290 | $4,313,796 | $3,826,365 |
| Expenses | $4,697,476 | $4,670,703 | $3,562,334 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $192,089 | $228,054 | $137,405 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
Grant Size Distribution
24 grants across all recorded years
Open Grants
4 open opportunities from Global Down Syndrome Foundation
Employment Awards Grant
GLOBAL DOWN SYNDROME FOUNDATION
Amount
Up to US $2,000
Deadline
Rolling / Open
Global Down Syndrome Educational Grants
GLOBAL DOWN SYNDROME FOUNDATION
Amount
Up to $15,000
Deadline
Rolling / Open
Global Down Syndrome Foundation- Education Awards Grant
GLOBAL DOWN SYNDROME FOUNDATION
Amount
US $5,000 - US $10,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include University of Colorado Foundation ($500,000), 5k and Under Grants ($214,464), Black Down Syndrome Association ($8,000).
| Recipient | Purpose | Amount |
|---|---|---|
| BLACK DOWN SYNDROME ASSOCIATION FORTVILLE, IN | EDUCATION | $8,000 |
| GOLD COAST DOWN SYNDROME ORGANIZATI BOCA RATON, FL | EDUCATION | $7,000 |
| UNIVERSITY OF COLORADO FOUNDATION DENVER, CO | EDUCATION | $500,000 |
| 5K AND UNDER GRANTS | — | $214,464 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MICHELLE SIE WHITTEN | PRESIDENT AN | 20 | $154,756 |
| JOHN J SIE | CHAIR | 1.5 | — |
| MARY BETH WALLINGFORD | TREASURER | 3 | — |
| RICHARD WAYSDORF | SECRETARY | 1 | — |
| JOHN C MCGINLEY | DIRECTOR | 1 | — |
| JAY MILLS | DIRECTOR | 1 | — |
| RICKI REST | DIRECTOR | 1 | — |
| TOMAGO COLLINS | DIRECTOR | 1 | — |
| CHARLIE MONFORT | DIRECTOR | 1 | — |
| FRANK STEPHENS | DIRECTOR | 1 | — |
| PETER KUDLA | DIRECTOR | 1 | — |
| JAMIE NIELSEN | DIRECTOR | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Global Down Syndrome Foundation?
Global Down Syndrome Foundation is a nonprofit organization focused on Health, based in DENVER, CO. It holds $8.7M in total assets as of 2025.
How large is Global Down Syndrome Foundation?
As of 2025, Global Down Syndrome Foundation holds $8.7M in total assets with $4.7M in annual revenue. It awarded 4 grants totaling $729K in 2025.
Where does Global Down Syndrome Foundation operate?
Global Down Syndrome Foundation has awarded grants in Alabama, Arizona, California, Colorado, Delaware, Florida, Indiana, Missouri, North Carolina, Nebraska, Ohio, Tennessee, Texas, Wisconsin.
What size grants does Global Down Syndrome Foundation award?
In 2025, Global Down Syndrome Foundation awarded 4 grants totaling $729K — an average of about $182K per grant, based on its IRS Form 990 filings.
What is Global Down Syndrome Foundation's EIN?
Global Down Syndrome Foundation's EIN (Employer Identification Number) is 26-4431001. IRS Form 990 filing data is available on this page for 2020–2025.
Explore Open Grants
Browse active grant opportunities in Global Down Syndrome Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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