Gbscidp Foundation International Inc
To improve the quality of life for individuals and families worldwide affected by gbs, cidp and variants by 1) providing a network for all patients, their caregivers and families 2) providing public and professional education programs worldwide designed to heighten awareness and improve the understanding and treatment of gbs, cidp and variants. 3) expanding the foundation's role in sponsoring research and engaging in patient advocacy.
Gbscidp Foundation International Inc at a glance
In short: Gbscidp Foundation International Inc gave $5K across 1 grant in 2025 (avg $5K), mostly in Pennsylvania. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $5,000
- -90.0% vs 2024
- Grants made (2025)
- 1
- +0.0% vs 2024
- Average grant
- $5,000
- -90.0% vs 2024
- Median grant
- $5,000
- Total assets
- $20,008,529
- +19.7% vs 2024
- Primary geography
- Pennsylvania (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Gbscidp Foundation International Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Penn Medicine Dept of Neurology ($5K).
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $100–250K range: 2 grants of 4 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $5K (2025) to $723K (2022). In 2025 it made 1 grant totaling $5K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Penn Medicine Dept of Neurology Philadelphia, PA | Research | $5,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $20,008,529 | $7,799,708 | $7,412,920 | $5,000 | 1 | $717,060 |
| 2024 | $16,714,766 | $4,995,163 | $4,634,095 | $50,000 | 1 | $573,240 |
| 2023 | $15,123,436 | $6,141,343 | $4,435,340 | $200,000 | 1 | $668,333 |
| 2022 | $11,708,926 | $4,567,397 | $3,888,472 | $723,084 | Total only | $631,427 |
| 2021 | $13,412,420 | $4,358,358 | $2,732,099 | $200,000 | 1 | $1,321,215 |
| 2020 | $11,254,894 | $3,156,166 | $2,660,871 | $63,341 | 2 | $281,165 |
| 2019 | $9,277,070 | $2,373,175 | $2,495,739 | $120,000 | 2 | $236,772 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Gbscidp Foundation International Inc
Based on IRS filings
Gbscidp Foundation International Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Conshohocken, PA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $20.0M in total assets. In 2025, it awarded 1 grant totaling $5K. Net investment income was $717K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Gbscidp Foundation International Inc is led by Elizabeth Butler, President & CEO since 2025 (on filings since 2019); 5 of 18 officers listed in 2025 are compensated.
Officers on the 2025 filing
Elizabeth Butler
President & CEO
Executive Director → President & CEO, 2025
On filings since 2019
40 hrs/week
$157K (2019) → $372K (2025)
Corbin Whittington
President
Vice President → President From, 2022
President From → President, 2023
On filings since 2020
10 hrs/week
No compensation reported
Kelly McCoy
Director of Patient Relations & Events
New on the 2025 filing
40 hrs/week
$104K (2025)
Shane Sumlin
Director
On filings since 2019
1 hr/week
No compensation reported
Brenda Perales
Director
On filings since 2020
1 hr/week
No compensation reported
Dave Rossner
Director
On filings since 2020
1 hr/week
No compensation reported
Jeff Allen MD
Director
On filings since 2020
1 hr/week
No compensation reported
Diana Castro
Director
On filings since 2023
1 hr/week
No compensation reported
Michele Dearing
Director
On filings since 2023
1 hr/week
No compensation reported
Valentina Trevino
Director
On filings since 2023
1 hr/week
No compensation reported
Betsy Blake
Director
On filings since 2024
1 hr/week
No compensation reported
Chrissie Jenkins
Director
On filings since 2024
1 hr/week
No compensation reported
Laura Blair
CFO
On filings since 2019
40 hrs/week
$35K (2019) → $205K (2025)
Maureen Neville
Chief of Programs & Mktg
Director of Mktg & Communications → Chief of Programs & Mktg, 2025
On filings since 2022
40 hrs/week
$136K (2022) → $208K (2025)
Richard Sperry
Chief Strategy Officer
New on the 2025 filing
40 hrs/week
$214K (2025)
Jim Yadlon
Treasurer
On filings since 2019
5 hrs/week
No compensation reported
Russell Walter
Secretary
On filings since 2019
5 hrs/week
No compensation reported
Peter Donofrio MD
Vice President
Director → Vice President, 2023
On filings since 2020
5 hrs/week
No compensation reported
Former officers (10)
- Former: Clive Phillips (2024) — Director
- Former: Nancy Ignazia Disalvo (2019–2023) — Vice President & International Affairs
- Former: James Crone (2019–2022) — President
- Former: Joshua Baer (2019–2021) — Director
- Former: Patricia H. Blomkwist-Markens (2019–2021) — Vice President
- Former: Camille Yee (2019) — CFO
- Former: Elizabeth B. Emerson (2019) — Director
- Former: Gail Moore (2019) — Director
- Former: Kenneth Gorson MD (2019) — Director
- Former: Matthew La Rocco (2019) — Vice President
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $372K, to Elizabeth Butler (President &CEO). 5 officers or directors reported compensation on that filing.
Frequently asked questions about Gbscidp Foundation International Inc
How much does Gbscidp Foundation International Inc give each year?
Gbscidp Foundation International Inc gave $5K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $50K across 1 grant.
How large is Gbscidp Foundation International Inc?
Gbscidp Foundation International Inc reported $20.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $7.8M.
What is Gbscidp Foundation International Inc?
Gbscidp Foundation International Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Conshohocken, PA. It holds $20.0M in total assets as of 2025.
Where does Gbscidp Foundation International Inc operate?
Gbscidp Foundation International Inc has awarded grants in California, Illinois, Michigan, North Carolina, Pennsylvania, Texas.
What is Gbscidp Foundation International Inc's EIN?
Gbscidp Foundation International Inc's EIN (Employer Identification Number) is 22-2474769. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS May 7, 2020)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 13, 2023)
- Added Form 990 for fiscal year 2025 (received by the IRS July 9, 2026)
- IRS filings on file for fiscal years 2020–2024
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