FOXG1 Research Inc
Find a cure, find treatments, provide therapeutics, advocating for patients, and supporting families for FOXG1 Syndrome.
FOXG1 Research Inc at a glance
In short: FOXG1 Research Inc gave $652K across 1 grant in 2025 (avg $652K), mostly in New York. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $651,800
- -29.2% vs 2024
- Grants made (2025)
- 1
- +0.0% vs 2024
- Average grant
- $651,800
- -29.2% vs 2024
- Median grant
- $651,800
- Total assets
- $6,354,594
- +7.9% vs 2024
- Primary geography
- New York (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who FOXG1 Research Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was University of Buffalo ($652K).
Grant Size Distribution
18 grants across all recorded years
The most common grant size was under $50K: 8 grants of 18 (44%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
Cities
How FOXG1 Research Inc gives
- Giving held roughly steady from 2022 to 2025 (−20%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $216K (2020) to $920K (2024). In 2025 it made 1 grant totaling $652K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Buffalo Buffalo, NY | Research | $651,800 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $6,354,594 | $6,865,223 | $6,430,870 | $651,800 | 1 | $131,395 |
| 2024 | $5,890,175 | $6,607,597 | $3,661,143 | $920,000 | 1 | $46,736 |
| 2023 | $2,924,279 | $1,779,389 | $972,974 | $519,266 | 6 | $115,839 |
| 2022 | $2,108,597 | $991,426 | $1,235,699 | $810,989 | 6 | $1,801 |
| 2021 | $2,520,850 | $2,803,193 | $1,025,685 | $804,060 | 4 | $24,476 |
| 2020 | $674,335 | $905,609 | $328,641 | $215,880 | 3 | $13 |
| 2019 | $85,208 | $172,146 | $141,697 | — | — | — |
About FOXG1 Research Inc
Based on IRS filings
FOXG1 Research Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sands Point, NY. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $6.4M in total assets. In 2025, it awarded 1 grant totaling $652K. Net investment income was $131K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
FOXG1 Research Inc is led by Nasha Fitter, CEO & Chair since 2024 (on filings since 2019); 1 of 5 officers listed in 2025 is compensated.
Officers on the 2025 filing
Nasha Fitter
CEO & Chair
CEO → CEO & Chair, 2024
On filings since 2019
7 hrs/week
No compensation reported
Nicole Johnson
Executive Director
President → Executive Director, 2022
On filings since 2019
40 hrs/week
$119K (2022) → $208K (2025)
Magdelena Labbe
Secretary
On filings since 2019
3 hrs/week
No compensation reported
Ryan Phillips
CFO
On filings since 2020
7 hrs/week
No compensation reported
Bram van Den Bergh
Treasurer
On filings since 2021
3 hrs/week
No compensation reported
Former officers (2)
- Former: Nicolas Paolini (2019–2020) — Director
- Former: Angie Van Wingerden (2019) — CFO
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $208K, to Nicole Johnson (Executive Director).
Frequently asked questions about FOXG1 Research Inc
How much does FOXG1 Research Inc give each year?
FOXG1 Research Inc gave $652K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $920K across 1 grant.
How large is FOXG1 Research Inc?
FOXG1 Research Inc reported $6.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $6.9M.
What is FOXG1 Research Inc?
FOXG1 Research Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sands Point, NY. It holds $6.4M in total assets as of 2025.
Where does FOXG1 Research Inc operate?
FOXG1 Research Inc has awarded grants in Alabama, California, Maine, New York, Ohio.
What is FOXG1 Research Inc's EIN?
FOXG1 Research Inc's EIN (Employer Identification Number) is 82-5300929. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 9, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 8, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 10, 2025)
- Added Form 990-EZ for fiscal year 2019 (received by the IRS March 19, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS May 11, 2026)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 11, 2021)
- IRS filings on file for fiscal years 2020–2024
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