Epilepsy Foundation New England
TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$15.4M
+10.8% YoY
Annual Giving
$150K
+0.0% YoY
Grant Count
2
+0.0% YoY
Avg Grant Size
$75K
+0.0% YoY
About Epilepsy Foundation New England
Based on IRS filings
Epilepsy Foundation New England is a nonprofit organization, based in LOWELL, MA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $15.4M in total assets. In 2025, it awarded 2 grants totaling $150K. Net investment income was $508K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $15,377,474 | $13,877,043 | $10,402,302 |
| Revenue | $7,486,018 | $7,355,741 | $6,573,455 |
| Expenses | $6,800,011 | $6,455,357 | $5,905,898 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $507,561 | $261,944 | $186,935 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
Grant Size Distribution
12 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| AIMEE STEVENS | FORMER DIRECTOR | 0.4 | — |
| JASON BOURQUE | CLERK | 0.4 | — |
| JENNIFER CARDILLO | DIRECTOR | 0.4 | — |
| BRETT DOWNING | DIRECTOR | 0.4 | — |
| MARC FIRENZE | FORMER VICE CHAIR | 0.4 | — |
| PHILIP HAYDON PHD | DIRECTOR | 0.4 | — |
| JOHN GAITANIS MD | FORMER DIRECTOR | 0.4 | — |
| DARA FREEDMAN-WEISS | FORMER DIRECTOR | 0.4 | — |
| DON HOLMES | DIRECTOR | 0.4 | — |
| ALISON ZETTERQUIST | CHAIR | 0.4 | — |
| TIM YOUNG | TREASURER | 0.4 | — |
| TAMARA SACHARCZYK | DIRECTOR | 0.4 | — |
| IKA NOVIAWATY | DIRECTOR | 0.4 | — |
| KIMBERLEE SCHUMACHER | DIRECTOR THRU JUN25 | 0.4 | — |
| DARLENE WILSON | DIRECTOR | 0.4 | — |
| ANDREW COLE MD | DIRECTOR | 1.5 | — |
| STEVE SIRAVO | DIRECTOR | 1.5 | — |
| JOE SIRAVO | DIRECTOR | 1.5 | — |
| SUSAN LINN | FORMER PRESIDENT & CEO - EFNE THRU MAY25 | 50 | $278,893 |
| BRADLEY RICH | PRESIDENT - DC | 1 | — |
| KIMBERLEE SCHUMACHER | INTERIM-PRESIDENT & CEO BEGINNING JUN25 | 40 | — |
| JEFFREY GANZ | CHIEF OPERATING OFFICER - | 40 | $152,681 |
| JACQUELYN BREAULT | DIRECTOR OF OPERATIONS - D | 1 | — |
| DAVID SEARLES | VP FOR DEVELOPMENT & COMMUNICATIONS - EFNE | 40 | $103,824 |
| CHANDA LINN | VP OF PROGRAMS & SERVICES - EFNE | 40 | $100,217 |
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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