Epilepsy Foundation New England
TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW.
Key facts about Epilepsy Foundation New England
- EIN
- 22-2505819
- Latest 990 filing
- Form 990-PF, 2025
- Annual giving (2025)
- $150,000
- Grants made (2025)
- 2
- Average grant
- $75,000
- Median grant
- $75,000
- Total assets
- $15,377,474
- Primary geography
- Massachusetts (100% of itemized 2025 grant dollars)
Data from IRS Form 990-PF, 2025; updated September 2026.
How Epilepsy Foundation New England gives
- Giving held roughly steady from 2022 to 2025 (−6%). Method
From the foundation's IRS Form 990-PF filings. Methodology.
Next steps with Epilepsy Foundation New England
- How to evaluate Epilepsy Foundation New England as a funder
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Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$15.4M
+10.8% YoY
Annual Giving
$150K
+0.0% YoY
Grant Count
2
+0.0% YoY
Avg Grant Size
$75K
+0.0% YoY
About Epilepsy Foundation New England
Based on IRS filings
Epilepsy Foundation New England is a nonprofit organization, based in Lowell, MA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $15.4M in total assets. In 2025, it awarded 2 grants totaling $150K. Net investment income was $508K.
Ready to take the next step with Epilepsy Foundation New England?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 2 itemized 2025 grant dollars.
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $15,377,474 | $13,877,043 | $10,402,302 |
| Revenue | $7,486,018 | $7,355,741 | $6,573,455 |
| Expenses | $6,800,011 | $6,455,357 | $5,905,898 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $507,561 | $261,944 | $186,935 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2021–2025
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
Grant Size Distribution
12 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest recipients include Beth Israel Deaconess Medical Center ($75,000), Children's Hospital Corporation ($75,000).
| Recipient | Purpose | Amount |
|---|---|---|
| BETH ISRAEL DEACONESS MEDICAL CENTER Charlestown, MA | RESEARCH | $75,000 |
| CHILDREN'S HOSPITAL CORPORATION Boston, MA | RESEARCH | $75,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Aimee Stevens | Former Director | 0.4 | — |
| Jason Bourque | Clerk | 0.4 | — |
| Jennifer Cardillo | Director | 0.4 | — |
| Brett Downing | Director | 0.4 | — |
| Marc Firenze | Former Vice Chair | 0.4 | — |
| Philip Haydon PHD | Director | 0.4 | — |
| John Gaitanis MD | Former Director | 0.4 | — |
| Dara Freedman-Weiss | Former Director | 0.4 | — |
| Don Holmes | Director | 0.4 | — |
| Alison Zetterquist | Chair | 0.4 | — |
| Tim Young | Treasurer | 0.4 | — |
| Tamara Sacharczyk | Director | 0.4 | — |
| Ika Noviawaty | Director | 0.4 | — |
| Kimberlee Schumacher | Director Thru JUN25 | 0.4 | — |
| Darlene Wilson | Director | 0.4 | — |
| Andrew Cole MD | Director | 1.5 | — |
| Steve Siravo | Director | 1.5 | — |
| Joe Siravo | Director | 1.5 | — |
| Susan Linn | Former President & CEO - Efne Thru MAY25 | 50 | $278,893 |
| Bradley Rich | President - DC | 1 | — |
| Kimberlee Schumacher | Interim-President & CEO Beginning JUN25 | 40 | — |
| Jeffrey Ganz | Chief Operating Officer - | 40 | $152,681 |
| Jacquelyn Breault | Director of Operations - D | 1 | — |
| David Searles | VP for Development & Communications - Efne | 40 | $103,824 |
| Chanda Linn | VP of Programs & Services - Efne | 40 | $100,217 |
Frequently Asked Questions
How large is Epilepsy Foundation New England?
As of 2025, Epilepsy Foundation New England holds $15.4M in total assets with $7.5M in annual revenue. It awarded 2 grants totaling $150K in 2025.
Where does Epilepsy Foundation New England operate?
Epilepsy Foundation New England has awarded grants in Massachusetts, Maine, Rhode Island.
What size grants does Epilepsy Foundation New England award?
In 2025, Epilepsy Foundation New England awarded 2 grants totaling $150K — an average of about $75K per grant, based on its IRS Form 990 filings.
What is Epilepsy Foundation New England's EIN?
Epilepsy Foundation New England's EIN (Employer Identification Number) is 22-2505819. IRS Form 990 filing data is available on this page for 2021–2025.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.