Epilepsy Foundation New England
To improve the lives of people affected by epilepsy through education, advocacy, research, and connection. Efne's services are designed to provide help for today and hope for tomorrow.
Epilepsy Foundation New England at a glance
In short: Epilepsy Foundation New England gave $150K across 2 grants in 2025 (avg $75K), mostly in Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $150,000
- +0.0% vs 2024
- Grants made (2025)
- 2
- +0.0% vs 2024
- Average grant
- $75,000
- +0.0% vs 2024
- Median grant
- $75,000
- Total assets
- $15,377,474
- +10.8% vs 2024
- Primary geography
- Massachusetts (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Epilepsy Foundation New England funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was Beth Israel Deaconess Medical Center ($75K). Together the top 2 received $150K.
Grant Size Distribution
12 grants across all recorded years
The most common grant size was in the $50–100K range: 8 grants of 12 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
Cities
How Epilepsy Foundation New England gives
- Giving held roughly steady from 2022 to 2025 (−6%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $10K (2021) to $160K (2023). In 2025 it made 2 grants totaling $150K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Beth Israel Deaconess Medical Center Charlestown, MA | Research | $75,000 |
| Children's Hospital Corporation Boston, MA | Research | $75,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $15,377,474 | $7,486,018 | $6,800,011 | $150,000 | 2 | $507,561 |
| 2024 | $13,877,043 | $7,355,741 | $6,455,357 | $150,000 | 2 | $261,944 |
| 2023 | $10,402,302 | $6,573,455 | $5,905,898 | $160,000 | 4 | $186,935 |
| 2022 | $9,060,661 | $5,980,042 | $4,674,503 | $160,000 | 3 | $186,205 |
| 2021 | $9,132,602 | $6,402,351 | $4,110,889 | $10,000 | 1 | $189,368 |
About Epilepsy Foundation New England
Based on IRS filings
Epilepsy Foundation New England is a public charity, based in Lowell, MA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $15.4M in total assets. In 2025, it awarded 2 grants totaling $150K. Net investment income was $508K.
Leadership & Key People
Officers and directors from IRS filings
Epilepsy Foundation New England is led by Susan Linn, Former President & CEO - Efne since 2025 (on filings since 2021); 4 of 24 officers listed in 2025 are compensated.
Officers on the 2025 filing
Susan Linn
Former President & CEO - Efne
President & CEO → President & CEO - Efne, 2024
President & CEO - Efne → Former President & CEO - Efne, 2025
On filings since 2021
50 hrs/week
$160K (2021) → $279K (2025)
Kimberlee Schumacher
Director, Interim-President & CEO Beginning Jun25
Director → Director, Interim-President & CEO Beginning Jun25, 2025
On filings since 2021
40 hrs/week
No compensation reported
Bradley Rich
President - Dc
President - Donation Center → President - Dc, 2024
On filings since 2022
1 hr/week
$224K (2022) → $0 (2025)
Alison Zetterquist
Chair
Vice Chair → Chair, 2024
On filings since 2021
0.4 hrs/week
No compensation reported
Andrew Cole MD
Director
Chair → Director, 2024
On filings since 2021
1.5 hrs/week
No compensation reported
Brett Downing
Director
On filings since 2021
0.4 hrs/week
No compensation reported
Don Holmes
Director
On filings since 2021
0.4 hrs/week
No compensation reported
Jennifer Cardillo
Director
On filings since 2021
0.4 hrs/week
No compensation reported
Joe Siravo
Director
Secretary → Director, 2024
On filings since 2021
1.5 hrs/week
No compensation reported
Steve Siravo
Director
Treasurer → Director, 2024
On filings since 2021
1.5 hrs/week
No compensation reported
Tamara Sacharczyk
Director
On filings since 2021
0.4 hrs/week
No compensation reported
Philip Haydon PhD
Director
On filings since 2022
0.4 hrs/week
No compensation reported
Darlene Wilson
Director
On filings since 2024
0.4 hrs/week
No compensation reported
Ika Noviawaty
Director
On filings since 2024
0.4 hrs/week
No compensation reported
Jacquelyn Breault
Director of Operations - D
Director of Operations - Dc → Director of Operations - D, 2025
On filings since 2024
1 hr/week
No compensation reported
Jeffrey Ganz
Chief Operating Officer -
Chief Operating Officer - Efne → Chief Operating Officer -, 2025
On filings since 2024
40 hrs/week
$117K (2024) → $153K (2025)
Chanda Linn
Vice President of Programs & Services - Efne
New on the 2025 filing
40 hrs/week
$100K (2025)
David Searles
Vice President for Development & Communications - Efne
New on the 2025 filing
40 hrs/week
$104K (2025)
Jason Bourque
Clerk
Director → Secretary, 2024
Secretary → Clerk, 2025
On filings since 2021
0.4 hrs/week
No compensation reported
John N. Gaitanis MD
Former Director
Director → Former Director, 2025
On filings since 2021
0.4 hrs/week
No compensation reported
Tim Young
Treasurer
Director → Treasurer, 2024
On filings since 2021
0.4 hrs/week
No compensation reported
Aimee Stevens
Former Director
Director → Former Director, 2025
On filings since 2024
0.4 hrs/week
No compensation reported
Dara Freedman-Weiss
Former Director
Director → Former Director, 2025
On filings since 2024
0.4 hrs/week
No compensation reported
Marc Firenze
Former Vice Chair
Vice Chair → Former Vice Chair, 2025
On filings since 2024
0.4 hrs/week
No compensation reported
Former officers (17)
- Former: Andrea Anderson (2021–2023) — Director
- Former: Catherine McCarty (2021–2023) — Director
- Former: Francesco Salituro PhD (2021–2023) — Director
- Former: Francis J. Kenneally III (2021–2023) — Director
- Former: Tim Higgins (2021–2023) — Director
- Former: Zachery Hermes (2022–2023) — Director
- Former: Jessica Fennell (2023) — Director
- Former: Cheryl Wilson (2021–2022) — Director
- Former: Christine Chasse (2021–2022) — Director
- Former: Edward C. Bunn (2021–2022) — Director
- Former: Nicole Derosiers (2021–2022) — Director
- Former: Samantha Schmidt (2021–2022) — Director
- Former: Susan Kantor (2021–2022) — Director
- Former: Brad Rich (2021) — President
- Former: Phil Haydon (2021) — Director
- Former: Steve Valliere Left In (2021) — Director
- Former: Zach Hermes (2021) — Director
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $279K, to Susan Linn (Former President & CEO - Efne Thru MAY25). 4 officers or directors reported compensation on that filing.
Frequently asked questions about Epilepsy Foundation New England
How much does Epilepsy Foundation New England give each year?
Epilepsy Foundation New England gave $150K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $150K across 2 grants.
How large is Epilepsy Foundation New England?
Epilepsy Foundation New England reported $15.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $7.5M.
Where does Epilepsy Foundation New England operate?
Epilepsy Foundation New England has awarded grants in Massachusetts, Maine, Rhode Island.
What is Epilepsy Foundation New England's EIN?
Epilepsy Foundation New England's EIN (Employer Identification Number) is 22-2505819. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS November 4, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 10, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 12, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS November 12, 2025)
- IRS filings on file for fiscal years 2021–2025
Other open foundation grants in Massachusetts
Massachusetts Open opportunities, soonest deadline first.
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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Epilepsy Foundation New England's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Epilepsy Foundation New England down — hundreds of funders to go?