Epidermolysis Bullosa Medical Research Foundation
The primary purpose of the organization is to fund medical research to find a cure for epidermolysis bullosa. Epidermolysis Bullosa Medical Research Foundation funds various research organizations across the united states & internationally for children's health.
Epidermolysis Bullosa Medical Research Foundation at a glance
In short: Epidermolysis Bullosa Medical Research Foundation gave $681K across 7 grants in 2025 (avg $97K), top state California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $680,695
- +111.6% vs 2024
- Grants made (2025)
- 7
- +40.0% vs 2024
- Average grant
- $97,242
- +51.1% vs 2024
- Median grant
- $86,956
- Total assets
- $4,111,020
- -1.7% vs 2024
- Primary geography
- California (40% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Epidermolysis Bullosa Medical Research Foundation funds
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2025
The largest 2025 recipient was Stanford University ($267K). Together the top 7 received $681K.
Grant Size Distribution
26 grants across all recorded years
The most common grant size was under $50K: 14 grants of 26 (54%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 7 itemized grants.
Cities
How Epidermolysis Bullosa Medical Research Foundation gives
- Giving grew 234% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $204K (2022) to $2.8M (2019). In 2025 it made 7 grants totaling $681K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Stanford University Redwood City, CA | Research | $266,950 |
| Eliksa Therapeutics Inc Doylestown, PA | Research | $150,000 |
| Nova Anchora LLC New York, NY | Research | $125,000 |
| The Children's Hospital of Philadelphia Philadelphia, PA | Research | $86,956 |
| Northwestern University Evanston, IL | Research | $32,460 |
| Phoenix Children's Hospital Phoenix, AZ | Research | $12,500 |
| Uc San Diego FOUNDATION(SPF Account) La Jolla, CA | Research | $6,829 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $4,111,020 | $779,723 | $728,259 | $680,695 | 7 | $157,162 |
| 2024 | $4,182,723 | $888,776 | $400,692 | $321,696 | 5 | $150,668 |
| 2023 | $3,859,639 | $1,354,120 | $345,807 | $290,974 | 3 | $99,039 |
| 2022 | $3,800,076 | $389,920 | $225,491 | $204,061 | 5 | $49,206 |
| 2021 | $3,863,477 | $772,726 | $1,497,871 | $1,139,929 | 6 | $241,593 |
| 2020 | $4,614,354 | $1,472,350 | $1,109,360 | $793,085 | 8 | $455,657 |
| 2019 | $2,958,091 | $2,502,866 | $2,928,321 | $2,789,032 | 13 | $511,328 |
About Epidermolysis Bullosa Medical Research Foundation
Based on IRS filings
Epidermolysis Bullosa Medical Research Foundation is a public charity, based in Los Angeles, CA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $4.1M in total assets. In 2025, it awarded 7 grants totaling $681K. Net investment income was $157K.
Leadership & Key People
Officers and directors from IRS filings
Epidermolysis Bullosa Medical Research Foundation is led by Andrea Pett-Joseph, President & Executive Director on every filing since 2019; none of the 5 officers listed in 2025 report compensation.
Officers on the 2025 filing
Andrea Pett-Joseph
President & Executive Director
On filings since 2019
5 hrs/week
No compensation reported
Marc Gurvitz
Director
Board of Director → Director, 2023
On filings since 2019
3 hrs/week
No compensation reported
Lynn Anderson
Founder & President Emeritus
Board of Director → Founder & President Emeritus, 2023
On filings since 2019
1 hr/week
No compensation reported
Paul Joseph
Chief Financial Officer
CFO → Chief Financial Officer, 2023
On filings since 2019
4 hrs/week
No compensation reported
Persia Fardad-Finn
Operations Coordinator
Director → Operations Coordinator, 2025
On filings since 2023
5 hrs/week
No compensation reported
Former officers (1)
- Former: Olivia Lapides (2019–2022) — Board of Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Epidermolysis Bullosa Medical Research Foundation
How much does Epidermolysis Bullosa Medical Research Foundation give each year?
Epidermolysis Bullosa Medical Research Foundation gave $681K across 7 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $322K across 5 grants.
What is Epidermolysis Bullosa Medical Research Foundation's typical grant size?
Epidermolysis Bullosa Medical Research Foundation's median grant in 2025 was $86,956, and its average grant was $97,242, across 7 grants on its 2025 IRS Form 990.
Where does Epidermolysis Bullosa Medical Research Foundation give grants?
Epidermolysis Bullosa Medical Research Foundation's top state is California, with 40% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Pennsylvania (35%) and New York (18%).
Does Epidermolysis Bullosa Medical Research Foundation give general operating support?
Not in 2025: none of the 7 grants with a stated purpose on Epidermolysis Bullosa Medical Research Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (7 grants).
Who are Epidermolysis Bullosa Medical Research Foundation's largest grantees?
Epidermolysis Bullosa Medical Research Foundation's largest 2025 grantees include Stanford University ($266,950), Eliksa Therapeutics Inc ($150,000) and Nova Anchora LLC ($125,000), according to its 2025 IRS Form 990. Together they received 80% of its itemized 2025 grant dollars.
How large is Epidermolysis Bullosa Medical Research Foundation?
Epidermolysis Bullosa Medical Research Foundation reported $4.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $780K.
What is Epidermolysis Bullosa Medical Research Foundation's EIN?
Epidermolysis Bullosa Medical Research Foundation's EIN (Employer Identification Number) is 94-3130081. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS July 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS July 13, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS July 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 14, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS July 12, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS July 14, 2026)
- IRS filings on file for fiscal years 2020–2024
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