Eb Research Partnership Inc
EB Research Partnership Inc is a public charity based in New York, New York, formed in 2010. It funds research intended to develop treatments and cures for epidermolysis bullosa (EB), a group of genetic skin disorders.
Eb Research Partnership Inc at a glance
In short: Eb Research Partnership Inc gave $3.9M across 14 grants in 2024 (avg $281K), top state Pennsylvania. 14% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $3,931,700
- +0.7% vs 2023
- Grants made (2024)
- 14
- +7.7% vs 2023
- Average grant
- $280,836
- -6.5% vs 2023
- Median grant
- $225,000
- Total assets
- $22,929,761
- -7.0% vs 2023
- New grantees (estimate)
- 14% first-time grantees (2 of 14, 2024; small sample)
- Primary geography
- Pennsylvania (29% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Eb Research Partnership Inc
- How to Apply
-
The website describes an application process through its grants management system. The listed 2026 Grant Cycle, Round 2 was scheduled to open July 31, 2026; that opening date has passed. The EB Clinical Research Consortium’s next call was listed for Q3 2026, with annual review cycles; the listed July 1, 2026 deadline has passed.
- Contact
Mailing address: 244 Madison Avenue 104, New York, NY 10016
Phone: (646) 844-0902
Website: https://ebresearch.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Eb Research Partnership Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was University of Colorado ($951K). Together the top 10 received $3.9M.
Grant Size Distribution
53 grants across all recorded years
The most common grant size was under $50K: 19 grants of 53 (36%).
Geographic Focus
Where this funder awards grants
The grant program is described as having a global geographic scope. In 2024, reported grant dollars went to recipients in Pennsylvania (29%), Colorado (24%), Illinois (24%), California (11%) and Ohio (9%). The listed 2024 awards also included recipients in Washington, Massachusetts and Arizona.
Grant Distribution by State
Share of 2024 grant dollars across all 14 itemized grants.
States
Cities
Is Eb Research Partnership Inc open to new grantees?
14%
first-time grantees, 2024
In 2024, 2 of 14 grantees (14%) were first-time recipients. With only 14 grantees, that is a small sample: one grantee more or less moves the share by about 7 points. First grants averaged $225K; repeat grants $290K. How we count
Medians: $225K first-time, $207K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2019–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $2.0M (2021) to $4.8M (2022). In 2024 it made 14 grants totaling $3.9M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Colorado Aurora, CO | To fund research to find a cure for eb | $951,243 |
| Northwestern University Evanston, IL | To fund research to find a cure for eb | $948,217 |
| Children's Hospital of Philadelphia Philadelphia, PA | To fund research to find a cure for eb | $385,482 |
| Cincinnati Children's Hospital Medical Center Cincinnati, OH | To fund research to find a cure for eb | $346,734 |
| Thomas Jefferson University Philadelphia, PA | To fund research to find a cure for eb | $298,449 |
| University of Southern California Los Angeles, CA | To fund research to find a cure for eb | $265,650 |
| Eliksa Therapeutics Doylestown, PA | To fund research to find a cure for eb | $250,000 |
| Onconova Therapeutics Inc Newtown, PA | To fund research to find a cure for eb | $200,000 |
| Stanford University Palo Alto, CA | To fund research to find a cure for eb | $149,150 |
| AWS Seattle, WA | To fund research to find a cure for eb | $64,071 |
Ready to take the next step with Eb Research Partnership Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $22,929,761 | $5,518,236 | $7,194,531 | $3,931,700 | 14 | $468,161 |
| 2023 | $24,668,019 | $7,430,625 | $7,652,304 | $3,904,445 | 13 | $552,333 |
| 2022 | $22,585,702 | $6,450,445 | $7,021,827 | $4,839,658 | 14 | $283,333 |
| 2021 | $20,862,871 | $7,736,054 | $4,062,520 | $1,987,105 | 8 | $9,574 |
| 2020 | $16,447,931 | $4,844,748 | $4,608,812 | $2,252,508 | 4 | $53,053 |
| 2019 | $16,108,085 | $8,107,482 | $3,811,980 | $2,316,351 | 7 | $397,281 |
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The organization states that its mission is to fund research for treatments and a cure for EB. Its 2024 filing says it supports promising, innovative and potentially commercially viable treatments and potential cures, with grants reviewed by its Scientific Advisory Board.
Its grant guidelines focus on research that could lead directly to commercially feasible EB therapies, products, or supporting tools and infrastructure. The website prioritizes projects aiming for commercialization within one to four years and strongly prefers clinical-trial work. Eligible approaches may include pre-clinical research with a commercialization plan, repurposing existing drugs or products, localized or systemic treatments, and research-enabling tools such as data platforms.
Recipients in 2024 included universities and medical centers, as well as therapeutics companies. Northwestern University describes its mission as combining excellent teaching and innovative research with student growth in a diverse academic community. Thomas Jefferson University describes its work as transdisciplinary education, research and discovery across fields including health, medicine and science. Phoenix Children’s Hospital says it works to advance hope, healing and the best healthcare for children and their families.
Grantmaking
In filing year 2024, EB Research Partnership reported 14 grants totaling $3,931,700. Grant amounts ranged from $6,829 to $951,243, with a median of $225,000. The largest awards included $951,243 to the University of Colorado, $948,217 to Northwestern University, $385,482 to Children’s Hospital of Philadelphia, and $346,734 to Cincinnati Children’s Hospital Medical Center. The stated purpose for these grants was to fund research to find a cure for EB.
The website describes a competitive application process: researchers submit applications through the organization’s grants management system, the Scientific Advisory Board evaluates and scores them, and the Executive Board selects projects for funding. Awards are subject to grant guidelines, including a 5% limit on indirect costs, and use a venture philanthropy framework. The guidelines generally require principal investigators to hold a relevant medical or doctoral degree and a postdoctoral or faculty position, and applicants to be affiliated with a 501(c)(3) institution or foreign equivalent, unless an exception is approved. Applicants may need to provide documentation of animal-care and human-subject approvals. Funded projects are monitored through milestone, annual scientific-progress and final reports.
Leadership & Key People
Leadership team and compensation from IRS filings
Officers and directors listed on the 2024 filing are Jill Vedder, chairperson; Ari Deshe, vice chairman; Jennifer Kauf, secretary; Emily Kubik, treasurer; and directors Nathan Burmeister, Chad Ceretto, Daniel Deshe, Ric Firth, Corey Gray and Faye Dilgen.
Eb Research Partnership Inc is led by Michael Patrick Hund, CEO on every filing since 2019; 3 of 18 officers listed in 2024 are compensated.
Officers on the 2024 filing
Michael Patrick Hund
CEO
On filings since 2019
60 hrs/week
$240K (2019) → $466K (2024)
Jill Vedder
Chairperson
Vice Chairman → Chairwomen, 2023
Chairwomen → Chairperson, 2024
On filings since 2019
5 hrs/week
No compensation reported
Allison McGettigan
Communications & Operations Director
New on the 2024 filing
40 hrs/week
$117K (2024)
Chad Ceretto
Director
On filings since 2019
1 hr/week
No compensation reported
Daniel Deshe
Director
On filings since 2019
1 hr/week
No compensation reported
Faye Dilgen
Director
On filings since 2019
1 hr/week
No compensation reported
Tracy Baldwin
Director
On filings since 2019
1 hr/week
No compensation reported
Ed Vedder
Director
On filings since 2022
1 hr/week
No compensation reported
Corey Gray
Director
On filings since 2023
1 hr/week
No compensation reported
Greg Licholai
Director
On filings since 2023
1 hr/week
No compensation reported
Ric Firth
Director
On filings since 2023
1 hr/week
No compensation reported
Marc Seidner
Director
New on the 2024 filing
1 hr/week
No compensation reported
Michael Sacks
Director
New on the 2024 filing
1 hr/week
No compensation reported
Nathan Burmeister
Director
New on the 2024 filing
1 hr/week
No compensation reported
Imani Ribadeneyra
Chief Marketing Officer
New on the 2024 filing
40 hrs/week
$219K (2024)
Ari Deshe
Vice Chairman
Director → Vice Chairman, 2023
On filings since 2019
1 hr/week
No compensation reported
Emily Kubik
Treasurer
Director → Treasurer, 2023
On filings since 2019
1 hr/week
No compensation reported
Jennifer Kauf
Secretary
Director → Secretary, 2023
On filings since 2022
1 hr/week
No compensation reported
Former officers (26)
- Former: Alexander Lemos (2019–2023) — Director
- Former: Abbie Levine (2019–2022) — Director
- Former: Alexander J. Silver (2019–2022) — Chairman
- Former: Edward Grossmann (2019–2022) — Treasurer
- Former: Eileen Attar (2019–2022) — Director
- Former: Eleanor Dehoney (2019–2022) — Director
- Former: Heather M. Fullmer (2019–2022) — Director
- Former: Jamie G. Silver (2019–2022) — Secretary
- Former: Jared Stern (2019–2022) — Director
- Former: Jeffrey Berger (2019–2022) — Director
- Former: Joshua Paulson (2019–2022) — Director
- Former: Kate Lee (2019–2022) — Director
- Former: Mark Bomback (2019–2022) — Director
- Former: Matthew Holmes (2019–2022) — Director
- Former: Matthew Prince (2019–2022) — Director
- Former: Michael Kahn (2019–2022) — Director
- Former: Monique Sock (2019–2022) — Director
- Former: Richard Grossmann (2019–2022) — Director
- Former: Rob Veres (2019–2022) — Director
- Former: Scott Didier (2019–2022) — Director
- Former: Stephen Evans (2019–2022) — Director
- Former: Whitney N. Pollack (2019–2022) — Director
- Former: Sarah Thyssen (2022) — Executive General Manager
- Former: Donna Whiffin (2019–2021) — Executive Director
- Former: Emily Kauf (2019–2021) — Director
- Former: Lorenzo Paoletti (2019–2021) — Director
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $466K, to Michael Patrick Hund (CEO). 3 officers or directors reported compensation on that filing.
Frequently asked questions about Eb Research Partnership Inc
How much does Eb Research Partnership Inc give each year?
Eb Research Partnership Inc gave $3.9M across 14 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $3.9M across 13 grants.
What is Eb Research Partnership Inc's typical grant size?
Eb Research Partnership Inc's median grant in 2024 was $225,000, and its average grant was $280,836, across 14 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Eb Research Partnership Inc that year got $225K on average.
Where does Eb Research Partnership Inc give grants?
Eb Research Partnership Inc's top state is Pennsylvania, with 29% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Colorado (24%) and Illinois (24%). The most frequent recipient cities were Philadelphia, PA (2 grants).
Does Eb Research Partnership Inc give general operating support?
Not in 2024: none of the 14 grants with a stated purpose on Eb Research Partnership Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "To Fund Research to Find a Cure for Eb" (14 grants).
Who are Eb Research Partnership Inc's largest grantees?
Eb Research Partnership Inc's largest 2024 grantees include University of Colorado ($951,243), Northwestern University ($948,217) and Children's Hospital of Philadelphia ($385,482), according to its 2024 IRS Form 990. Together they received 58% of its itemized 2024 grant dollars.
How large is Eb Research Partnership Inc?
Eb Research Partnership Inc reported $22.9M in total assets on its 2024 IRS Form 990. Its revenue that year was $5.5M.
What does Eb Research Partnership Inc fund?
The organization states that its mission is to fund research for treatments and a cure for EB. Its 2024 filing says it supports promising, innovative and potentially commercially viable treatments and potential cures, with grants reviewed by its Scientific Advisory Board. See mission & focus areas ↑
How do I apply for a grant from Eb Research Partnership Inc?
The website describes an application process through its grants management system. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Eb Research Partnership Inc's EIN?
Eb Research Partnership Inc's EIN (Employer Identification Number) is 27-2417202. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS August 24, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS September 23, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 28, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 27, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Eb Research Partnership Inc's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Prostate Cancer Foundation
Santa Monica, CA
The Prostate Cancer Foundation funds prostate cancer research, along with related patient information and education, with awards focused on improving diagnosis, treatment, survival, and quality of life. In 2024, its grants to research and academic institutions ranged from $6,000 to about $4.1 million, with a median of about $996,000; listed recipients were U.S. institutions, and no geographic restriction is stated.
Assets
$105.8M
Grants
27
Total Given
$27.0M
Conquer Cancer Foundation of the American Society of Clinical Oncology
Alexandria, VA
Conquer Cancer funds cancer research, professional education, and quality-care initiatives, with awards to universities, hospitals, and cancer centers in the U.S. and through international programs. Its 2024 grants ranged from $50,000 to $7.68 million, with a median of $100,000; the profile does not state whether it accepts unsolicited requests.
Assets
$120.7M
Grants
39
Total Given
$17.4M
American Lung Association
Chicago, IL
The American Lung Association funds research on lung disease, lung cancer, tobacco use, and air quality, primarily through defined research-award programs for investigators at eligible U.S. nonprofit institutions. Recent grants ranged from $25,000 to $825,000, with a median of about $201,000; applications are submitted through specified award mechanisms, and the profile does not state whether unsolicited requests are accepted.
Assets
$225.7M
Grants
51
Total Given
$13.5M
Aetna Foundation Inc
Hartford, CT
Aetna Foundation supported health and wellness, access to health care, and related community needs; its 2021 grants ranged from $5,000 to $1 million, with a median of $40,000, and went to organizations across multiple states, especially in D.C. and Connecticut. Its 2021 filing was marked final, so it appears to have ended or be winding down grantmaking; that filing said there were no restrictions on who could apply and pointed applicants to its website for application materials.
Assets
—
Grants
65
Total Given
$7.2M
The Breast Cancer Research Foundation Inc
New York, NY
The Breast Cancer Research Foundation funds worldwide research to prevent and cure breast cancer, supporting scientists and projects at academic and medical institutions. Its 2025 grants had a median of $450,000, though awards varied widely; it discourages unsolicited funding requests and invites proposals through its Scientific Advisory Board.
Assets
$220.5M
Grants
76
Total Given
$61.1M
The Children's Hospital of Philadelphia
Philadelphia, PA
CHOP primarily funds pediatric research at universities, hospitals, and research organizations, and also supports employee-led health projects in communities served by CHOP and its Care Network in Pennsylvania and New Jersey. In 2025, it awarded 138 grants totaling about $50.3 million; the median grant was about $115,000, with awards ranging from about $5,800 to $14 million. The profile does not state whether CHOP accepts unsolicited requests.
Assets
$9.1B
Grants
138
Total Given
$50.3M
More similar funders
More Funders in New York
Cite this profile
Grantable. (2026). Eb Research Partnership Inc funder profile. GrantGraph. Retrieved October 14, 2026, from https://grantable.co/funders/eb-research-partnership-inc-morg_2f369c849bcd4ee3a589019ee191b73e
BibTeX
@misc{grantable_272417202_2026,
author = {{Grantable}},
title = {{Eb Research Partnership Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/eb-research-partnership-inc-morg_2f369c849bcd4ee3a589019ee191b73e},
note = {Accessed 2026-10-14. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Eb Research Partnership Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Eb Research Partnership Inc down — hundreds of funders to go?