Eb Research Partnership Inc logo

Eb Research Partnership Inc

NEW YORK, NY EIN: 27-2417202 Website

EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZAION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$22.9M

-7.0% YoY

Annual Giving

$3.9M

+0.7% YoY

Grant Count

14

+7.7% YoY

Avg Grant Size

$281K

-6.5% YoY

About Eb Research Partnership Inc

Based on IRS filings

Eb Research Partnership Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $22.9M in total assets. In 2024, it awarded 14 grants totaling $3.9M. Net investment income was $468K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

13states
+5 more states

Cities

AuroraAustinBostonCambridgeChicagoCincinnatiDoylestownEvanstonLos AngelesMadisonMinneapolisNew YorkNewtownNorfolkPalo AltoPhiladelphiaPhoenixSeattleWorcester

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$2M$4M$6M$9M20202021202220232024
Metric202420232022
Total Assets$22,929,761$24,668,019$22,585,702
Revenue$5,518,236$7,430,625$6,450,445
Expenses$7,194,531$7,652,304$7,021,827
Qualifying Distributions
Net Investment Income$468,161$552,333$283,333
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$1M$2M$4M$5M4 grants20208 grants202114 grants202213 grants202314 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

UNIVERSITY OF COLORADO$951KNORTHWESTERN UNIVERSITY$948KCHILDREN'S HOSPITAL OF P…$385KCINCINNATI CHILDREN'S HO…$347KTHOMAS JEFFERSON UNIVERS…$298KUNIVERSITY OF SOUTHERN C…$266KELIKSA THERAPEUTICS$250KONCONOVA THERAPEUTICS INC$200KSTANFORD UNIVERSITY$149KAWS$64K

Grant Size Distribution

53 grants across all recorded years

19<$50K3$50–100K11$100–250K12$250–500K3$500K–1M5$1–5M$5M+

Open Grants

2 open opportunities from Eb Research Partnership Inc

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include University of Colorado ($951,243), Northwestern University ($948,217), Children's Hospital of Philadelphia ($385,482).

RecipientPurposeAmount
ASCENSION SETON MEDICAL CENTER AUSTIN, TXTO FUND RESEARCH TO FIND A CURE FOR EB$7,035
AWS SEATTLE, WATO FUND RESEARCH TO FIND A CURE FOR EB$64,071
CHILDREN'S HOSPITAL OF PHILADELPHIA PHILADELPHIA, PATO FUND RESEARCH TO FIND A CURE FOR EB$385,482
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER CINCINNATI, OHTO FUND RESEARCH TO FIND A CURE FOR EB$346,734
COLUMBIA UNIVERSITY NEW YORK, NYTO FUND RESEARCH TO FIND A CURE FOR EB$6,829
NORTHWESTERN UNIVERSITY EVANSTON, ILTO FUND RESEARCH TO FIND A CURE FOR EB$948,217
PHOENIX CHILDREN'S HOSPITAL PHOENIX, AZTO FUND RESEARCH TO FIND A CURE FOR EB$12,500
STANFORD UNIVERSITY PALO ALTO, CATO FUND RESEARCH TO FIND A CURE FOR EB$149,150
THOMAS JEFFERSON UNIVERSITY PHILADELPHIA, PATO FUND RESEARCH TO FIND A CURE FOR EB$298,449
UNIVERSITY OF COLORADO AURORA, COTO FUND RESEARCH TO FIND A CURE FOR EB$951,243

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

MICHAEL PATRICK HUNDCEO$466KIMANI RIBADENEYRACHIEF MARKETING OFFICER$219KALLISON MCGETTIGANCOMMUNICATIONS & OPERATIONS …$117K

From 2024 filing

NameTitleHoursCompensation
JILL VEDDERCHAIRPERSON5
NATHAN BURMEISTERDIRECTOR1
ARI DESHEVICE CHAIRMAN1
CHAD CERETTODIRECTOR1
DANIEL DESHEDIRECTOR1
RIC FIRTHDIRECTOR1
COREY GRAYDIRECTOR1
JENNIFER KAUFSECRETARY1
EMILY KUBIKTREASURER1
FAYE DILGENDIRECTOR1
GREG LICHOLAIDIRECTOR1
ED VEDDERDIRECTOR1
TRACY BALDWINDIRECTOR1
MICHAEL SACKSDIRECTOR1
MARC SEIDNERDIRECTOR1
MICHAEL PATRICK HUNDCEO60$466,331
IMANI RIBADENEYRACHIEF MARKETING OFFICER40$218,812
ALLISON MCGETTIGANCOMMUNICATIONS & OPERATIONS DIRECTOR40$117,138

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Eb Research Partnership Inc?

Eb Research Partnership Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. It holds $22.9M in total assets as of 2024.

How large is Eb Research Partnership Inc?

As of 2024, Eb Research Partnership Inc holds $22.9M in total assets with $5.5M in annual revenue. It awarded 14 grants totaling $3.9M in 2024.

Where does Eb Research Partnership Inc operate?

Eb Research Partnership Inc has awarded grants in Arizona, California, Colorado, Illinois, Massachusetts, Minnesota, New York, Ohio, Pennsylvania, Texas, Virginia, Washington, Wisconsin.

What size grants does Eb Research Partnership Inc award?

In 2024, Eb Research Partnership Inc awarded 14 grants totaling $3.9M — an average of about $281K per grant, based on its IRS Form 990 filings.

What is Eb Research Partnership Inc's EIN?

Eb Research Partnership Inc's EIN (Employer Identification Number) is 27-2417202. IRS Form 990 filing data is available on this page for 2020–2024.

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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