Eb Research Partnership Inc
EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZAION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$22.9M
-7.0% YoY
Annual Giving
$3.9M
+0.7% YoY
Grant Count
14
+7.7% YoY
Avg Grant Size
$281K
-6.5% YoY
About Eb Research Partnership Inc
Based on IRS filings
Eb Research Partnership Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $22.9M in total assets. In 2024, it awarded 14 grants totaling $3.9M. Net investment income was $468K.
Focus Areas
Ready to take the next step with Eb Research Partnership Inc?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $22,929,761 | $24,668,019 | $22,585,702 |
| Revenue | $5,518,236 | $7,430,625 | $6,450,445 |
| Expenses | $7,194,531 | $7,652,304 | $7,021,827 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $468,161 | $552,333 | $283,333 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
53 grants across all recorded years
Open Grants
2 open opportunities from Eb Research Partnership Inc
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JILL VEDDER | CHAIRPERSON | 5 | — |
| NATHAN BURMEISTER | DIRECTOR | 1 | — |
| ARI DESHE | VICE CHAIRMAN | 1 | — |
| CHAD CERETTO | DIRECTOR | 1 | — |
| DANIEL DESHE | DIRECTOR | 1 | — |
| RIC FIRTH | DIRECTOR | 1 | — |
| COREY GRAY | DIRECTOR | 1 | — |
| JENNIFER KAUF | SECRETARY | 1 | — |
| EMILY KUBIK | TREASURER | 1 | — |
| FAYE DILGEN | DIRECTOR | 1 | — |
| GREG LICHOLAI | DIRECTOR | 1 | — |
| ED VEDDER | DIRECTOR | 1 | — |
| TRACY BALDWIN | DIRECTOR | 1 | — |
| MICHAEL SACKS | DIRECTOR | 1 | — |
| MARC SEIDNER | DIRECTOR | 1 | — |
| MICHAEL PATRICK HUND | CEO | 60 | $466,331 |
| IMANI RIBADENEYRA | CHIEF MARKETING OFFICER | 40 | $218,812 |
| ALLISON MCGETTIGAN | COMMUNICATIONS & OPERATIONS DIRECTOR | 40 | $117,138 |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
Launa Beuhler Foundation for
BROOKLYN, NY
Assets
$2K
Grants
4
Total Given
$20K
Uw E J Madden Mem Open Hearts Club 10-214880
NEW YORK, NY
Assets
$1.3M
Grants
1
Total Given
$307K
Hindy's Foundation
BROOKLYN, NY
Assets
$142K
Grants
8
Total Given
$225K
Jeanne & Thomas Hardy Family Foundation
NEW YORK, NY
Assets
$3K
Grants
3
Total Given
$3K
Ramsleg Foundation
BRIGHTWATERS, NY
Assets
$543
Grants
1
Total Given
$500
Druckenmiller Foundation
NEW YORK, NY
Assets
$1.8B
Grants
58
Total Given
$135.7M
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Eb Research Partnership Inc on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities