DYRK1A Syndrome US
DYRK1A Syndrome US is a non-profit 501(c)3, tax exempt organization with a main purpose of improving the quality of life for those affected by dyrk1a syndrome through support, rducation, research and collaboration
DYRK1A Syndrome US at a glance
In short: DYRK1A Syndrome US gave $81K across 1 grant in 2025 (avg $81K), mostly in California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $81,265
- +132.2% vs 2024
- Grants made (2025)
- 1
- +0.0% vs 2024
- Average grant
- $81,265
- +132.2% vs 2024
- Median grant
- $81,265
- Total assets
- $422,927
- -16.3% vs 2024
- Primary geography
- California (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who DYRK1A Syndrome US funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was N-Lorem Foundation ($81K).
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 1 grant of 2 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2024 to 2025, annual grant giving ranged from $35K (2024) to $81K (2025). In 2025 it made 1 grant totaling $81K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| N-Lorem Foundation Pasadena, CA | — | $81,265 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2025 | $422,927 | $46,834 | $173,309 | $81,265 | 1 |
| 2024 | $505,384 | $45,794 | $93,094 | $35,000 | 1 |
| 2023 | $552,684 | $59,197 | $84,494 | — | — |
| 2022 | $577,981 | $187,908 | $51,356 | — | — |
| 2021 | $441,429 | $349,922 | $11,270 | — | — |
About DYRK1A Syndrome US
Based on IRS filings
DYRK1A Syndrome US is a public charity focused on Medical Research, based in Otsego, MI. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $423K in total assets. In 2025, it awarded 1 grant totaling $81K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
DYRK1A Syndrome US is led by Amy J. Clugston, President on every filing since 2021; none of the 7 officers listed in 2025 report compensation.
Officers on the 2025 filing
Amy J. Clugston
President
On filings since 2021
No compensation reported
Ana Downey
Director
On filings since 2021
No compensation reported
Sarah Glass
Director
On filings since 2021
No compensation reported
Carolle O'Neil
Director
On filings since 2024
No compensation reported
Katie Watson
Director
On filings since 2024
No compensation reported
Adrianne Apodaca
Secretary
On filings since 2021
No compensation reported
Priscilla Guzman
Treasurer
On filings since 2021
No compensation reported
Former officers (4)
- Former: Ashley Allen (2021–2023) — Director
- Former: Johna Graves (2021–2023) — Director
- Former: Braxton Webb (2023) — Director
- Former: Jessica Plassman (2022) — Director
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about DYRK1A Syndrome US
How much does DYRK1A Syndrome US give each year?
DYRK1A Syndrome US gave $81K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $35K across 1 grant.
How large is DYRK1A Syndrome US?
DYRK1A Syndrome US reported $423K in total assets on its 2025 IRS Form 990. Its revenue that year was $47K.
What is DYRK1A Syndrome US?
DYRK1A Syndrome US is a public charity focused on Medical Research, based in Otsego, MI. It holds $423K in total assets as of 2025.
Where does DYRK1A Syndrome US operate?
DYRK1A Syndrome US has awarded grants in California.
What is DYRK1A Syndrome US's EIN?
DYRK1A Syndrome US's EIN (Employer Identification Number) is 83-3342162. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS May 15, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 12, 2026)
Live grants for the work DYRK1A Syndrome US funds
Medical Research Open opportunities, soonest deadline first.
- Dr. Richard A. Falls Virginia Lions Eye Institute Research Grant Up to $40,000 (yearly total budget) · Due October 25, 2026
- NSF Graduate Research Fellowship Program (GRFP) $32,000 annually plus $12,000 cost of education allowance · Due October 27, 2026
- Social, Political and Economic Inequality Grants Due October 28, 2026
Explore Open Grants
Browse active grant opportunities in DYRK1A Syndrome US's focus areas in our free grants database
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