CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new, cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding better treatments, including a cure, for our adults and children living with cystinosis.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$10.0M
-3.7% YoY
Annual Giving
$1.8M
+17.4% YoY
Grant Count
7
+40.0% YoY
Avg Grant Size
$252K
-16.1% YoY
About Cystinosis Research Foundation
Based on IRS filings
Cystinosis Research Foundation is a nonprofit organization focused on Medical Research, based in IRVINE, CA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $10.0M in total assets. In 2025, it awarded 7 grants totaling $1.8M. Net investment income was $732K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $10,029,960 | $10,415,384 | $10,305,666 |
| Revenue | $3,177,424 | $3,187,305 | $3,244,975 |
| Expenses | $3,438,007 | $4,157,212 | $2,871,720 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $731,957 | $447,518 | $350,852 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2025
Grant Size Distribution
26 grants across all recorded years
Open Grants
3 open opportunities from Cystinosis Research Foundation
Cystinosis Research Foundation Research Grants
CYSTINOSIS RESEARCH FOUNDATION
Amount
Varies by project (examples: $42,801 - $410,810 for individual studies)
Deadline
Rolling / Open
Cystinosis Research Proposals Grant
CYSTINOSIS RESEARCH FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Postdoctoral Research Fellowships Grant
CYSTINOSIS RESEARCH FOUNDATION
Amount
Up to US $75,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include Massachusetts General Hospita ($465,595), The Scripps Institute ($450,000), University of California Sd ($263,204).
| Recipient | Purpose | Amount |
|---|---|---|
| HARVARD MEDICAL SCHOOL BOSTON, MA | MEDICAL RESEARCH | $75,000 |
| HARVARD UNIVERSITY CAMBRIDGE CAMBRIDGE, MA | MEDICAL RESEARCH | $150,000 |
| MASSACHUSETTS GENERAL HOSPITA BOSTON, MA | MEDICAL RESEARCH | $465,595 |
| STANFORD UNIVERSITY STANFORD, CA | MEDICAL RESEARCH | $245,000 |
| THE SCRIPPS INSTITUTE LA JOLLA, CA | MEDICAL RESEARCH | $450,000 |
| UNIV OF CA-IRVINE IRVINE, CA | MEDICAL RESEARCH | $117,938 |
| UNIVERSITY OF CALIFORNIA SD LA JOLLA, CA | MEDICAL RESEARCH | $263,204 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NANCY J STACK | CHAIR - TRUSTEE | 40 | — |
| GEOFFREY STACK | VICE CHAIR-TTEE | — | — |
| DONALD L SOLSBY | TREASURER - TTE | 2 | — |
| MARCU ALEXANDER | Trustee | — | — |
| STEPHANIE CHERQUI PHD | Trustee | — | — |
| BRUCE CRAIR | Trustee | — | — |
| JILL EMERSON CPA | Trustee | — | — |
| DENICE FLERCHINGER | Trustee | — | — |
| CLAY EMERSON PHD PE CFM | Trustee | — | — |
| ANGELA KIRCHOFF | Trustee | — | — |
| STEPHEN L JENKINS | Trustee | — | — |
| DAVID W MOSSMAN | Trustee | — | — |
| KEVIN PARTINGTON | Trustee | — | — |
| TERESA PARTINGTON | Trustee | — | — |
| KRISTEN MURRAY | Trustee | — | — |
| BRIAN STURGIS | Trustee | — | — |
| BARBARA KULYK | Trustee | — | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Cystinosis Research Foundation?
Cystinosis Research Foundation is a nonprofit organization focused on Medical Research, based in IRVINE, CA. It holds $10.0M in total assets as of 2025.
How large is Cystinosis Research Foundation?
As of 2025, Cystinosis Research Foundation holds $10.0M in total assets with $3.2M in annual revenue. It awarded 7 grants totaling $1.8M in 2025.
Where does Cystinosis Research Foundation operate?
Cystinosis Research Foundation has awarded grants in California, Massachusetts, New Jersey, New York, Pennsylvania, Washington.
What size grants does Cystinosis Research Foundation award?
In 2025, Cystinosis Research Foundation awarded 7 grants totaling $1.8M — an average of about $252K per grant, based on its IRS Form 990 filings.
What is Cystinosis Research Foundation's EIN?
Cystinosis Research Foundation's EIN (Employer Identification Number) is 32-0067668. IRS Form 990 filing data is available on this page for 2019–2025.
Explore Open Grants
Browse active grant opportunities in Cystinosis Research Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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