CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new, cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding better treatments, including a cure, for our adults and children living with cystinosis.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$10.0M
-3.7% YoY
Annual Giving
$1.8M
+17.4% YoY
Grant Count
7
+40.0% YoY
Avg Grant Size
$252K
-16.1% YoY
About Cystinosis Research Foundation
Based on IRS filings
Cystinosis Research Foundation is a nonprofit organization focused on Medical Research, based in IRVINE, CA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $10.0M in total assets. In 2025, it awarded 7 grants totaling $1.8M. Net investment income was $732K.
Focus Areas
Ready to take the next step with Cystinosis Research Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $10,029,960 | $10,415,384 | $10,305,666 |
| Revenue | $3,177,424 | $3,187,305 | $3,244,975 |
| Expenses | $3,438,007 | $4,157,212 | $2,871,720 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $731,957 | $447,518 | $350,852 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2025
Grant Size Distribution
26 grants across all recorded years
Open Grants
3 open opportunities from Cystinosis Research Foundation
Cystinosis Research Foundation Research Grants
CYSTINOSIS RESEARCH FOUNDATION
Amount
Varies by project (examples: $42,801 - $410,810 for individual studies)
Deadline
Rolling / Open
Cystinosis Research Proposals Grant
CYSTINOSIS RESEARCH FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Postdoctoral Research Fellowships Grant
CYSTINOSIS RESEARCH FOUNDATION
Amount
Up to US $75,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NANCY J STACK | CHAIR - TRUSTEE | 40 | — |
| GEOFFREY STACK | VICE CHAIR-TTEE | — | — |
| DONALD L SOLSBY | TREASURER - TTE | 2 | — |
| MARCU ALEXANDER | Trustee | — | — |
| STEPHANIE CHERQUI PHD | Trustee | — | — |
| BRUCE CRAIR | Trustee | — | — |
| JILL EMERSON CPA | Trustee | — | — |
| DENICE FLERCHINGER | Trustee | — | — |
| CLAY EMERSON PHD PE CFM | Trustee | — | — |
| ANGELA KIRCHOFF | Trustee | — | — |
| STEPHEN L JENKINS | Trustee | — | — |
| DAVID W MOSSMAN | Trustee | — | — |
| KEVIN PARTINGTON | Trustee | — | — |
| TERESA PARTINGTON | Trustee | — | — |
| KRISTEN MURRAY | Trustee | — | — |
| BRIAN STURGIS | Trustee | — | — |
| BARBARA KULYK | Trustee | — | — |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
Cottage Health
SANTA BARBARA, CA
Assets
$172.1M
Grants
6
Total Given
$179K
International Right of Way Association
GARDENA, CA
Assets
$5.7M
Grants
1
Total Given
$9K
Quince Interfaith Housing Corporation
LEMON GROVE, CA
Assets
—
Grants
0
Total Given
—
William & Lillian Schwartz Charitable Foundation
LA JOLLA, CA
Assets
$325K
Grants
1
Total Given
$3K
Covia Foundation
GLENDALE, CA
Assets
$15.2M
Grants
1
Total Given
$4.8M
Yale Ave Housing Inc
LAKE FOREST, CA
Assets
$25K
Grants
1
Total Given
$40K
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Cystinosis Research Foundation on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities