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Curenfwithjack

Public charity · Grantmaker Milton, GA EIN: 46-5178351 Website

The mission of CureNFwithJack is to accelerate awareness and find a cure or effective treatment through the funding of research. CureNFwithJack provides seed money for innovate research in multiple areas, including but not limited to drug discovery/tumor reduction, gene therapy and quality of life issues. As neurofibromatosis (NF) is a precancer disposition syndrome, CureNFwithJack's reach expands beyond strictly NF research, and has or will fund research in diagnostics to detect rare cancer, new therapeutics for pediatric brainstem gliomas, and cognitive and behavioral health. CureNFwithJack hosts multiple events and campaigns throughout the year to educate the community on NF and to raise awareness and funds.

Key facts about Curenfwithjack

In short: Curenfwithjack gave $151K across 2 grants in 2024 (avg $76K), mostly in New York. Source: 2024 IRS Form 990.

EIN
46-5178351
Latest 990 filing
Form 990, 2024
Annual giving (2024)
$151,037
Grants made (2024)
2
Average grant
$75,519
Median grant
$75,519
Total assets
$869,371
Primary geography
New York (67% of itemized 2024 grant dollars)

Data from IRS Form 990, 2024; updated September 2026.

Financial Overview

From 2024 IRS Form 990 · View filing

Total Assets

$869K

-12.3% YoY

Annual Giving

$151K

+22.8% YoY

Grant Count

2

+0.0% YoY

Avg Grant Size

$76K

+22.8% YoY

About Curenfwithjack

Based on IRS filings

Curenfwithjack is a public charity focused on Education, based in Milton, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $869K in total assets. In 2024, it awarded 2 grants totaling $151K. Net investment income was $30K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

3states

Share of 2024 grant dollars across all 2 itemized grants.

Cities

BostonNew YorkBirmingham

Giving Over Time

Total grant dollars and number of grants per year

$0$50K$100K$150K$200K1 grant2020 0 grants2021 0 grants2022 2 grants2023 2 grants2024

From 2020 to 2024, annual grant giving ranged from $5K (2020) to $151K (2024). In 2024 it made 2 grants totaling $151K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

Childrens Tumor Foundation: $101KChildrens Tumor Foundation$101KMassachusetts General Hospital Grant Walker Lab: $50KMassachusetts General HospitalGrant Walker Lab$50K

The largest 2024 recipient was Childrens Tumor Foundation ($101K). Together the top 2 received $151K.

Grant Size Distribution

5 grants across all recorded years

1<$50K3$50–100K1$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $50–100K range: 3 grants of 5 (60%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Childrens Tumor Foundation New York, NYAdvance NF initiatives for research at Childrens Tumor Foundation.$101,037
Massachusetts General Hospital Grant Walker Lab Boston, MAAdvance NF research projects at Grant Walker Lab, Massachusetts General Hospital$50,000

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$100K$200K$300K$400K2020 2021 2022 2023 2024
Metric202420232022
Total Assets$869,371$990,831$970,648
Revenue$179,333$205,453$324,419
Expenses$307,982$246,009$95,948
Net Investment Income$30,367$26,474$68

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS November 14, 2021)
  2. Updated Form 990 for fiscal year 2023 (received by the IRS June 11, 2024)
  3. Updated Form 990 for fiscal year 2024 (received by the IRS November 13, 2025)
  4. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

Curenfwithjack is led by Elizabeth O'Brien, President since 2023 (on filings since 2020); 1 of 9 officers listed in 2024 is compensated.

Officers on the 2024 filing

  • Elizabeth O'Brien

    President

    Officer → President, 2023

    On filings since 2020

    25 hrs/week

    $16K (2020) → $63K (2024)

  • Dan Allen

    Director

    Officer → Director, 2021

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Matt Benson

    Director

    Officer → Director, 2021

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Nani Parker

    Director

    Officer → Director, 2021

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Kevin Swindon

    Director

    On filings since 2022

    3 hrs/week

    No compensation reported

  • Jonathan Marks

    Director

    On filings since 2023

    3 hrs/week

    No compensation reported

  • Kevin Coker

    Director

    New on the 2024 filing

    3 hrs/week

    No compensation reported

  • Marilee Hamilton

    Secretary

    Officer → Secretary, 2021

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Patricia Ramstrom

    Treasurer

    On filings since 2022

    3 hrs/week

    No compensation reported

Former officers (2)
  • Former: John Flynn (2020–2022) — Director
  • Former: Michele Onians (2020–2021) — Director

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2024 IRS filing

Elizabeth O'Brien — President: $63KElizabeth O'BrienPresident$63K

The highest reported compensation on the 2024 filing was $63K, to Elizabeth O'Brien (President).

Frequently asked questions about Curenfwithjack

How much does Curenfwithjack give each year?

Curenfwithjack gave $151K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $123K across 2 grants.

How large is Curenfwithjack?

Curenfwithjack reported $869K in total assets on its 2024 IRS Form 990. Its revenue that year was $179K.

What is Curenfwithjack?

Curenfwithjack is a public charity focused on Education, based in Milton, GA. It holds $869K in total assets as of 2024.

Where does Curenfwithjack operate?

Curenfwithjack has awarded grants in Alabama, Massachusetts, New York.

What is Curenfwithjack's EIN?

Curenfwithjack's EIN (Employer Identification Number) is 46-5178351. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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