The mission of CureNFwithJack is to accelerate awareness and find a cure or effective treatment through the funding of research. CureNFwithJack provides seed money for innovate research in multiple areas, including but not limited to drug discovery/tumor reduction, gene therapy and quality of life issues. As neurofibromatosis (NF) is a precancer disposition syndrome, CureNFwithJack's reach expands beyond strictly NF research, and has or will fund research in diagnostics to detect rare cancer, new therapeutics for pediatric brainstem gliomas, and cognitive and behavioral health. CureNFwithJack hosts multiple events and campaigns throughout the year to educate the community on NF and to raise awareness and funds.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$869K
-12.3% YoY
Annual Giving
$151K
+22.8% YoY
Grant Count
2
+0.0% YoY
Avg Grant Size
$76K
+22.8% YoY
About Curenfwithjack
Based on IRS filings
Curenfwithjack is a nonprofit organization focused on Education, based in MILTON, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $869K in total assets. In 2024, it awarded 2 grants totaling $151K. Net investment income was $30K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $869,371 | $990,831 | $970,648 |
| Revenue | $179,333 | $205,453 | $324,419 |
| Expenses | $307,982 | $246,009 | $95,948 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $30,367 | $26,474 | $68 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Childrens Tumor Foundation ($101,037), Massachusetts General Hospital ($50,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Massachusetts General Hospital Boston, MA | Advance NF research projects at Grant Walker Lab, Massachusetts General Hospital | $50,000 |
| Childrens Tumor Foundation New York, NY | Advance NF initiatives for research at Childrens Tumor Foundation. | $101,037 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Elizabeth O'Brien | President | 25 | $62,500 |
| Patricia Ramstrom | Treasurer | 3 | — |
| Marilee Hamilton | Secretary | 3 | — |
| Nani Parker | Director | 3 | — |
| Dan Allen | Director | 3 | — |
| Matt Benson | Director | 3 | — |
| Kevin Swindon | Director | 3 | — |
| Jonathan Marks | Director | 3 | — |
| Kevin Coker | Director | 3 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Curenfwithjack?
Curenfwithjack is a nonprofit organization focused on Education, based in MILTON, GA. It holds $869K in total assets as of 2024.
How large is Curenfwithjack?
As of 2024, Curenfwithjack holds $869K in total assets with $179K in annual revenue. It awarded 2 grants totaling $151K in 2024.
Where does Curenfwithjack operate?
Curenfwithjack has awarded grants in Alabama, Massachusetts, New York.
What size grants does Curenfwithjack award?
In 2024, Curenfwithjack awarded 2 grants totaling $151K — an average of about $76K per grant, based on its IRS Form 990 filings.
What is Curenfwithjack's EIN?
Curenfwithjack's EIN (Employer Identification Number) is 46-5178351. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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