Curenfwithjack
The mission of CureNFwithJack is to accelerate awareness and find a cure or effective treatment through the funding of research. CureNFwithJack provides seed money for innovate research in multiple areas, including but not limited to drug discovery/tumor reduction, gene therapy and quality of life issues. As neurofibromatosis (NF) is a precancer disposition syndrome, CureNFwithJack's reach expands beyond strictly NF research, and has or will fund research in diagnostics to detect rare cancer, new therapeutics for pediatric brainstem gliomas, and cognitive and behavioral health. CureNFwithJack hosts multiple events and campaigns throughout the year to educate the community on NF and to raise awareness and funds.
Curenfwithjack at a glance
In short: Curenfwithjack gave $151K across 2 grants in 2024 (avg $76K), mostly in New York. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $151,037
- +22.8% vs 2023
- Grants made (2024)
- 2
- +0.0% vs 2023
- Average grant
- $75,519
- +22.8% vs 2023
- Median grant
- $75,519
- Total assets
- $869,371
- -12.3% vs 2023
- Primary geography
- New York (67% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Curenfwithjack funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Childrens Tumor Foundation ($101K). Together the top 2 received $151K.
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 5 (60%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $5K (2020) to $151K (2024). In 2024 it made 2 grants totaling $151K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Childrens Tumor Foundation New York, NY | Advance NF initiatives for research at Childrens Tumor Foundation. | $101,037 |
| Massachusetts General Hospital Grant Walker Lab Boston, MA | Advance NF research projects at Grant Walker Lab, Massachusetts General Hospital | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $869,371 | $179,333 | $307,982 | $151,037 | 2 | $30,367 |
| 2023 | $990,831 | $205,453 | $246,009 | $123,000 | 2 | $26,474 |
| 2022 | $970,648 | $324,419 | $95,948 | — | — | $68 |
| 2021 | $741,574 | $138,351 | $105,244 | — | — | $68 |
| 2020 | $712,088 | $197,055 | $74,454 | $5,133 | 1 | $222 |
About Curenfwithjack
Based on IRS filings
Curenfwithjack is a public charity focused on Education, based in Milton, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $869K in total assets. In 2024, it awarded 2 grants totaling $151K. Net investment income was $30K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Curenfwithjack is led by Elizabeth O'Brien, President since 2023 (on filings since 2020); 1 of 9 officers listed in 2024 is compensated.
Officers on the 2024 filing
Elizabeth O'Brien
President
Officer → President, 2023
On filings since 2020
25 hrs/week
$16K (2020) → $63K (2024)
Dan Allen
Director
Officer → Director, 2021
On filings since 2020
3 hrs/week
No compensation reported
Matt Benson
Director
Officer → Director, 2021
On filings since 2020
3 hrs/week
No compensation reported
Nani Parker
Director
Officer → Director, 2021
On filings since 2020
3 hrs/week
No compensation reported
Kevin Swindon
Director
On filings since 2022
3 hrs/week
No compensation reported
Jonathan Marks
Director
On filings since 2023
3 hrs/week
No compensation reported
Kevin Coker
Director
New on the 2024 filing
3 hrs/week
No compensation reported
Marilee Hamilton
Secretary
Officer → Secretary, 2021
On filings since 2020
3 hrs/week
No compensation reported
Patricia Ramstrom
Treasurer
On filings since 2022
3 hrs/week
No compensation reported
Former officers (2)
- Former: John Flynn (2020–2022) — Director
- Former: Michele Onians (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $63K, to Elizabeth O'Brien (President).
Frequently asked questions about Curenfwithjack
How much does Curenfwithjack give each year?
Curenfwithjack gave $151K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $123K across 2 grants.
How large is Curenfwithjack?
Curenfwithjack reported $869K in total assets on its 2024 IRS Form 990. Its revenue that year was $179K.
What is Curenfwithjack?
Curenfwithjack is a public charity focused on Education, based in Milton, GA. It holds $869K in total assets as of 2024.
Where does Curenfwithjack operate?
Curenfwithjack has awarded grants in Alabama, Massachusetts, New York.
What is Curenfwithjack's EIN?
Curenfwithjack's EIN (Employer Identification Number) is 46-5178351. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 14, 2021)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 11, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 13, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Curenfwithjack funds
Education Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Curenfwithjack's focus areas in our free grants database
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