Curenfwithjack
The mission of CureNFwithJack is to accelerate awareness and find a cure or effective treatment through the funding of research. CureNFwithJack provides seed money for innovate research in multiple areas, including but not limited to drug discovery/tumor reduction, gene therapy and quality of life issues. As neurofibromatosis (NF) is a precancer disposition syndrome, CureNFwithJack's reach expands beyond strictly NF research, and has or will fund research in diagnostics to detect rare cancer, new therapeutics for pediatric brainstem gliomas, and cognitive and behavioral health. CureNFwithJack hosts multiple events and campaigns throughout the year to educate the community on NF and to raise awareness and funds.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$869K
-12.3% YoY
Annual Giving
$151K
+22.8% YoY
Grant Count
2
+0.0% YoY
Avg Grant Size
$76K
+22.8% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $869,371 | $990,831 | $970,648 |
| Revenue | $179,333 | $205,453 | $324,419 |
| Expenses | $307,982 | $246,009 | $95,948 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $30,367 | $26,474 | $68 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Curenfwithjack fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Elizabeth O'Brien | President | 25 | $62,500 |
| Patricia Ramstrom | Treasurer | 3 | — |
| Marilee Hamilton | Secretary | 3 | — |
| Nani Parker | Director | 3 | — |
| Dan Allen | Director | 3 | — |
| Matt Benson | Director | 3 | — |
| Kevin Swindon | Director | 3 | — |
| Jonathan Marks | Director | 3 | — |
| Kevin Coker | Director | 3 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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