Cure Duchenne
Cure Duchenne is a non-profit organization dedicated to raising funds; coordinating and funding research necessary to find a cure for duchenne muscular dystrophy, increasing public awareness for duchenne muscular dystrophy patients, improving care, health,and quaility of living for duchenne muscular dystrophy patients.
Cure Duchenne at a glance
In short: Cure Duchenne gave $660K across 4 grants in 2024 (avg $165K), top state Texas. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $660,000
- +33.3% vs 2023
- Grants made (2024)
- 4
- +33.3% vs 2023
- Average grant
- $165,000
- +0.0% vs 2023
- Median grant
- $150,000
- Total assets
- $30,906,923
- +14.1% vs 2023
- Primary geography
- Texas (45% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Cure Duchenne funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
The largest 2024 recipient was Neurology and Neuro Care Center ($300K). Together the top 4 received $660K.
Grant Size Distribution
14 grants across all recorded years
The most common grant size was in the $100–250K range: 7 grants of 14 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 4 itemized grants.
Cities
How Cure Duchenne gives
- Giving grew 67% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $55K (2019) to $660K (2024). In 2024 it made 4 grants totaling $660K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Neurology and Neuro Care Center Denton, TX | Education/ Outreach/ Researcheducation/ Outreach/ Research | $300,000 |
| Foundation of National Institute of Health Bethseda, MD | Education/ Outreach/ Research | $200,000 |
| University of Florida Gainsville, FL | Education/ Outreach/ Research | $100,000 |
| The Brigham and Women's Hospital Inc Boston, MA | Education/ Outreach/ Research | $60,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $30,906,923 | $3,941,885 | $9,167,617 | $660,000 | 4 | $-1,944,106 |
| 2023 | $27,086,351 | $7,357,938 | $10,247,154 | $495,000 | 3 | $549,583 |
| 2022 | $28,410,543 | $5,751,368 | $9,005,616 | $330,000 | 2 | $147,656 |
| 2021 | $33,154,912 | $5,442,219 | $7,605,386 | $394,830 | 4 | $412,798 |
| 2020 | $40,900,297 | $5,329,712 | $5,957,804 | $68,000 | 1 | $1,470,537 |
| 2019 | $29,774,719 | $27,520,354 | $4,978,057 | $55,000 | 1 | $23,831,692 |
About Cure Duchenne
Based on IRS filings
Cure Duchenne is a public charity focused on Medical Research, based in Newport Beach, CA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $30.9M in total assets. In 2024, it awarded 4 grants totaling $660K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Cure Duchenne is led by Debra Miller, CEO since 2024 (on filings since 2019); 9 of 23 officers listed in 2024 are compensated.
Officers on the 2024 filing
Debra Miller
CEO
President → President & CEO, 2021
President & CEO → CEO, 2024
On filings since 2019
40 hrs/week
$168K (2019) → $151K (2024)
Laura Hameed
Executive Director
New on the 2024 filing
40 hrs/week
$243K (2024)
Kathlene Balisy
Finance Director
On filings since 2021
40 hrs/week
$154K (2021) → $190K (2024)
Heather Medlin
Director of Clinical Development
Senior Director of Clinical Development → Director of Clinical Development, 2023
On filings since 2022
40 hrs/week
$157K (2022) → $199K (2024)
Andrea Pike
Director of Marketing
On filings since 2023
40 hrs/week
$175K (2023) → $174K (2024)
Emilie Perkins
Director of Communications
On filings since 2023
40 hrs/week
$166K (2023) → $170K (2024)
Monica Utley
Director of Programs
On filings since 2023
40 hrs/week
$170K (2023) → $169K (2024)
Jeffrey Goffman
Director
On filings since 2019
1 hr/week
No compensation reported
Martin Lehr
Director
On filings since 2019
1 hr/week
No compensation reported
Peter Strelow
Director
On filings since 2019
1 hr/week
No compensation reported
Ryan Williams
Director
On filings since 2019
1 hr/week
No compensation reported
Tim Sullivan
Director
On filings since 2019
1 hr/week
No compensation reported
Tj Farnsworth
Director
On filings since 2019
1 hr/week
No compensation reported
Dana White
Director
On filings since 2020
1 hr/week
No compensation reported
David Macinnis
Director
On filings since 2020
1 hr/week
No compensation reported
Bob Smith
Director
On filings since 2023
1 hr/week
No compensation reported
Christopher Finazzo
Director
On filings since 2023
1 hr/week
No compensation reported
Diane Kemple
Director
On filings since 2023
1 hr/week
No compensation reported
John Managonore
Director
New on the 2024 filing
1 hr/week
No compensation reported
Nicholas Prytherch
Director
New on the 2024 filing
1 hr/week
No compensation reported
Lianna Orlando
Vice President of Research
Senior Director of Research → Vice President of Research, 2022
On filings since 2020
40 hrs/week
$175K (2020) → $214K (2024)
Michael Kelly
Chief Scientific Officer
On filings since 2022
40 hrs/week
$175K (2022) → $235K (2024)
Paul Miller
Secretary
On filings since 2019
10 hrs/week
No compensation reported
Former officers (10)
- Former: Kent Mora (2022–2023) — Former Chief of Staff
- Former: Ryan Meardon (2023) — Former Vice President of Donor Relations
- Former: Elaine Wu (2019–2022) — Director
- Former: Sarah McElroy (2019–2022) — Director
- Former: Bradley Hodges (2022) — Former Partner With Cureduchenne Ventures
- Former: Christian Nelson (2021) — Senior Director of Philanthropy
- Former: Joann Kemp (2021) — Director of Clinical Programs
- Former: Erin Frey (2020) — Senior Director of Advocacy
- Former: Kevin Dorsey (2019) — Director
- Former: Mike Haglin (2019) — Chairman of the Board
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $243K, to Laura Hameed (Executive Director). 9 officers or directors reported compensation on that filing.
Frequently asked questions about Cure Duchenne
How much does Cure Duchenne give each year?
Cure Duchenne gave $660K across 4 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $495K across 3 grants.
What is Cure Duchenne's typical grant size?
Cure Duchenne's median grant in 2024 was $150,000, and its average grant was $165,000, across 4 grants on its 2024 IRS Form 990.
Where does Cure Duchenne give grants?
Cure Duchenne's top state is Texas, with 45% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Maryland (30%) and Florida (15%).
Does Cure Duchenne give general operating support?
Not in 2024: none of the 4 grants with a stated purpose on Cure Duchenne's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Education/ Outreach/ Research" (3 grants).
How large is Cure Duchenne?
Cure Duchenne reported $30.9M in total assets on its 2024 IRS Form 990. Its revenue that year was $3.9M.
What is Cure Duchenne?
Cure Duchenne is a public charity focused on Medical Research, based in Newport Beach, CA. It holds $30.9M in total assets as of 2024.
What is Cure Duchenne's EIN?
Cure Duchenne's EIN (Employer Identification Number) is 20-0299958. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS November 16, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 11, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 27, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Cure Duchenne funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Cure Duchenne's focus areas in our free grants database
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