CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS; COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$30.9M
+14.1% YoY
Annual Giving
$660K
+33.3% YoY
Grant Count
4
+33.3% YoY
Avg Grant Size
$165K
+0.0% YoY
About Cure Duchenne
Based on IRS filings
Cure Duchenne is a nonprofit organization focused on Medical Research, based in NEWPORT BEACH, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $30.9M in total assets. In 2024, it awarded 4 grants totaling $660K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $30,906,923 | $27,086,351 | $28,410,543 |
| Revenue | $3,941,885 | $7,357,938 | $5,751,368 |
| Expenses | $9,167,617 | $10,247,154 | $9,005,616 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $-1,944,106 | $549,583 | $147,656 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
13 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Neurology and Neuro Care Center ($300,000), Foundation of National Institute of Health ($200,000), University of Florida ($100,000).
| Recipient | Purpose | Amount |
|---|---|---|
| THE BRIGHAM AND WOMEN'S HOSPITAL INC BOSTON, MA | EDUCATION/ OUTREACH/ RESEARCH | $60,000 |
| NEUROLOGY AND NEURO CARE CENTER DENTON, TX | EDUCATION/ OUTREACH/ RESEARCHEDUCATION/ OUTREACH/ RESEARCH | $300,000 |
| FOUNDATION OF NATIONAL INSTITUTE OF HEALTH BETHSEDA, MD | EDUCATION/ OUTREACH/ RESEARCH | $200,000 |
| UNIVERSITY OF FLORIDA GAINSVILLE, FL | EDUCATION/ OUTREACH/ RESEARCH | $100,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| PAUL MILLER | SECRETARY | 10 | — |
| DEBRA MILLER | CEO | 40 | $151,304 |
| JEFFREY GOFFMAN | DIRECTOR | 1 | — |
| PETER STRELOW | DIRECTOR | 1 | — |
| DAVID MACINNIS | DIRECTOR | 1 | — |
| DANA WHITE | DIRECTOR | 1 | — |
| RYAN WILLIAMS | DIRECTOR | 1 | — |
| MARTIN LEHR | DIRECTOR | 1 | — |
| TJ FARNSWORTH | DIRECTOR | 1 | — |
| DIANE KEMPLE | DIRECTOR | 1 | — |
| CHRISTOPHER FINAZZO | DIRECTOR | 1 | — |
| TIM SULLIVAN | DIRECTOR | 1 | — |
| BOB SMITH | DIRECTOR | 1 | — |
| JOHN MANAGONORE | DIRECTOR | 1 | — |
| NICHOLAS PRYTHERCH | DIRECTOR | 1 | — |
| KATHLENE BALISY | FINANCE DIRECTOR | 40 | $190,000 |
| LIANNA ORLANDO | VICE PRESIDENT OF RESEARCH | 40 | $213,873 |
| MICHAEL KELLY | CHIEF SCIENTIFIC OFFICER | 40 | $235,000 |
| HEATHER MEDLIN | DIRECTOR OF CLINICAL DEVEL | 40 | $198,846 |
| ANDREA PIKE | DIRECTOR OF MARKETING | 40 | $173,619 |
| MONICA UTLEY | DIRECTOR OF PROGRAMS | 40 | $168,502 |
| EMILIE PERKINS | DIRECTOR OF COMMUNICATIONS | 40 | $169,737 |
| LAURA HAMEED | EXECUTIVE DIRECTOR | 40 | $243,077 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Cure Duchenne?
Cure Duchenne is a nonprofit organization focused on Medical Research, based in NEWPORT BEACH, CA. It holds $30.9M in total assets as of 2024.
How large is Cure Duchenne?
As of 2024, Cure Duchenne holds $30.9M in total assets with $3.9M in annual revenue. It awarded 4 grants totaling $660K in 2024.
Where does Cure Duchenne operate?
Cure Duchenne has awarded grants in Florida, Massachusetts, Maryland, Missouri, Texas.
What size grants does Cure Duchenne award?
In 2024, Cure Duchenne awarded 4 grants totaling $660K — an average of about $165K per grant, based on its IRS Form 990 filings.
What is Cure Duchenne's EIN?
Cure Duchenne's EIN (Employer Identification Number) is 20-0299958. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Cure Duchenne's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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