Cure duchenne is a non-profit organization dedicated to raising funds; coordinating and funding research necessary to find a cure for duchenne muscular dystrophy, increasing public awareness for duchenne muscular dystrophy patients, improving care, health,and quaility of living for duchenne muscular dystrophy patients.
Key facts about Cure Duchenne
In short: Cure Duchenne gave $660K across 4 grants in 2024 (avg $165K), top state Texas. Source: 2024 IRS Form 990 filing.
- EIN
- 20-0299958
- Latest 990 filing
- Form 990 filing, 2024
- Annual giving (2024)
- $660,000
- Grants made (2024)
- 4
- Average grant
- $165,000
- Median grant
- $150,000
- Total assets
- $30,906,923
- Primary geography
- Texas (45% of itemized 2024 grant dollars)
Data from IRS Form 990 filing, 2024; updated September 2026.
Financial Overview
From 2024 IRS Form 990 filing · View filing
Total Assets
$30.9M
+14.1% YoY
Annual Giving
$660K
+33.3% YoY
Grant Count
4
+33.3% YoY
Avg Grant Size
$165K
+0.0% YoY
How Cure Duchenne gives
- Giving grew 67% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
About Cure Duchenne
Based on IRS filings
Cure Duchenne is a nonprofit organization focused on Medical Research, based in Newport Beach, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $30.9M in total assets. In 2024, it awarded 4 grants totaling $660K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 4 itemized 2024 grant dollars.
Cities
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
13 grants across all recorded years
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| NEUROLOGY AND NEURO CARE CENTER Denton, TX | EDUCATION/ OUTREACH/ RESEARCHEDUCATION/ OUTREACH/ RESEARCH | $300,000 |
| FOUNDATION OF NATIONAL INSTITUTE OF HEALTH Bethseda, MD | EDUCATION/ OUTREACH/ RESEARCH | $200,000 |
| UNIVERSITY OF FLORIDA Gainsville, FL | EDUCATION/ OUTREACH/ RESEARCH | $100,000 |
| THE BRIGHAM AND WOMEN'S HOSPITAL INC Boston, MA | EDUCATION/ OUTREACH/ RESEARCH | $60,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $30,906,923 | $27,086,351 | $28,410,543 |
| Revenue | $3,941,885 | $7,357,938 | $5,751,368 |
| Expenses | $9,167,617 | $10,247,154 | $9,005,616 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $-1,944,106 | $549,583 | $147,656 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
Cure Duchenne is led by Debra Miller, CEO since 2024 (on filings since 2020); 9 of 23 officers listed in 2024 are compensated.
Officers on the 2024 filing
Debra Miller
CEO
President → President & CEO, 2021
President & CEO → CEO, 2024
On filings since 2020
40 hrs/week
$151K (2020) → $151K (2024)
Laura Hameed
Executive Director
New on the 2024 filing
40 hrs/week
$243K (2024)
Kathlene Balisy
Finance Director
On filings since 2021
40 hrs/week
$154K (2021) → $190K (2024)
Heather Medlin
Director of Clinical Development
Senior Director of Clinical Development → Director of Clinical Development, 2023
On filings since 2022
40 hrs/week
$157K (2022) → $199K (2024)
Andrea Pike
Director of Marketing
On filings since 2023
40 hrs/week
$175K (2023) → $174K (2024)
Emilie Perkins
Director of Communications
On filings since 2023
40 hrs/week
$166K (2023) → $170K (2024)
Monica Utley
Director of Programs
On filings since 2023
40 hrs/week
$170K (2023) → $169K (2024)
Dana White
Director
On filings since 2020
1 hr/week
No compensation reported
David Macinnis
Director
On filings since 2020
1 hr/week
No compensation reported
Jeffrey Goffman
Director
On filings since 2020
1 hr/week
No compensation reported
Martin Lehr
Director
On filings since 2020
1 hr/week
No compensation reported
Peter Strelow
Director
On filings since 2020
1 hr/week
No compensation reported
Ryan Williams
Director
On filings since 2020
1 hr/week
No compensation reported
Tim Sullivan
Director
On filings since 2020
1 hr/week
No compensation reported
Tj Farnsworth
Director
On filings since 2020
1 hr/week
No compensation reported
Bob Smith
Director
On filings since 2023
1 hr/week
No compensation reported
Christopher Finazzo
Director
On filings since 2023
1 hr/week
No compensation reported
Diane Kemple
Director
On filings since 2023
1 hr/week
No compensation reported
John Managonore
Director
New on the 2024 filing
1 hr/week
No compensation reported
Nicholas Prytherch
Director
New on the 2024 filing
1 hr/week
No compensation reported
Lianna Orlando
Vice President of Research
Senior Director of Research → Vice President of Research, 2022
On filings since 2020
40 hrs/week
$175K (2020) → $214K (2024)
Michael Kelly
Chief Scientific Officer
On filings since 2022
40 hrs/week
$175K (2022) → $235K (2024)
Paul Miller
Secretary
On filings since 2020
10 hrs/week
No compensation reported
Former officers (8)
- Former: Kent Mora (2022–2023) — Former Chief of Staff
- Former: Ryan Meardon (2023) — Former Vice President of Donor Relations
- Former: Elaine Wu (2020–2022) — Director
- Former: Sarah McElroy (2020–2022) — Director
- Former: Bradley Hodges (2022) — Former Partner With Cureduchenne Ventures
- Former: Christian Nelson (2021) — Senior Director of Philanthropy
- Former: Joann Kemp (2021) — Director of Clinical Programs
- Former: Erin Frey (2020) — Senior Director of Advocacy
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
Frequently asked questions about Cure Duchenne
How much does Cure Duchenne give each year?
Cure Duchenne gave $660K across 4 grants in 2024, according to its 2024 IRS Form 990 filing. In 2023 it gave $495K across 3 grants.
What is Cure Duchenne's typical grant size?
Cure Duchenne's median grant in 2024 was $150,000, and its average grant was $165,000, across 4 grants on its 2024 IRS Form 990 filing.
Where does Cure Duchenne give grants?
Cure Duchenne's top state is Texas, with 45% of the grant dollars itemized on its 2024 IRS Form 990 filing. The next largest states were Maryland (30%) and Florida (15%).
Does Cure Duchenne give general operating support?
Not in 2024: none of the 4 grants with a stated purpose on Cure Duchenne's 2024 IRS Form 990 filing were described as general or operating support. Recurring purposes include "Education/ Outreach/ Research" (3 grants).
How large is Cure Duchenne?
Cure Duchenne reported $30.9M in total assets on its 2024 IRS Form 990 filing. Its revenue that year was $3.9M.
What is Cure Duchenne?
Cure Duchenne is a nonprofit organization focused on Medical Research, based in Newport Beach, CA. It holds $30.9M in total assets as of 2024.
What is Cure Duchenne's EIN?
Cure Duchenne's EIN (Employer Identification Number) is 20-0299958. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Cure Duchenne by hand.
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