The Foundation Fighting Blindness Inc
TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES, FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES.
Financial Overview
From 2025 IRS Form 990-PF
Total Assets
$110.9M
-10.6% YoY
Annual Giving
$19.7M
+12.3% YoY
Grant Count
38
+26.7% YoY
Avg Grant Size
$517K
-11.4% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $110,885,645 | $124,009,134 | $130,891,355 |
| Revenue | $36,615,169 | $35,702,558 | $30,437,892 |
| Expenses | $49,532,382 | $48,226,411 | $51,265,440 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $2,544,692 | $1,323,599 | $1,346,765 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
Grant Size Distribution
145 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does The Foundation Fighting Blindness Inc fund?
Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ADRIENNE GRAVES PHD | DIRECTOR | 1 | — |
| KAREN PETROU | BOARD CHAIR | 10 | — |
| JASON MORRIS | EXECUTIVE VICE CHAIR | 1 | — |
| HAYNES LEA | BOARD SECRETARY | 1 | — |
| STEVEN ALPER | CHAIR, DEVELOPMENT | 1 | — |
| JEFFREY FREED | CHAIR, AUDIT & RISK | 1 | — |
| DAVID NIXON | CHAIR, FINANCE & INVESTMENT; TREAS. | 1 | — |
| JONATHAN STEINBERG MD | CHAIR, SCIENCE | 1 | — |
| MARYROSE SYLVESTER | CHAIR, AT LARGE | 1 | — |
| WARREN THALER | CHAIR, NOMINATING & GOVERNANCE | 1 | — |
| GORDON GUND | DIRECTOR - CHAIRMAN EMERITUS | 1 | — |
| DAVID BRINT | DIRECTOR | 1 | — |
| SCOTT BURT | DIRECTOR | 1 | — |
| DARREN DEVOUE | DIRECTOR | 1 | — |
| LAURA FIETTA | DIRECTOR | 1 | — |
| ROBERT HEIDENBERG | DIRECTOR | 1 | — |
| SUBER HUANG MD | DIRECTOR | 1 | — |
| MARSHA LINK PHD | DIRECTOR | 1 | — |
| LAURA MANFRE | DIRECTOR | 1 | — |
| BRADFORD MANNING | DIRECTOR | 1 | — |
| JANINE MARKS NIXON | DIRECTOR | 1 | — |
| EVAN MITTMAN | DIRECTOR | 1 | — |
| GEORGE PEINADO | DIRECTOR | 1 | — |
| MARTHA STEELE | DIRECTOR | 1 | — |
| JOSHUA STEINBERG | DIRECTOR | 1 | — |
| JASON D MENZO | CEO | 32 | $504,560 |
| PETER L GINSBERG | COO | 32 | $364,025 |
| AMY M PALMER LASTER | CHIEF SCIENTIFIC OFFICER | 40 | $281,622 |
| RUSSELL W KELLEY | MANAGING DIRECTOR, RD FUND | — | — |
| TODD A DURHAM | SVP CLINICAL & OUTCOMES RESEARCH | 40 | $324,179 |
| JEFFREY D KLAAS | CHIEF OF STRATEGY AND INNOVATION | 40 | $344,934 |
| RICHELE DONAT | CHIEF HUMAN RESOURCES OFFICER | 40 | $324,700 |
| JUDY TAYLOR | SVP/CHIEF DEVELOPMENT OFFICER | 40 | $290,836 |
| CHRISTOPHER S ADAMS | VP, COMMUNICATIONS & MARKETING | 40 | $237,414 |
| MICHELE DIVINCENZO | VP, SCIENTIFIC & ED. CONFERENCES | 40 | $239,787 |
| JEFFRY COLLINS | VP, DATABASE SYSTEMS & TECHNOLOGY | 40 | $234,136 |
| ANNA WAGNER | VP, FINANCE | 40 | $239,697 |
| CHAD R JACKSON - SR DIR | PRE-CLINICAL TRANSITIONAL PROG. | 40 | $207,565 |
| CLAIRE M GELFMAN | FORMER CSO (THRU 6/24) | 40 | $341,844 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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