Cure CMD
Cure CMDs mission is to advance research toward treatments for the congenital muscular dystrophies and empower those living with CMD through engagement and support of our community.
Cure CMD at a glance
In short: Cure CMD reported $18K in grants paid in 2024 (a total; its filing lists no individual grants). Source: 2024 IRS Form 990.
- Grants paid (2024)
- $17,500 — reported as a total on the IRS filing, without an itemized list
- -7.9% vs 2023
- Total assets
- $508,508
- -6.9% vs 2023
- Revenue (2024)
- $677,234
- +16.9% vs 2023
- Net investment income (2024)
- $6,643
- -65.8% vs 2023
- Expenses (2024)
- $442,453
- -27.6% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Cure CMD funds
How this funder distributes its grants
Grant Size Distribution
6 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 6 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
How Cure CMD gives
- Giving fell 81% from 2020 to 2023. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $18K (2024) to $150K (2022). In 2024 it reported $18K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| National Institute of Neurological Disorders and Stroke Bethesda, MD | Research Grant | $19,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $508,508 | $677,234 | $442,453 | $17,500 | Total only | $6,643 |
| 2023 | $546,128 | $579,330 | $611,323 | $19,000 | 1 | $19,407 |
| 2022 | $848,970 | $1,065,492 | $1,503,582 | $150,000 | 2 | $2,157 |
| 2021 | $883,165 | $587,488 | $593,976 | $25,000 | 1 | $-243 |
| 2020 | $783,847 | $779,559 | $855,610 | $100,000 | 2 | $726 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Cure CMD
Based on IRS filings
Cure CMD is a public charity focused on Medical Research, based in Lakewood, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $509K in total assets. In 2024, it reported $18K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $7K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Cure CMD is led by Rachel Alvarez, Executive Director Secretary on every filing since 2020; 1 of 13 officers listed in 2024 is compensated.
Officers on the 2024 filing
Rachel Alvarez
Executive Director Secretary
On filings since 2020
40 hrs/week
$78K (2020) → $109K (2024)
Robert Sunris
President
On filings since 2020
5 hrs/week
$82K (2021) → $0 (2024)
Carla Grossman
Board Member
On filings since 2020
No compensation reported
Eunice Kim
Vice President
Vice Chair → Vice President, 2021
On filings since 2020
5 hrs/week
No compensation reported
Jeff Rowbottom
Board Member
On filings since 2020
No compensation reported
Jodi Wolff
Board Member
On filings since 2020
No compensation reported
John Day
Board Member
On filings since 2020
No compensation reported
Mark Beare
Board Member
On filings since 2020
No compensation reported
Tim Knutson
Board Member
On filings since 2020
No compensation reported
Mindy Roberts
Board Member
On filings since 2021
No compensation reported
Anthony Parisi
Board Member
On filings since 2023
No compensation reported
Hilary Dover
Treasurer
On filings since 2023
No compensation reported
Oscar H Mayer
Board Member
On filings since 2023
No compensation reported
Former officers (5)
- Former: Patrick May (2020–2023) — Former Treasrer
- Former: Gustavo Dziewczapolski (2022–2023) — Scientific Director
- Former: Hank Mayer (2020–2022) — Board Member
- Former: Megan Meyer (2020–2022) — Board Member
- Former: Sara Bloomfield (2020)
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $109K, to Rachel Alvarez (Executive Director Secretary).
Frequently asked questions about Cure CMD
How much does Cure CMD give each year?
Cure CMD reported $18K in grants paid in 2024 on its 2024 IRS Form 990, as a total without an itemized list of grants. In 2023 it gave $19K across 1 grant.
How large is Cure CMD?
Cure CMD reported $509K in total assets on its 2024 IRS Form 990. Its revenue that year was $677K.
What is Cure CMD?
Cure CMD is a public charity focused on Medical Research, based in Lakewood, CA. It holds $509K in total assets as of 2024.
Where does Cure CMD operate?
Cure CMD has awarded grants in Maryland, New Jersey, Nevada, Oregon, Pennsylvania.
What is Cure CMD's EIN?
Cure CMD's EIN (Employer Identification Number) is 26-2640975. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS October 16, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 25, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 22, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS December 4, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 15, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Cure CMD funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Cure CMD's focus areas in our free grants database
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Cure CMD down — hundreds of funders to go?