CTNNB1 Connect and Cure Inc
CTNNB1 Connect and Cure is a nonprofit organization dedicated to finding treatment options and a cure for ctnnb1 syndrome while improving the lives of our patients and community.
CTNNB1 Connect and Cure Inc at a glance
In short: CTNNB1 Connect and Cure Inc gave $127K across 2 grants in 2025 (avg $63K), mostly in Utah. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $126,849
- -16.7% vs 2024
- Grants made (2025)
- 2
- -33.3% vs 2024
- Average grant
- $63,425
- +25.0% vs 2024
- Median grant
- $63,425
- Total assets
- $653,149
- +60.3% vs 2024
- Primary geography
- Utah (61% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated November 2026.
How to apply to CTNNB1 Connect and Cure Inc
Open Grants
2 open opportunities from CTNNB1 Connect and Cure Inc
Who CTNNB1 Connect and Cure Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was University of Utah School of Medicine ($77K). Together the top 2 received $127K.
Grant Size Distribution
7 grants across all recorded years
The most common grant size was in the $50–100K range: 4 grants of 7 (57%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2025, annual grant giving ranged from $127K (2025) to $155K (2023). In 2025 it made 2 grants totaling $127K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Utah School of Medicine Salt Lake City, UT | CNTBB1 Research | $76,849 |
| Tufts University School of Medicine Boston, MA | CTNNB1 Research | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $653,149 | $461,697 | $215,984 | $126,849 | 2 | $15,777 |
| 2024 | $407,436 | $335,742 | $244,550 | $152,225 | 3 | $7,673 |
| 2023 | $316,244 | $313,878 | $194,310 | $155,000 | 2 | — |
| 2022 | $196,676 | $146,053 | $92,476 | — | — | — |
| 2021 | $143,099 | $117,287 | $68,012 | — | — | — |
| 2020 | — | $114,360 | $58,526 | — | — | — |
| 2019 | — | $75,491 | $37,500 | — | — | — |
About CTNNB1 Connect and Cure Inc
Based on IRS filings
CTNNB1 Connect and Cure Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Wilmington, DE. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $653K in total assets. In 2025, it awarded 2 grants totaling $127K. Net investment income was $16K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
CTNNB1 Connect and Cure Inc is led by Emily Amerson, President since 2023 (on filings since 2022); none of the 6 officers listed in 2025 report compensation.
Officers on the 2025 filing
Emily Amerson
President
Director → President, 2023
On filings since 2022
35 hrs/week
No compensation reported
Effie Parks
Director
Director → Director of Partnerships, 2023
Director of Partnerships → Director, 2024
On filings since 2022
3 hrs/week
No compensation reported
Bruno Ramalho
Director
Director of Technology → Director, 2024
On filings since 2023
3 hrs/week
No compensation reported
Crawford McWilliams
Director
On filings since 2024
5 hrs/week
No compensation reported
Ashley Swift
Chief Committee
Director → Chief Communications Officer, 2023
Chief Communications Officer → Chief Committee, 2025
On filings since 2022
10 hrs/week
No compensation reported
Anita Chang
Officer
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (11)
- Former: Sean Cochran (2019–2024) — Chief Financial Officer
- Former: Alex Dashiell (2022–2024) — Secretary
- Former: Ngano Tony King Sr. (2022–2024) — Chief Research Officer
- Former: Annie Wood (2022–2023) — Director of Engagement
- Former: Lauren Cochran (2022–2023) — Director of Research
- Former: Nicole Dashiell (2022–2023) — Secretary
- Former: Lindsay Stevens (2023) — Director of Fundraising
- Former: Christine Currence (2022) — Director
- Former: Kayla Cayton (2022) — Director
- Former: Mariana Parks (2022) — Diredtor
- Former: Paul Curmi (2022) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about CTNNB1 Connect and Cure Inc
How much does CTNNB1 Connect and Cure Inc give each year?
CTNNB1 Connect and Cure Inc gave $127K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $152K across 3 grants.
How large is CTNNB1 Connect and Cure Inc?
CTNNB1 Connect and Cure Inc reported $653K in total assets on its 2025 IRS Form 990. Its revenue that year was $462K.
What is CTNNB1 Connect and Cure Inc?
CTNNB1 Connect and Cure Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Wilmington, DE. It holds $653K in total assets as of 2025.
Where does CTNNB1 Connect and Cure Inc operate?
CTNNB1 Connect and Cure Inc has awarded grants in Massachusetts, Pennsylvania, Utah.
What is CTNNB1 Connect and Cure Inc's EIN?
CTNNB1 Connect and Cure Inc's EIN (Employer Identification Number) is 83-4541448. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated November 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS September 16, 2026)
- Added Form 990-EZ for fiscal year 2019 (received by the IRS February 27, 2020)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 7, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 10, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work CTNNB1 Connect and Cure Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in CTNNB1 Connect and Cure Inc's focus areas in our free grants database
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