CTNNB1 Connect and Cure Inc
Finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$407K
+28.8% YoY
Annual Giving
$152K
-1.8% YoY
Grant Count
3
+50.0% YoY
Avg Grant Size
$51K
-34.5% YoY
About CTNNB1 Connect and Cure Inc
Based on IRS filings
CTNNB1 Connect and Cure Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in MORRISTOWN, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $407K in total assets. In 2024, it awarded 3 grants totaling $152K. Net investment income was $8K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $407,436 | $316,244 | $196,676 |
| Revenue | $335,742 | $313,878 | $146,053 |
| Expenses | $244,550 | $194,310 | $92,476 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $7,673 | — | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Open Grants
1 open opportunity from CTNNB1 Connect and Cure Inc
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Trustees of Tufts College ($117,000), Boston Children's Hopsital ($30,000), Trustees of University of Pennsylvania ($5,225).
| Recipient | Purpose | Amount |
|---|---|---|
| Trustees of Tufts College Boston, MA | CTNNB1 Research | $117,000 |
| Boston Children's Hopsital Boston, MA | CTNNB1 Natural History Study | $30,000 |
| Trustees of University of Pennsylvania Philadelphia, PA | CTNNB1 Sponsorship Grant | $5,225 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Sean Cochran | Chief Financial Officer | 10 | — |
| Emily Amerson | President | 40 | — |
| Crawford McWilliams | Director | 5 | — |
| Alex Dashiell | Secretary | 5 | — |
| Ngano Tony King Sr | Chief Research Officer | 15 | — |
| Effie Parks | Director | 3 | — |
| Ashley Swift | Chief Communications Officer | 15 | — |
| Bruno Ramalho | Director | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is CTNNB1 Connect and Cure Inc?
CTNNB1 Connect and Cure Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in MORRISTOWN, NJ. It holds $407K in total assets as of 2024.
How large is CTNNB1 Connect and Cure Inc?
As of 2024, CTNNB1 Connect and Cure Inc holds $407K in total assets with $336K in annual revenue. It awarded 3 grants totaling $152K in 2024.
Where does CTNNB1 Connect and Cure Inc operate?
CTNNB1 Connect and Cure Inc has awarded grants in Massachusetts, Pennsylvania.
What size grants does CTNNB1 Connect and Cure Inc award?
In 2024, CTNNB1 Connect and Cure Inc awarded 3 grants totaling $152K — an average of about $51K per grant, based on its IRS Form 990 filings.
What is CTNNB1 Connect and Cure Inc's EIN?
CTNNB1 Connect and Cure Inc's EIN (Employer Identification Number) is 83-4541448. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in CTNNB1 Connect and Cure Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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