CTNNB1 Connect and Cure Inc
Finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families.
CTNNB1 Connect and Cure Inc at a glance
In short: CTNNB1 Connect and Cure Inc gave $152K across 3 grants in 2024 (avg $51K), mostly in Massachusetts. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $152,225
- -1.8% vs 2023
- Grants made (2024)
- 3
- +50.0% vs 2023
- Average grant
- $50,742
- -34.5% vs 2023
- Median grant
- $30,000
- Total assets
- $407,436
- +28.8% vs 2023
- Primary geography
- Massachusetts (97% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to CTNNB1 Connect and Cure Inc
Open Grants
2 open opportunities from CTNNB1 Connect and Cure Inc
Who CTNNB1 Connect and Cure Inc funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
The largest 2024 recipient was Trustees of Tufts College ($117K). Together the top 3 received $152K.
Grant Size Distribution
5 grants across all recorded years
The most common grant size was under $50K: 2 grants of 5 (40%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 3 itemized grants.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2024, annual grant giving ranged from $152K (2024) to $155K (2023). In 2024 it made 3 grants totaling $152K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Trustees of Tufts College Boston, MA | CTNNB1 Research | $117,000 |
| Boston Children's Hopsital Boston, MA | CTNNB1 Natural History Study | $30,000 |
| Trustees of University of Pennsylvania Philadelphia, PA | CTNNB1 Sponsorship Grant | $5,225 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $407,436 | $335,742 | $244,550 | $152,225 | 3 | $7,673 |
| 2023 | $316,244 | $313,878 | $194,310 | $155,000 | 2 | — |
| 2022 | $196,676 | $146,053 | $92,476 | — | — | — |
| 2021 | $143,099 | $117,287 | $68,012 | — | — | — |
| 2020 | — | $114,360 | $58,526 | — | — | — |
| 2019 | — | $75,491 | $37,500 | — | — | — |
About CTNNB1 Connect and Cure Inc
Based on IRS filings
CTNNB1 Connect and Cure Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Morristown, NJ. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $407K in total assets. In 2024, it awarded 3 grants totaling $152K. Net investment income was $8K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
CTNNB1 Connect and Cure Inc is led by Emily Amerson, President since 2023 (on filings since 2022); none of the 8 officers listed in 2024 report compensation.
Officers on the 2024 filing
Emily Amerson
President
Director → President, 2023
On filings since 2022
40 hrs/week
No compensation reported
Effie Parks
Director
Director → Director of Partnerships, 2023
Director of Partnerships → Director, 2024
On filings since 2022
3 hrs/week
No compensation reported
Bruno Ramalho
Director
Director of Technology → Director, 2024
On filings since 2023
5 hrs/week
No compensation reported
Crawford McWilliams
Director
New on the 2024 filing
5 hrs/week
No compensation reported
Sean Cochran
Chief Financial Officer
Treasurer → Chief Financial Officer, 2023
On filings since 2019
10 hrs/week
No compensation reported
Alex Dashiell
Secretary
Co-Treasurer → Secretary, 2024
On filings since 2022
5 hrs/week
No compensation reported
Ashley Swift
Chief Communications Officer
Director → Chief Communications Officer, 2023
On filings since 2022
15 hrs/week
No compensation reported
Ngano Tony King Sr.
Chief Research Officer
Director → Chief Research Officer, 2023
On filings since 2022
15 hrs/week
No compensation reported
Former officers (8)
- Former: Annie Wood (2022–2023) — Director of Engagement
- Former: Lauren Cochran (2022–2023) — Director of Research
- Former: Nicole Dashiell (2022–2023) — Secretary
- Former: Lindsay Stevens (2023) — Director of Fundraising
- Former: Christine Currence (2022) — Director
- Former: Kayla Cayton (2022) — Director
- Former: Mariana Parks (2022) — Diredtor
- Former: Paul Curmi (2022) — Director
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about CTNNB1 Connect and Cure Inc
How much does CTNNB1 Connect and Cure Inc give each year?
CTNNB1 Connect and Cure Inc gave $152K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $155K across 2 grants.
What is CTNNB1 Connect and Cure Inc's typical grant size?
CTNNB1 Connect and Cure Inc's median grant in 2024 was $30,000, and its average grant was $50,742, across 3 grants on its 2024 IRS Form 990.
Where does CTNNB1 Connect and Cure Inc give grants?
CTNNB1 Connect and Cure Inc gives mostly in Massachusetts: 97% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The most frequent recipient cities were Boston, MA (2 grants).
Does CTNNB1 Connect and Cure Inc give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on CTNNB1 Connect and Cure Inc's 2024 IRS Form 990 were described as general or operating support.
How large is CTNNB1 Connect and Cure Inc?
CTNNB1 Connect and Cure Inc reported $407K in total assets on its 2024 IRS Form 990. Its revenue that year was $336K.
What is CTNNB1 Connect and Cure Inc?
CTNNB1 Connect and Cure Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Morristown, NJ. It holds $407K in total assets as of 2024.
What is CTNNB1 Connect and Cure Inc's EIN?
CTNNB1 Connect and Cure Inc's EIN (Employer Identification Number) is 83-4541448. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Added Form 990-EZ for fiscal year 2019 (received by the IRS February 27, 2020)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 7, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 10, 2025)
- IRS filings on file for fiscal years 2020–2024
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