Cooley's Anemia Foundation

Public charity · Grantmaker New York, NY EIN: 11-1971539

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

Cooley's Anemia Foundation at a glance

In short: Cooley's Anemia Foundation gave $250K across 5 grants in 2025 (avg $50K), top state California. Source: 2025 IRS Form 990.

Annual giving (2025)
$250,000
+25.0% vs 2024
Grants made (2025)
5
+25.0% vs 2024
Average grant
$50,000
+0.0% vs 2024
Median grant
$50,000
Total assets
$7,568,909
+18.7% vs 2024
Primary geography
California (20% of itemized 2025 grant dollars)
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated September 2026.

How to apply to Cooley's Anemia Foundation

Who Cooley's Anemia Foundation funds

How this funder distributes its grants

Top Recipients

Top 5 recipients in 2025

Regents of the University of CA: $50KRegents of the University ofCA$50KChildrens Hospital of Philadelphi: $50KChildrens Hospital ofPhiladelphi$50KLindsley F Kimball Research Institu New York Blood Center: $50KLindsley F Kimball ResearchInstitu New York Blood Center$50KBrigham and Womens Hospital: $50KBrigham and Womens Hospital$50KUniversity of MD: $50KUniversity of MD$50K

The largest 2025 recipient was Regents of the University of CA ($50K). Together the top 5 received $250K.

Grant Size Distribution

21 grants across all recorded years

1<$50K19$50–100K1$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $50–100K range: 19 grants of 21 (90%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

12states

Share of 2025 grant dollars across all 5 itemized grants.

Cities

BostonPhiladelphiaLos AngelesClevelandNew YorkNewarkStorrsAnn ArborAtlantaBaltimoreChampaignMemphisSan Francisco

How Cooley's Anemia Foundation gives

  • Giving held roughly steady from 2022 to 2025 (−15%). Method

From the foundation's IRS Form 990 filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K5 grants2019 8 grants2020 5 grants2021 5 grants2022 2 grants2023 4 grants2024 5 grants2025

From 2019 to 2025, annual grant giving ranged from $100K (2023) to $293K (2022). In 2025 it made 5 grants totaling $250K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Regents of the University of CA Los Angeles, CA—$50,000
Childrens Hospital of Philadelphi Philadelphia, PA—$50,000
Lindsley F Kimball Research Institu New York Blood Center New York, NY—$50,000
Brigham and Womens Hospital Boston, MA—$50,000
University of MD Baltimore, MD—$50,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$7,568,909$3,550,630$2,296,214$250,0005$240,226
2024$6,376,996$2,812,580$2,224,356$200,0004$239,526
2023$5,550,283$2,306,555$2,165,404$100,0002$22,016
2022$5,144,098$3,029,482$1,903,459$292,7115$-20,203
2021$4,659,141$1,565,758$1,703,072$250,0005$89,521
2020$4,652,443$1,066,981$2,173,442$271,8758$58,438
2019$5,160,832$2,248,215$2,099,709$162,5005$45,881

About Cooley's Anemia Foundation

Based on IRS filings

Cooley's Anemia Foundation is a public charity, based in New York, NY. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $7.6M in total assets. In 2025, it awarded 5 grants totaling $250K. Net investment income was $240K.

Leadership & Key People

Officers and directors from IRS filings

Cooley's Anemia Foundation is led by Ralph Colasanti, President since 2022 (on filings since 2019); 2 of 50 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Ralph Colasanti

    President

    Director → President, 2022

    On filings since 2019

    No compensation reported

  • Amnish Goel

    Director

    On filings since 2019

    No compensation reported

  • Amy Celento

    Director

    On filings since 2019

    No compensation reported

  • Anthony J. Viola

    Director

    On filings since 2019

    No compensation reported

  • Cammie Brandofino

    Director

    On filings since 2019

    No compensation reported

  • Carmine Abruzzo

    Director

    On filings since 2019

    No compensation reported

  • Christine Horton

    Director

    On filings since 2019

    No compensation reported

  • Dean Hernan

    Director

    Treasurer → Director, 2021

    On filings since 2019

    No compensation reported

  • Frank Fusaro

    Director

    On filings since 2019

    No compensation reported

  • Frank Somma

    Director

    On filings since 2019

    No compensation reported

  • James Ventola

    Director

    On filings since 2019

    No compensation reported

  • Joseph Di Trapani

    Director

    On filings since 2019

    No compensation reported

  • Joseph Sciame

    Director

    On filings since 2019

    No compensation reported

  • Joseph Zuraw

    Director

    On filings since 2019

    No compensation reported

  • Julia Cenzaprano

    Director

    On filings since 2019

    No compensation reported

  • Michael Pouchie

    Director

    On filings since 2019

    No compensation reported

  • Michael Presto

    Director

    On filings since 2019

    No compensation reported

  • Michelle Chieco-Lenz

    Director

    On filings since 2019

    No compensation reported

  • Paul Polo

    Director

    On filings since 2019

    No compensation reported

  • Peter Chieco

    Director

    President → Director, 2022

    On filings since 2019

    No compensation reported

  • Phil Rutigliano

    Director

    On filings since 2019

    No compensation reported

  • Robert Ficarra

    Director

    On filings since 2019

    No compensation reported

  • Sarah Baqueri Connolly

    Director

    On filings since 2019

    No compensation reported

  • Teresa Tomaino

    Director

    On filings since 2019

    No compensation reported

  • Thomas A. Rotolo

    Director

    On filings since 2019

    No compensation reported

  • Tom Watral

    Director

    On filings since 2019

    No compensation reported

  • Tracy Antonelli

    Director

    On filings since 2019

    No compensation reported

  • Ben Li

    Director

    On filings since 2021

    No compensation reported

  • Josephine Flood

    Director

    On filings since 2021

    No compensation reported

  • Nunzio Cazzetta

    Director

    Member Emeritus → Director, 2025

    On filings since 2021

    No compensation reported

  • Pranav Saha

    Director

    On filings since 2021

    No compensation reported

  • Radhika Sawh

    Director

    On filings since 2021

    No compensation reported

  • William Pisano

    Director

    On filings since 2021

    No compensation reported

  • Jennie Rose Chieco

    Director

    On filings since 2022

    No compensation reported

  • Laurie Pizzo

    Director

    On filings since 2022

    No compensation reported

  • Mary Ann Cervoni-Iaia

    Director

    On filings since 2022

    No compensation reported

  • Terri Difillipo

    Director

    On filings since 2022

    No compensation reported

  • John Mancino

    Director

    New on the 2025 filing

    No compensation reported

  • Joseph M. Tantillo

    Director

    New on the 2025 filing

    No compensation reported

  • Maria Saradpon

    Director

    New on the 2025 filing

    No compensation reported

  • Peter Pettinato Vmd

    Director

    New on the 2025 filing

    No compensation reported

  • Steve Milvid

    Director

    New on the 2025 filing

    No compensation reported

  • Valerie Mancino

    Director

    New on the 2025 filing

    No compensation reported

  • Yasmeen Anis-Shah

    Director

    New on the 2025 filing

    No compensation reported

  • Craig Butler

    Executive Di

    On filings since 2019

    40 hrs/week

    $153K (2019) → $164K (2025)

  • Amy Sullivan

    Major Gifts

    New on the 2025 filing

    40 hrs/week

    $105K (2025)

  • Janet Kwiatkowski

    Medical Advisor

    Director → Medical Advisor, 2020

    On filings since 2019

    No compensation reported

  • Janice Cenzaprano

    Treasurer

    Vice President → Treasurer, 2022

    On filings since 2019

    No compensation reported

  • Joseph Vigliotti

    Vice President

    Director → Treasurer, 2021

    Treasurer → Vice President, 2022

    On filings since 2019

    No compensation reported

  • Maria Hadjidemetriou

    Secretary

    On filings since 2019

    No compensation reported

Former officers (21)
  • Former: Alan Cohen (2019–2024) — Director
  • Former: Anthony Ferrino (2019–2024) — Director
  • Former: Antoni Foe (2019–2024) — Director
  • Former: Frank Tidona (2019–2024) — Director
  • Former: Shirley Cammilleri (2019–2024) — Director
  • Former: Thomas Cheng (2019–2024) — Director
  • Former: Cindy Morrison (2021–2024) — Director
  • Former: Robert Aiello (2019–2021) — Director
  • Former: Terri Difilippo (2019–2021) — Director
  • Former: Joseph Ditrapani (2021) — Director
  • Former: Laurie Messina (2021) — Director
  • Former: Maryann Cervoni (2021) — Director
  • Former: Michelle Lenz (2021) — Director
  • Former: Chi Pham (2019–2020) — Director
  • Former: Frank Marzano (2019–2020) — Director
  • Former: Gianna Palminteri (2019–2020) — Director
  • Former: Josephine Bila (2019–2020) — Director
  • Former: Mary Ann Cervonia-Laia (2019–2020) — Director
  • Former: Richard Kirkendall (2019–2020) — Director
  • Former: Sharon Farrell Radonis (2019–2020) — Director
  • Former: Michael Diflippo (2019) — Director

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Craig Butler — Executive Di: $164KCraig ButlerExecutive Di$164KAmy Sullivan — Major Gifts: $105KAmy SullivanMajor Gifts$105K

The highest reported compensation on the 2025 filing was $164K, to Craig Butler (Executive Di). 2 officers or directors reported compensation on that filing.

Frequently asked questions about Cooley's Anemia Foundation

How much does Cooley's Anemia Foundation give each year?

Cooley's Anemia Foundation gave $250K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $200K across 4 grants.

What is Cooley's Anemia Foundation's typical grant size?

Cooley's Anemia Foundation's median grant in 2025 was $50,000, and its average grant was $50,000, across 5 grants on its 2025 IRS Form 990.

Where does Cooley's Anemia Foundation give grants?

Cooley's Anemia Foundation's top state is California, with 20% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Pennsylvania (20%) and New York (20%).

Who are Cooley's Anemia Foundation's largest grantees?

Cooley's Anemia Foundation's largest 2025 grantees include Regents of the University of CA ($50,000), Childrens Hospital of Philadelphi ($50,000) and Lindsley F Kimball Research Institu New York Blood Center ($50,000), according to its 2025 IRS Form 990. Together they received 60% of its itemized 2025 grant dollars.

How large is Cooley's Anemia Foundation?

Cooley's Anemia Foundation reported $7.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $3.6M.

What is Cooley's Anemia Foundation's EIN?

Cooley's Anemia Foundation's EIN (Employer Identification Number) is 11-1971539. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(7)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS May 6, 2021)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS May 12, 2022)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS April 28, 2023)
  4. Updated Form 990 for fiscal year 2023 (received by the IRS May 8, 2024)
  5. Added Form 990 for fiscal year 2019 (received by the IRS April 29, 2020)
  6. Added Form 990 for fiscal year 2025 (received by the IRS May 5, 2026)
  7. IRS filings on file for fiscal years 2020–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Cooley's Anemia Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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