The mission of Chelsea's Hope is to improve the lives of those affected by Lafora disease and to help accelerate the development of treatments. We do this by raising awareness, hosting educational events, and supporting research efforts for Lafora disease.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$360K
-54.0% YoY
Annual Giving
$150K
Grant Count
1
Avg Grant Size
$150K
About Chelseas Hope Lafora Children Research Fund
Based on IRS filings
Chelseas Hope Lafora Children Research Fund is a nonprofit organization focused on Medical Research, based in LEXINGTON, KY. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $360K in total assets. In 2024, it awarded 1 grants totaling $150K. Net investment income was $9K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $360,014 | $781,924 | $658,282 |
| Revenue | $257,587 | $279,702 | $652,148 |
| Expenses | $679,497 | $197,594 | $265,056 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $9,259 | $1,912 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
1 grants across all recorded years
Open Grants
2 open opportunities from Chelseas Hope Lafora Children Research Fund
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Lena Ismail | Executive Director (Top Management) | 35 | $66,796 |
| Katherine Donohue | Finance Director & Executive Director (Top Management) | 35 | $53,004 |
| Frank Harris | President | 5 | — |
| Jenifer Merriam | Vice President | 5 | — |
| Sheila Barter | Treasurer | 5 | — |
| Meredith Williams | Secretary | 5 | — |
| Nadia Ismail | At-Large Member, Board of Directors | 5 | — |
| Niki Markou | At-Large Member, Board of Directors | 15 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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