Chelsea's Hope Patient Assistance Grant
Funding Amount
Not stated
Deadline
Deadline not published
Grant Type
Foundation
Deadline history & next window
- Cycle
- One-time opportunity
- Tracked since
- April 2026
Source: the cycle recorded on this listing. Confirm dates with the funder.
Can we apply?
Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.
Eligible organizations
- Households with individuals affected by Lafora Disease
Other requirements
- Priority for those impacted by COVID-19
- Funder: Global Genes' Continuity of Care RARE Patient Impact Grant (in partnership with Chelsea's Hope)
Overview
Geographic Scope: United States
Focus Areas:
- Financial assistance for Lafora Disease households impacted by COVID-19
Eligibility:
- Households with individuals affected by Lafora Disease
- Priority for those impacted by COVID-19
Funder: Global Genes' Continuity of Care RARE Patient Impact Grant (in partnership with Chelsea's Hope)
Contact Information:
- Chelsea's Hope Lafora Children Research Fund
- c/o Dr. Donohue
- 976 Maywick Dr.
- Lexington, KY 40504
- info@chelseashope.org
Background: This was a one-time funding opportunity offered in response to the COVID-19 pandemic. The original deadline of December 1, 2020 was extended to December 7, 2020. Limited funds were available, with awards made by December 15, 2020. The form is now closed and grants have been awarded.
How to Apply
Application Process
- Complete the Chelsea's Hope Patient Assistance Grant application form
- Submit application by deadline
- All applications reviewed with goal of making awards within specified timeframe
- Contact Chelsea's Hope for assistance or questions: info@chelseashope.org
Note: This grant program is no longer active. The form has been closed as of 2020.
What Chelseas Hope Lafora Children Research Fund actually gave
Source: IRS Form 990, 2025
- Grants in 2025
- 1
- Total given
- $310K
- Median grant
- $310K
- By dollars: Texas 100%. Top recipient cities: Dallas, TX.
Example grants
The University of Texas Southwestern Medical Center · Dallas, TX
To support the lafora clinical trial: safety study for ion283
$310K
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