CHDI Foundation Inc

Private foundation · Grantmaker Roseland, NJ EIN: 73-1683871

CHDI Foundation Inc is a private foundation focused on Medical Research, based in Roseland, NJ. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $83.1M in total assets. In 2025, it awarded 7 grants totaling $531K. Net investment income was $8.7M.

CHDI Foundation Inc at a glance

In short: CHDI Foundation Inc gave $531K across 7 grants in 2025 (avg $76K), mostly in Maryland. Source: 2025 IRS Form 990-PF.

Annual giving (2025)
$531,050
-32.8% vs 2024
Grants made (2025)
7
-12.5% vs 2024
Average grant
$75,864
-23.2% vs 2024
Median grant
$25,000
Total assets
$83,060,450
-9.3% vs 2024
Primary geography
Maryland (62% of itemized 2025 grant dollars)
Latest 990 filing
Form 990-PF, 2025 View filing

Data from IRS Form 990-PF, 2025; updated November 2026.

Who CHDI Foundation Inc funds

How this funder distributes its grants

Top Recipients

Top 7 recipients in 2025

Johns Hopkins University: $330KJohns Hopkins University$330KHuntington's Disease Society of America: $100KHuntington's Disease Societyof America$100KFactor-H: $36KFactor-H$36KGordon Research Conferences: $25KGordon Research Conferences$25KHuntington's Disease Youth Organization: $20KHuntington's Disease YouthOrganization$20KHelp 4 HD International Incorporated: $15KHelp 4 HD InternationalIncorporated$15KHorizon Community Funds: $5KHorizon Community Funds$5K

The largest 2025 recipient was Johns Hopkins University ($330K). Together the top 7 received $531K.

Grant Size Distribution

27 grants across all recorded years

13<$50K4$50–100K6$100–250K4$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 13 grants of 27 (48%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

6states

Share of 2025 grant dollars across all 7 itemized grants.

Cities

New YorkBaltimoreLexingtonRochesterElk GroveLivoniaBethesdaCovingtonEast GreenwichLos AngelesRockville

How CHDI Foundation Inc gives

  • Giving grew 136% from 2022 to 2025. Method
  • In 2025 it paid out well above its IRS minimum distribution (the 5% rule). Method

From the foundation's IRS Form 990-PF filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$200K$400K$600K$800K4 grants2021 3 grants2022 5 grants2023 8 grants2024 7 grants2025

From 2021 to 2025, annual grant giving ranged from $225K (2022) to $790K (2024). In 2025 it made 7 grants totaling $531K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Johns Hopkins University Baltimore, MDEstablish a medical center$330,000
Huntington's Disease Society of America New York, NYSupport for fellowship programs and convention$99,950
Factor-H Los Angeles, CASupport for non-for-profit activities$36,000
Gordon Research Conferences East Greenwich, RISupport for a conference$25,000
Huntington's Disease Youth Organization Livonia, MISupport for a meeting$20,000
Help 4 HD International Incorporated Elk Grove, CASupport for a conference$15,100
Horizon Community Funds Covington, KYSupport for fundraising$5,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsQualifying DistributionsNet Investment IncomeDistributable Amount
2025$83,060,450$208,882,180$219,763,233$531,0507$216,260,533$8,715,818$7,881,212
2024$91,571,766$206,631,354$194,514,335$789,9958$187,765,039$8,858,227$5,573,742
2023$79,566,802$152,469,788$179,908,199$475,7765$177,127,368$4,562,769$6,344,683
2022$101,702,506$151,106,627$155,929,144$225,1753$161,426,038$1,020,506$6,585,610
2021$110,173,291$155,019,222$169,430,668$710,3504——$5,019,919

Under IRS private-foundation payout rules, CHDI Foundation Inc reported a distributable amount of $7.9M for 2025 — the minimum it must pay out in qualifying distributions.

Leadership & Key People

Officers and directors from IRS filings

CHDI Foundation Inc is led by Kenneth J Slutsky, Director, President, Assistant Treasurer & Assistant Secretary since 2023 (on filings since 2021); none of the 9 officers listed in 2025 report compensation.

Officers on the 2025 filing

  • Kenneth J Slutsky

    Director, President, Assistant Treasurer & Assistant Secretary

    President & Treasurer → Director, President & Assistant Treasurer, 2022

    Director, President & Assistant Treasurer → Director, President, Assistant Treasurer & Assistant Secretary, 2023

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Alexandra P Mansbach

    Director

    Director, Vice President & Secretary → Director, 2023

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Christopher Austin

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • Elizabeth Fascitelli

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • James Bradner

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • John Maraganore

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • Thomas D Stern

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • Timothy Hentzel

    Vice President, Treasurer & Secretary

    Treasurer → Treasurer & Assistant Secretary, 2022

    Treasurer & Assistant Secretary → Vice President, Treasurer & Secretary, 2023

    On filings since 2021

    1 hr/week

    No compensation reported

  • Triplet Investment Company LLC

    Member

    On filings since 2021

    9 hrs/week

    No compensation reported

Former officers (3)
  • Former: Robi Blumenstein-pd (2021–2025) — President Chdi Mgt Inc · Filing note: Thru chdi mgt i
  • Former: David Mills (2021) — Vice President & Secretary
  • Former: John L Berger (2021) — Vice President & Assistant Secretary

Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about CHDI Foundation Inc

How much does CHDI Foundation Inc give each year?

CHDI Foundation Inc gave $531K across 7 grants in 2025, according to its 2025 IRS Form 990-PF. In 2024 it gave $790K across 8 grants.

What is CHDI Foundation Inc's typical grant size?

CHDI Foundation Inc's median grant in 2025 was $25,000, and its average grant was $75,864, across 7 grants on its 2025 IRS Form 990-PF.

Where does CHDI Foundation Inc give grants?

CHDI Foundation Inc gives mostly in Maryland: 62% of the grant dollars itemized on its 2025 IRS Form 990-PF went to recipients there. The next largest states were New York (19%) and California (10%).

Does CHDI Foundation Inc give general operating support?

Not in 2025: none of the 7 grants with a stated purpose on CHDI Foundation Inc's 2025 IRS Form 990-PF were described as general or operating support.

Who are CHDI Foundation Inc's largest grantees?

CHDI Foundation Inc's largest 2025 grantees include Johns Hopkins University ($330,000), Huntington's Disease Society of America ($99,950) and Factor-H ($36,000), according to its 2025 IRS Form 990-PF. Together they received 88% of its itemized 2025 grant dollars.

How large is CHDI Foundation Inc?

CHDI Foundation Inc reported $83.1M in total assets on its 2025 IRS Form 990-PF. It paid out $216.3M in qualifying distributions that year, against a required minimum of $7.9M (roughly 5% of its investment assets).

What is CHDI Foundation Inc?

CHDI Foundation Inc is a private foundation focused on Medical Research, based in Roseland, NJ. It holds $83.1M in total assets as of 2025.

What is CHDI Foundation Inc's EIN?

CHDI Foundation Inc's EIN (Employer Identification Number) is 73-1683871. IRS Form 990 filing data is available on this page for 2021–2025.

Data last updated November 2026. Sourced from IRS Form 990-PF filings.

Data update history

(2)

When this profile's IRS filing data changed on Grantable

  1. Added Form 990-PF for fiscal year 2025 (received by the IRS September 10, 2026)
  2. IRS filings on file for fiscal years 2021–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from CHDI Foundation Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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