CHDI Foundation Inc

Private foundation · Grantmaker Roseland, NJ EIN: 73-1683871

CHDI Foundation Inc is a private foundation focused on Medical Research, based in Roseland, NJ. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $91.6M in total assets. In 2024, it awarded 8 grants totaling $790K. Net investment income was $8.9M.

CHDI Foundation Inc at a glance

In short: CHDI Foundation Inc gave $790K across 8 grants in 2024 (avg $99K), top state New York. Source: 2024 IRS Form 990-PF.

Annual giving (2024)
$789,995
+66.0% vs 2023
Grants made (2024)
8
+60.0% vs 2023
Average grant
$98,749
+3.8% vs 2023
Median grant
$52,500
Total assets
$91,571,766
+15.1% vs 2023
Primary geography
New York (47% of itemized 2024 grant dollars)
Latest 990 filing
Form 990-PF, 2024 View filing

Data from IRS Form 990-PF, 2024; updated September 2026.

Who CHDI Foundation Inc funds

How this funder distributes its grants

Top Recipients

Top 8 recipients in 2024

Huntington's Disease Society of America: $337KHuntington's Disease Societyof America$337KJohns Hopkins University: $195KJohns Hopkins University$195KUniversity of Kentucky Research Foundation: $135KUniversity of KentuckyResearch Foundation$135KNational Institute of Diabetes and Digestive and Kidney Diseases: $75KNational Institute of Diabetesand Digestive and Kidney…$75KHuntington Study Group Ltd: $30KHuntington Study Group Ltd$30KHelp 4 HD International Incorporated: $8KHelp 4 HD InternationalIncorporated$8KFederation of American Societies for Experimental Biology: $5KFederation of AmericanSocieties for Experimental…$5KHereditary Disease Foundation: $5KHereditary Disease Foundation$5K

The largest 2024 recipient was Huntington's Disease Society of America ($337K). Together the top 8 received $790K.

Grant Size Distribution

20 grants across all recorded years

8<$50K3$50–100K6$100–250K3$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 8 grants of 20 (40%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

5states

Share of 2024 grant dollars across all 8 itemized grants.

Cities

New YorkLexingtonRochesterBaltimoreBethesdaElk GroveLivoniaRockville

How CHDI Foundation Inc gives

  • Giving held roughly steady from 2021 to 2024 (+11%). Method
  • In 2024 it paid out well above its IRS minimum distribution (the 5% rule). Method

From the foundation's IRS Form 990-PF filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$200K$400K$600K$800K4 grants2021 3 grants2022 5 grants2023 8 grants2024

From 2021 to 2024, annual grant giving ranged from $225K (2022) to $790K (2024). In 2024 it made 8 grants totaling $790K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Huntington's Disease Society of America New York, NYSupport for fellowship programs and convention$337,020
Johns Hopkins University Baltimore, MDEstablish a medical center$195,000
University of Kentucky Research Foundation Lexington, KYSupport for HTT lowering in non-human primates$135,175
National Institute of Diabetes and Digestive and Kidney Diseases Bethesda, MDSupport for the purchase of lab consumables$75,000
Huntington Study Group Ltd Rochester, NYSupport for annual meeting$30,000
Help 4 HD International Incorporated Elk Grove, CASupport for a conference$7,800
Federation of American Societies for Experimental Biology Rockville, MDSupport for medical meeting$5,000
Hereditary Disease Foundation New York, NYSupport for a fundraising event$5,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsQualifying DistributionsNet Investment IncomeDistributable Amount
2024$91,571,766$206,631,354$194,514,335$789,9958$187,765,039$8,858,227$5,573,742
2023$79,566,802$152,469,788$179,908,199$475,7765$177,127,368$4,562,769$6,344,683
2022$101,702,506$151,106,627$155,929,144$225,1753$161,426,038$1,020,506$6,585,610
2021$110,173,291$155,019,222$169,430,668$710,3504——$5,019,919

Under IRS private-foundation payout rules, CHDI Foundation Inc reported a distributable amount of $5.6M for 2024 — the minimum it must pay out in qualifying distributions.

Leadership & Key People

Officers and directors from IRS filings

CHDI Foundation Inc is led by Kenneth J Slutsky, Director, President, Assistant Treasurer & Assistant Secretary since 2023 (on filings since 2021); none of the 9 officers listed in 2024 report compensation.

Officers on the 2024 filing

  • Kenneth J Slutsky

    Director, President, Assistant Treasurer & Assistant Secretary

    President & Treasurer → Director, President & Assistant Treasurer, 2022

    Director, President & Assistant Treasurer → Director, President, Assistant Treasurer & Assistant Secretary, 2023

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Alexandra P Mansbach

    Director

    Director, Vice President & Secretary → Director, 2023

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Christopher Austin

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • Elizabeth Fascitelli

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • James Bradner

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • John Maraganore

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • Thomas D Stern

    Director

    On filings since 2022

    1.5 hrs/week

    No compensation reported

  • Timothy Hentzel

    Vice President, Treasurer & Secretary

    Treasurer → Treasurer & Assistant Secretary, 2022

    Treasurer & Assistant Secretary → Vice President, Treasurer & Secretary, 2023

    On filings since 2021

    1 hr/week

    No compensation reported

  • Triplet Investment Company LLC

    Member

    On filings since 2021

    9 hrs/week

    No compensation reported

Former officers (3)
  • Former: Robi Blumenstein-pd (2021–2024) — President Chdi Mgt Inc · Filing note: Thru chdi mgt i
  • Former: David Mills (2021) — Vice President & Secretary
  • Former: John L Berger (2021) — Vice President & Assistant Secretary

Data from IRS Form 990 filings, 2021–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about CHDI Foundation Inc

How much does CHDI Foundation Inc give each year?

CHDI Foundation Inc gave $790K across 8 grants in 2024, according to its 2024 IRS Form 990-PF. In 2023 it gave $476K across 5 grants.

What is CHDI Foundation Inc's typical grant size?

CHDI Foundation Inc's median grant in 2024 was $52,500, and its average grant was $98,749, across 8 grants on its 2024 IRS Form 990-PF.

Where does CHDI Foundation Inc give grants?

CHDI Foundation Inc's top state is New York, with 47% of the grant dollars itemized on its 2024 IRS Form 990-PF. The next largest states were Maryland (35%) and Kentucky (17%). The most frequent recipient cities were New York, NY (2 grants).

Does CHDI Foundation Inc give general operating support?

Not in 2024: none of the 8 grants with a stated purpose on CHDI Foundation Inc's 2024 IRS Form 990-PF were described as general or operating support.

Who are CHDI Foundation Inc's largest grantees?

CHDI Foundation Inc's largest 2024 grantees include Huntington's Disease Society of America ($337,020), Johns Hopkins University ($195,000) and University of Kentucky Research Foundation ($135,175), according to its 2024 IRS Form 990-PF. Together they received 84% of its itemized 2024 grant dollars.

How large is CHDI Foundation Inc?

CHDI Foundation Inc reported $91.6M in total assets on its 2024 IRS Form 990-PF. It paid out $187.8M in qualifying distributions that year, against a required minimum of $5.6M (roughly 5% of its investment assets).

What is CHDI Foundation Inc?

CHDI Foundation Inc is a private foundation focused on Medical Research, based in Roseland, NJ. It holds $91.6M in total assets as of 2024.

What is CHDI Foundation Inc's EIN?

CHDI Foundation Inc's EIN (Employer Identification Number) is 73-1683871. IRS Form 990 filing data is available on this page for 2021–2024.

Data last updated September 2026. Sourced from IRS Form 990-PF filings.

Data update history

(1)

When this profile's IRS filing data changed on Grantable

  1. IRS filings on file for fiscal years 2021–2024

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Figures come from CHDI Foundation Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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