Central Florida Down Syndrome Assoc Inc
To change what is possible for people with down syndrome through programs, resources, and advocacy
Central Florida Down Syndrome Assoc Inc at a glance
- Total assets
- $2,255,026
- -3.8% vs 2024
- Revenue (2025)
- $665,156
- -34.3% vs 2024
- Net investment income (2025)
- $80,314
- -62.4% vs 2024
- Expenses (2025)
- $678,309
- -29.3% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Central Florida Down Syndrome Assoc Inc funds
How this funder distributes its grants
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $250–500K range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2024 it made 1 grant totaling $354K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Advent Health Found Cen FL Orlando, FL | Provide healthcare to special needs | $353,700 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $2,255,026 | $665,156 | $678,309 | — | — | $80,314 |
| 2024 | $2,344,542 | $1,012,671 | $959,975 | $353,700 | 1 | $213,506 |
| 2023 | $2,082,738 | $639,623 | $602,383 | — | — | $-6,329 |
| 2022 | $1,975,458 | $775,933 | $427,998 | — | — | $51,563 |
| 2021 | $1,636,851 | $382,726 | $377,946 | — | — | $28,983 |
| 2020 | $1,574,196 | $549,128 | $565,124 | — | — | $15,897 |
| 2019 | $1,379,642 | $670,848 | $628,695 | — | — | $25,539 |
About Central Florida Down Syndrome Assoc Inc
Based on IRS filings
Central Florida Down Syndrome Assoc Inc is a public charity focused on Human Services, based in Winter Park, FL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $2.3M in total assets. Net investment income was $80K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Central Florida Down Syndrome Assoc Inc is led by Heather Barnes, Executive Director on every filing since 2020; 1 of 13 officers listed in 2025 is compensated.
Officers on the 2025 filing
Heather Barnes
Executive Director
On filings since 2020
40 hrs/week
$37K (2021) → $116K (2025)
Troy Culley
Chair
Treasurer → Chairman, 2024
Chairman → Chair, 2025
On filings since 2020
10 hrs/week
No compensation reported
Cory Aspelieter
Director
On filings since 2019
5 hrs/week
No compensation reported
Patricia Lewis
Director
On filings since 2020
5 hrs/week
No compensation reported
Jeff Goodman
Director
On filings since 2021
5 hrs/week
No compensation reported
Ben Strombeck
Director
On filings since 2023
5 hrs/week
No compensation reported
Candace Whiting
Director
On filings since 2024
5 hrs/week
No compensation reported
Chris McVay
Director
On filings since 2024
5 hrs/week
No compensation reported
Marc Miller
Director
On filings since 2024
5 hrs/week
No compensation reported
Christina Bock
Director
New on the 2025 filing
5 hrs/week
No compensation reported
Rebecca Samaan
Director
New on the 2025 filing
5 hrs/week
No compensation reported
Zak Sultan
Treasurer
Director → Secretary, 2023
Secretary → Treasurer, 2024
On filings since 2021
10 hrs/week
No compensation reported
Mary Beth Eliason
Secretary
On filings since 2024
10 hrs/week
No compensation reported
Former officers (17)
- Former: Catherine McWhorter (2023–2024) — Director
- Former: Catherine Davey (2019–2023) — Vice Chair
- Former: Diane Levine (2019–2023) — Board Chair
- Former: Ryan Rapolti (2019–2023) — Director
- Former: Sean Travis (2021–2023) — Director
- Former: Oryza Quiles (2020–2022) — Director
- Former: Byron Lawson (2019–2021) — Outgoing Chair & Secretary
- Former: Allison Salamone (2019–2020) — Director & Former Secretary
- Former: Sean Dimercurio (2019–2020) — Director & Former Treasurer
- Former: Corey Aspeletier (2020) — Director
- Former: Cynthia Williams (2020) — Interim Executive Director · Filing note: Through 720
- Former: Amy Drow (2019) — Interim Executive
- Former: Ben Johnson-Markve (2019) — Director
- Former: Erin Hagood (2019) — Director
- Former: Janet Benge (2019) — Former Chair
- Former: Janet Caramello Ed (2019) — Executive Di · Filing note: Through 1719
- Former: Part Vii Is (2019) — Forms
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $116K, to Heather Barnes (Executive Director).
Frequently asked questions about Central Florida Down Syndrome Assoc Inc
How large is Central Florida Down Syndrome Assoc Inc?
Central Florida Down Syndrome Assoc Inc reported $2.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $665K.
What is Central Florida Down Syndrome Assoc Inc?
Central Florida Down Syndrome Assoc Inc is a public charity focused on Human Services, based in Winter Park, FL. It holds $2.3M in total assets as of 2025.
Where does Central Florida Down Syndrome Assoc Inc operate?
Central Florida Down Syndrome Assoc Inc has awarded grants in Florida.
What is Central Florida Down Syndrome Assoc Inc's EIN?
Central Florida Down Syndrome Assoc Inc's EIN (Employer Identification Number) is 59-3124673. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS May 26, 2020)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 8, 2025)
- IRS filings on file for fiscal years 2020–2025
Explore Open Grants
Browse active grant opportunities in Central Florida Down Syndrome Assoc Inc's focus areas in our free grants database
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